Arthritis and Musculoskeletal Alliance
Influencing policy and care together for best lifelong musculoskeletal health
The Pembrokeshire Lupus Support Group and LUPUS UK are petitioning the Secretary of State for Health at the Welsh Assembly Government to remove the ‘gate keeper principle’ from their healthcare provision.
Patients with lupus and other rare autoimmune illnesses in Wales are being denied the right to access expertise that could really benefit them in the long term.
You can see more about the problem, read the petition and sign it here.
On behalf of Nele Caeyers, Chair of the EULAR Standing Committee of People with Arthritis/Rheumatism in Europe (PARE); Dieter Wiek, EULAR Vice President, representing PARE; and Polina Pchelnikova, Working Group leader of the Edgar Stene Prize; the EULAR secretariat is delighted to announce the call for entries for the Edgar Stene Prize Competition 2019.
People with rheumatic and musculoskeletal disorders are invited to write about their personal experiences submitting essays on the topic of:
“My ideal employer – Work without barriers for people with RMDs”
Please find more information in the attached documents [both PDFs]:
Please take a careful look at the deadlines and entry rules mentioned in the respective documents.…
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The inaugural Brain, Mind and Pain Grant announced its winners in June, naming three innovative, patient-centred projects:
Throughout April, the Institute of Osteopathy has been promoting their #LoveYourHealth social media campaign, showcasing key health and wellbeing messages with the public. The focus of the campaign was to provide practical advice and tips to help people make informed decisions to improve their health.
#LoveYourHealth, which was centred around International Osteopathic Healthcare Week, showcased new patient-facing resource pages that the iO has recently developed around a number of key themes:
The focus of the social media campaign was to promote the positive role that osteopathy plays in supporting the health of our patients.…
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EULAR has funded a project aimed at understanding the development, evaluation and implementation of mobile phone applications for self-management in patients with rheumatic diseases.
Following a systematic literature teview, the project task force is now at a stage where it would like to gain insights into the patient’s views, perceptions and current use of health apps for self-management.
EULAR therefore kindly asks you to fill in the following survey:
surveymonkey.com/mHealthAppsSurvey
It takes 5 to 10 minutes to complete.
Arthritis Action will be holding a new two-day Self-Management Event on 2-3 May 2018 between 2pm–4.30pm at Blackpool Central Library, Queen Street, FY1 1PX
The aim is to help attendees take control of the symptoms of their arthritis, covering topics such as:
This event will be free of charge and refreshments will be provided, and is open to all.…
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The Hypermobility Syndromes Association, in partnership with Stickman Communications, hosted a Hypermobility Management Workshop on Saturday 25 February, with sections on exercise, pacing, flare-up plans, pain, and communicating about hidden disabilities.
The lecture-format sessions were in Hannah Ensor’s typical style – straightforward, with a dose of humour. The group discussions then provided a valuable opportunity to discuss and apply the information to daily life, sharing and exploring different solutions to the challenges we face.
Of course, being about pacing, what better opportunity to practice what we preach?…
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Pain Alliance Europe are asking for responses to the 2018 edition of the Survey on Chronic Pain, which highlights how pain can affect the work-life of pain patients.
The charities who are members of Pain Alliance Europe (PAE) are inviting people with chronic pain or their carers to fill in this short survey on the effect of their chronic pain on their quality of life, their work situation and about any financial help they receive. The survey starts with some basic questions.…
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The HMSA are busy preparing for their ‘Taking Action 2018-2022’ launch, which aims to guide strategy for the next 5 years. Part of that process is ‘The Big Conversation’ Members Consultation survey.
You can read about this and more from the February edition of HMSA’s e-news.
Learn more about:
NHS England is consulting on proposals that will stop routine prescribing in primary care of over the counter treatments for a number of conditions, including the maintenance use of vitamin D. Receiving adequate vitamin D intake is crucial for current and future bone health and NICE Public Health Guideline 562 (PH56) states that a licensed dose of vitamin D, for prevention of vitamin D deficiency, should be widely available to at-risk groups.
The consultation recognises that vitamin D should continue to be prescribed for patients who are deficient and that it can be prescribed in combination with calcium for osteoporosis.…
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