By Jill Hamilton, Professional Engagement Manager, National Ankylosing Spondylitis Society
Exercise is the single most important thing that anyone with axial SpA (AS) can do to self-manage their condition. It’s not always possible though; if someone is experiencing a flare or has severe physical disability as a result of their condition then exercising on land can be pretty much impossible. Exercising in water however is a lot easier; the warmth and the buoyancy make stretches more effective, it’s less painful, it’s easier to stay upright because the effect of gravity is less, it requires less physical effort and afterwards you usually have a really good night’s sleep!…
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In 2018 NASS held two community engagement conferences called NASS Voices, in Scotland and Northern Ireland, aiming to bring together people with axial SpA (AS), their families and friends, local rheumatologists, nurses, physiotherapists and others interested in the condition. The team wanted people to come with questions and leave with answers.
by Leyla Hannbeck, Director of Pharmacy at NPA
Pain Alliance Europe launched a new survey on stigma and chronic pain. One of the main “fights” PAE is leading is for the pain patient to be heard, believed and understood. The most recent survey developed deals with stigma related to chronic pain and will be open until the 1st of March, 2019.
There are only a few days left to apply for the prestigious EULAR Edgar Stene Prize Competition 2019. People with rheumatic and musculoskeletal disorders are invited to write about their personal experiences submitting essays on the topic of:
More people, more active, more often: three perspectives on physical activity and musculoskeletal health
