Arthritis and Musculoskeletal Alliance
Influencing policy and care together for best lifelong musculoskeletal health
During these unusual times, NASS has been sharing tops tips through live videos. Topics we’re covering include rib pain, working from home, night-time pain, gardening with AS, mindfulness and looking after yourself emotionally.
You can find all the recordings on the NASS Facebook page.
With everyone now spending a lot more time at home, it could have a significantly negative impact on people’s physical activity levels. For people with musculoskeletal conditions, there are things that can be done to protect health and manage illness, to maintain good physical and mental health.
Provided people are well enough and following the latest government guidelines, exercise matters during this period and it’s more important than ever right now. It can help manage stress and anxiety too. Here are some specific resources, tailored for musculoskeletal health.…
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CEO update by Sue Brown
One of the things I love about my job is the variety of things I get involved in. The wide scope of what is covered by musculoskeletal health and the variety of ARMA members, partners and stakeholders means no two days are ever the same. August has been a month to prepare for the exciting variety of activity we have planned including our annual lecture, a roundtable on pain, an event on physical activity and more webinars.…
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Since the NHS Long Term Plan (LTP) was published on 7 January 2019, the Universal Personalised Care: Implementing the Comprehensive Model has been published.
The document defines personalised care: people have choice and control over the way their care is planned and delivered based on ‘what matters’ to them and their individual strengths, needs and preferences.
There are six components to the model:
ARMA policy teams and CEOs collaborated to agree a Policy Position Paper on Supported Self-Management for People with Arthritis and Musculoskeletal Conditions. The Policy Position Paper sets out recommendations for change.
The evidence identifies the importance of patients as partners in their own care. While people with musculoskeletal conditions can play a pivotal role in their condition, most are simply unaware of the difference they can make. That’s why the Alliance believes people should be supported to take a proactive role in their health, to live well, feeling confident and in control of their condition with supported self-management.…
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The Welsh Government has published its draft ‘Living with persistent pain in Wales guidance’ for consultation and is seeking views on the draft guidance which will replace the Service Development and Commissioning Directive for Chronic Non-Malignant Pain 2008.
The consultation is on the proposed direction of the draft guidance, which includes: living with pain, supported self-management and health service provision.
More information on the consultation, together with the draft guidance, can be downloaded from the gov.wales website.
The consultation ends 14 September 2018.…
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EULAR has funded a project aimed at understanding the development, evaluation and implementation of mobile phone applications for self-management in patients with rheumatic diseases.
Following a systematic literature teview, the project task force is now at a stage where it would like to gain insights into the patient’s views, perceptions and current use of health apps for self-management.
EULAR therefore kindly asks you to fill in the following survey:
surveymonkey.com/mHealthAppsSurvey
It takes 5 to 10 minutes to complete.
Arthritis Action will be holding a new two-day Self-Management Event on 2-3 May 2018 between 2pm–4.30pm at Blackpool Central Library, Queen Street, FY1 1PX
The aim is to help attendees take control of the symptoms of their arthritis, covering topics such as:
This event will be free of charge and refreshments will be provided, and is open to all.…
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The Hypermobility Syndromes Association, in partnership with Stickman Communications, hosted a Hypermobility Management Workshop on Saturday 25 February, with sections on exercise, pacing, flare-up plans, pain, and communicating about hidden disabilities.
The lecture-format sessions were in Hannah Ensor’s typical style – straightforward, with a dose of humour. The group discussions then provided a valuable opportunity to discuss and apply the information to daily life, sharing and exploring different solutions to the challenges we face.
Of course, being about pacing, what better opportunity to practice what we preach?…
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Arthritis Action will be holding a new two-day Self-Management Event (SME) on Friday 9 February at 6pm–8.30pm and Saturday 10 February at 2pm–4.30pm.
For the first time we are holding our SME outside our usual daytime schedule, to attract a younger audience of attendees who may be in employment or otherwise unavailable during the week.
We aim to help our delegates take control of the symptoms of their arthritis, covering topics such as:
This event will be free of charge but places must be booked, via this link.…
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