Patients | ARMA

Reumavid study

Reumavid is a questionnaire investigating the consequences of the covid-19 pandemic on people living with rheumatic conditions in United Kingdom.

The survey is aimed at people living with rheumatic diseases who are experiencing confinement due to COVID-19.

Its aim is to describe the consequences of the pandemic on the evolution of the disease, support services, healthcare, the quality of life and the emotional well-being of people living with rheumatic diseases.

This study is promoted by National Axial Spondyloarthritis Society (NASS), National Rheumatoid Arthritis Society (NRAS), and Arthritis Action, and conducted by the Health & Territory Research (HTR) of the University of Seville, with the support of Novartis Pharma AG.…

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Global rheumatology patient survey – Covid 19

Pain UK would like to alert you to the work of the Covid-19 Global Rheumatology Alliance, an organisation established to “collect, analyze and disseminate information about COVID-19 and rheumatology to patients, physicians and other relevant groups to improve the care of patients with rheumatic disease.”

Rheumatology patients are invited to complete a patient survey, whether or not they have been diagnosed with COVID-19. A worldwide consortium of doctors, scientists and patient groups are seeking your views on the current situation. Tell them how it is for you via this link.

NRAS New2RA and Chatbot

New2RA Right Start

The NRAS New2RA Right Start service supports people newly diagnosed with Rheumatoid Arthritis to understand their diagnosis and how it is likely to affect them. Getting the right, supportive start can help people to make adjustments to their behaviour, lifestyle and health beliefs and understand why self-management is essential, and learn how to make those important first steps to managing their disease effectively.

Further information can be accessed on the NRAS New2RA Right Start service page. This service is essential during this time for those newly diagnosed during the COVID-19 crisis, offering extra support when appointments are being delayed.…

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Chronic Pain – This is how it feels

In October 2019 a report on chronic pain services and management from a patient and healthcare professional perspective was published. The research has highlighted a number of key insights and themes for how respondents felt that chronic pain services can be improved and made more equitable in the future. Pain is one of the common factors across all MSK conditions, so this is something which ARMA will be following up in the future.

This report describes the results of qualitative interviews with 23 patients and 20 healthcare professionals.…

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Stretches for your daily life

NASS has just released a new series of videos showing how everyone living with axial spondyloarthritis (axial SpA) – including people with ankylosing spondylitis (AS) – can fit some simple but very effective stretches into their daily life.

No Lycra. No trainers. No gym.

These videos were developed with with a group of specialist axial SpA (AS) physiotherapists from AStretch. They include stretches which patients can do in bed in the morning and stretches for while waiting for the kettle to boil, at the kitchen table and on the sofa to name a few.…

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Physical activity e-learning programme

Health Education England e-Learning for Healthcare (HEE e-LfH) has worked with Public Health England and Sport England to launch a new physical activity e-learning programme to help healthcare professionals to champion physical activity with patients.

The e-learning programme, which is aimed at GPs, nurses and other healthcare professionals, will familiarise the learner with the UK Chief Medical Officers’ Physical Activity guidelines.

This e-learning course prepares GPs, nurses and other healthcare professionals to champion the benefits of physical activity with their patients and, in doing so, help prevent and manage a range of common physical and mental health conditions.…

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New chair-based exercises for people with arthritis

Arthritis Action has launched a new webpage featuring arthritis-friendly exercises using animated images (GIFs). These chair-based strength and conditioning exercises were developed in partnership with wellbeing organisation Oomph!, mobilising different parts of the body.

The exercises were designed with the aim to recondition and build mobility and confidence in people who have not been keeping active. The can be viewed on the Arthritis Action website.

EULAR Physical Activity recommendations

EULAR has published a new lay summary: EULAR recommendations for physical activity in people with inflammatory arthritis and osteoarthritis

EULAR is disseminating the lay versions of the recommendations to patient organisations and healthcare professionals to support patients and carers in managing their condition.

For more lay summaries of EULAR recommendations, go to the EULAR website.

The ESCAPE-pain programme in practice

Case study of improved mobility and independence

Listen to Regina’s story of how she overcame osteoarthritis and difficulties with mobility with the help of the ESCAPE-pain group at her local leisure centre.

The ESCAPE-pain Programme: Helping people with chronic joint paint to self-manage their condition and become more physically active

At 76 years old, Regina had been suffering with osteoarthritis for over ten years and it was having a big impact on her life physically and emotionally. “I was in a bad place; I was in a wheelchair to start with.”…

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Arthur’s Place: introducing “Project Mum”

Arthur’s Place has created and launched “Project Mum” a support kit for young women with arthritis and related conditions, those who are considering becoming mothers in future, women who are currently pregnant and new mums. There will be advice for Dads-to-be and partners too, with or without arthritis.

Project Mum includes invaluable advice from health professionals, including consultant rheumatologists, nurse specialists, midwives, a physiotherapist, occupational therapist and three clinical psychologists. Arthur’s Place is also tremendously proud to include personal shared tips and advice from more experienced mums at Arthur’s Social: the Facebook community.…

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