The trustees of The Ehlers-Danlos Support UK are delighted to announce that Susan Booth, recently Executive Director, Development at Target Ovarian Cancer, has been appointed to succeed Kay Julier. Susan will take up the position from 1 July and work alongside Kay from mid-June.
Stephen Stacey, chair of trustees, said: “When Kay told me that she wanted to step down at the end of June, I knew we had a tough task to find a successor. I am confident that Susan will take the organisation to the next level, building on the deeply impressive work of Kay and her team. Susan’s record confirms that she will drive continuous improvement in our high quality and inclusive support and information services.”
He added: “Kay has led our team with great skill and determination and in the most challenging circumstances imaginable. We will miss her and wish her all the best for her future.”
Susan said: “I am very excited to be taking on where Kay leaves off. The challenge the EDS community faces is immense. Whilst awareness of the conditions has increased and EDS UK helps more people than ever, there are fewer suitable NHS services for those with the most common type of EDS or for those with hypermobility spectrum disorders. There is still no UK-wide patient pathway for any type of EDS. We look forward to working with other charities to effect sustainable change.” 
Kay said: “It has been a huge privilege to lead The Ehlers-Danlos Support UK over the past seven years and to see it go from strength to strength. I am proud to have worked with such a talented and committed team of staff and volunteers across the UK and to have had the support and guidance of a fantastic board of trustees. I wish Susan every success in her new role.”
Susan Booth
Holding senior leadership roles across a variety of charities over the past 25 years including Teenage Cancer Trust, RSPCA, RNLI, and Pilgrims Hospices, Susan has created and managed multiple teams across all disciplines with an outstanding record in fundraising in particular. As Executive Director, Development at Target Ovarian Cancer, she led on a wide range of projects, both internal and outwards-facing. She mentors fundraising leaders of the future at the Tony Elischer Foundation and is passionate about connecting people with causes.