Category: Patients

Guest blog: Invisible disability at work

by Jane Green BSc. (HONS) Psych., PGCE, Av.Dip. Ed. Child Development, MA Ed.  (Leadership and Management / autism)

Why did I stop working in my professional career?

Two-and-a-half years ago I medically retired. This was after years of pain following full dislocations; half-dislocations; sprains; tears in joints, muscles, ligaments and tendons; and arthritis. I received my diagnosis of Ehlers-Danlos syndrome 3 (now hEDS) and associated conditions later that year.

As a child, I did have a few problems with joints and did ‘party tricks’.…

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Rheumatoid Arthritis Game of Life

The timely, effective and responsive assessment and management of patients using the Patient Advice and Information Lines (PAIL) leads to improved quality of care and patient experience.

Whilst a number of the Patient Advice and Information Line calls are related to clinical concerns, patients, family and carers often talk about other life events that may impact on their treatment and management plan. Clinical Nurse Specialists and Members of the Rheumatology Multidisciplinary team need to be responsive with a wealth of knowledge and experience; they must also be imaginative with a bit of Health Service/ Community Care “common sense” to support these patients through these life events.…

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Portsmouth Flare Rollercoaster workshop

Flare Roller Coaster for People Living with Arthritis and Connective Tissue Diseases

The Next Rheumatology Flare Roller Coaster workshop will be held on Saturday 3rd February 2018, from 09:30 -13:00.
Venue: Fracture Clinic – C Level, Queen Alexandra Hospital, Cosham PO6 3LY

Places are limited so please register early.

To book your place or receive more information, email: rheumatology.conference@porthosp.nhs.uk or telephone 02392286935

For frequently asked questions about our Flare Rollercoaster workshop, please see our leaflet [PDF].

If you have arthritis or a connective tissue disease, the festive period can be tough.…

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NOS publishes new Osteoporosis Standards and Vertebral Fractures Guidance

On 30th November 2017, the National Osteoporosis Society published new Osteoporosis Standards and Vertebral Fractures Guidance for Health Professionals. The guidelines help health professionals provide the possible care for people with osteoporosis.

Fizz Thompson, Clinical Director for the National Osteoporosis Society, said: “The National Osteoporosis Society plays a key role in driving positive change in healthcare provision for people affected by fractures and osteoporosis, and these new documents – developed with clinical experts over a two year period – demonstrate how the Charity is setting the agenda in this area.…

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Portsmouth Department of Rheumatology dancing class

Fourteen patients and their partners and staff from the Department of Rheumatology are about to complete their 6-week ballroom class. Over the weeks they will have taken an additional 12,000 steps and exercised for around extra 5.5 hours.

Claire Jeffries, Rheumatology Specialist, Physiotherapist and Hydrotherapy Manager, points out that there are many health benefits of dancing: “it’s great for people of all ages, shapes and sizes”.

Dancing offers a wide range of physical and mental benefits:

  • improved condition of your heart and lungs
  • increased muscular tone, strength, endurance and motor fitness
  • increased aerobic fitness
  • weight management
  • stronger bones and reduced risk of osteoporosis
  • better coordination, balance, agility and flexibility
  • increased physical confidence
  • improved mental functioning and psychological wellbeing
  • greater self-confidence and self-esteem

The Department of Rheumatology would encourage people living with Arthritis and connective tissue diseases to consider dance as a form of activity.…

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DaM-it Arthritis Family Fun Day at Center Parcs Longleat

A fun-packed day for all

On Sunday 22nd October 2017, the Department of Rheumatology staff hosted more than fifteen tables for children’s games and crafts – f rom Dominos, colouring to ghostly table lights, and homemade first aid kits – whilst Dads and Mums living with arthritis and connective tissues attended a number of short presentations aimed at providing help and advice:

  • Strategies for coping with a diagnosis and moving forward
  • How to manage family life work and arthritis and connective tissue diseases
  • Incorporating the benefits for staying active and eating healthily

The DaM-it Arthritis project is funded through the Department of Rheumatology’s charitable funds and non-conditional educational grants, offering free events to support the community of Dads and Mums affected by Arthritis and Connective Tissue Diseases and their families.…

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DWP Community partners programme

The Department for Work and Pensions is looking to second people with a professional or lived experience of musculoskeletal conditions to work on an exciting, new project. The Community Partners Programme is a new initiative working with Jobcentre colleagues to enhance our service to customers with disabilities and health conditions.

We are looking to second a colleague from a local organisation to be a Musculoskeletal Community Partner to work across Bedfordshire and Hertfordshire. We are looking to arrange secondments with organisations who would like their colleagues to gain valuable experience in a government department, and to share their specialist skills and knowledge to enhance the supported to Jobcentre colleagues with disabilities and health conditions.…

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RheumaBuddy App

NRAS have partnered with Daman, a Danish digital Healthcare company, to bring you RheumaBuddy.

The aim of the app is to create an overview of your Rheumatoid Arthritis (RA) and Juvenile Idiopathic Arthritis (JIA) on a daily basis by discovering patterns and ultimately gaining a greater control of the condition. As well as creating a great overview, RheumaBuddy allows you to log sleep, exercise and hours of work or school. It is also possible to chat with other patients and learn from their experiences.…

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Spark innovation for the everyday challenges of arthritis

Recently, Arthritis Research UK has launched another round of Spark funding in collaboration with the Design Council. The Spark programme provides funding and support to UK-based innovators to develop products that will help tackle the everyday challenges that people with arthritis face, so improving their quality of life.

This exciting initiative aims to support the development of assistive products that help people living with arthritis and musculoskeletal conditions to live well, to help people be independent and to be in control of their lives as much as possible.…

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Exercise venue preferences for ESCAPE-pain: We want your views

ESCAPE-pain is a 6 week rehabilitation programme for individuals with knee and hip osteoarthritis which aims to educate participants on their condition, self-management and coping strategies as well as exercise. The Health Innovation Network, the Academic Health Science Network, has been working hard for the past 3+ years to spread the adoption of ESCAPE-pain across the U.K, and recently, has been awarded a grant by Sport England as part of their ‘Active Ageing’ project to target inactive adults in particular and increase access to the programme.…

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