Living with persistent pain in Wales – consultation open

The Welsh Government has published its draft ‘Living with persistent pain in Wales guidance’ for consultation and is seeking views on the draft guidance which will replace the Service Development and Commissioning Directive for Chronic Non-Malignant Pain 2008.

The consultation is on the proposed direction of the draft guidance, which includes: living with pain, supported self-management and health service provision.

More information on the consultation, together with the draft guidance, can be downloaded from the gov.wales website.

The consultation ends 14 September 2018.…

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Winners announced for European patient-driven pain grant

The inaugural Brain, Mind and Pain Grant announced its winners in June, naming three innovative, patient-centred projects:

  • Master Your Pain by Groningen University – an e-health platform to help patients with rheumatic pain self-manage their symptoms
  • ASPERGA Association for their prototype auditory aid that aims to reduce sensory pain in people with autism spectrum disorder
  • MyBrainNet by Dystonia Europe – a central platform for neurological brain diseases, providing information to patient groups and patients to help improve their quality of life.


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The Pain Alliance Europe 2018 survey

Pain Alliance Europe are asking for responses to the 2018 edition of the Survey on Chronic Pain, which highlights how pain can affect the work-life of pain patients.

The charities who are members of Pain Alliance Europe (PAE) are inviting people with chronic pain or their carers to fill in this short survey on the effect of their chronic pain on their quality of life, their work situation and about any financial help they receive. The survey starts with some basic questions.…

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NICE guideline on chronic pain: assessment and management

The final scope for the NICE Chronic pain: assessment and management guideline has now been published, along with all the stakeholder comments that were received during consultation and responses to these comments.

NICE would like to thank you for your continued involvement and interest in this guideline. The comments received during the consultation period helped us to develop and refine the scope. ARMA has been identified as a key stakeholder for this topic and will be contacted again when the draft guideline is released for consultation.…

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Participants sought for study on pain and Medicines Use Review

Accredited pharmacists in England, Wales and Northern Ireland can offer an enhanced patient service called a Medicines Use Review (MUR).  This structured review is free to patients, and is designed primarily to help them manage their medicines more effectively.  Little is known about how often this service is used for people living with pain. We know little about pharmacists’ and pain patients’ views of what happens in pain-related MURs, or why they don’t engage, and what they would like to happen.…

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Arthritis support groups in Wales, Aug-Dec 2017

Upcoming North Wales support group meetings for people with arthritis and chronic pain.

Dates:

7th August 2017
4th September 2017
2nd October 2017
6th November 2017
4th December 2017

Venue:
Holywell Community Hospital, North Wales.
The meeting room is behind the cafe and opposite the reception area.

Open full-size and save the flyer for more details, or see the North Wales Arthritis & Chronic Pain Support Group Facebook page.

The Societal Impact of Pain – SIP 2017

The UK Gout Society recently attended the 7th European Symposium of the Societal Impact of Pain (SIP 2017) in Malta, organised by the European Pain Federation (EFIC), Pain Alliance Europe, the Active Citizen Network and Grünenthal.
The event brought together stakeholders from across the EU and MSK community – and provided a platform to raise awareness of the impact of pain, exchange ideas and information, develop consensus and policy strategies, and debate pain as a quality indicator for healthcare systems.

One-in-five adults in the EU are currently living with chronic pain.…

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