Category: Patients

The Pain Alliance Europe 2018 survey

Pain Alliance Europe are asking for responses to the 2018 edition of the Survey on Chronic Pain, which highlights how pain can affect the work-life of pain patients.

The charities who are members of Pain Alliance Europe (PAE) are inviting people with chronic pain or their carers to fill in this short survey on the effect of their chronic pain on their quality of life, their work situation and about any financial help they receive. The survey starts with some basic questions.…

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HMSA’s February e-news

The HMSA are busy preparing for their ‘Taking Action 2018-2022’ launch, which aims to guide strategy for the next 5 years. Part of that process is ‘The Big Conversation’ Members Consultation survey.

You can read about this and more from the February edition of HMSA’s e-news.
Learn more about:

  • livestream chats from HMSA’s resident occupational therapist;
  • the HSD Ambassador and Youth Patron preparing for the Hypermobility Management Workshop;
  • a consultation on the Call 111 campaign;
  • the helpline;
  • and an update from the CEO, Donna Wicks.
…

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NHSE Consultation on conditions for which over-the-counter items should not routinely be prescribed in primary care

NHS England is consulting on proposals that will stop routine prescribing in primary care of over the counter treatments for a number of conditions, including the maintenance use of vitamin D. Receiving adequate vitamin D intake is crucial for current and future bone health and NICE Public Health Guideline 562 (PH56) states that a licensed dose of vitamin D, for prevention of vitamin D deficiency, should be widely available to at-risk groups.

The consultation recognises that vitamin D should continue to be prescribed for patients who are deficient and that it can be prescribed in combination with calcium for osteoporosis.…

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Yoga for Healthy Lower Backs – A back-care toolkit

Guest blog by Alison Trewhela, Director of the Yoga for Healthy Lower Backs Institute

Evidence-based exercise for people restricted by back pain, fearful of movement, in considerable pain, or with other illnesses and injuries, ‘Yoga for Healthy Lower Backs’ (YHLB) is a gentle 12-week mind-body exercise programme offering a potentially life-long solution.

Public Health England has recently included YHLB as one of seven evidence-based MSK options in their PHE MSK ROI Return on Investment Interventions report and online tool.…

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Guest blog: Invisible disability at work

by Jane Green BSc. (HONS) Psych., PGCE, Av.Dip. Ed. Child Development, MA Ed.  (Leadership and Management / autism)

Why did I stop working in my professional career?

Two-and-a-half years ago I medically retired. This was after years of pain following full dislocations; half-dislocations; sprains; tears in joints, muscles, ligaments and tendons; and arthritis. I received my diagnosis of Ehlers-Danlos syndrome 3 (now hEDS) and associated conditions later that year.

As a child, I did have a few problems with joints and did ‘party tricks’.…

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Rheumatoid Arthritis Game of Life

The timely, effective and responsive assessment and management of patients using the Patient Advice and Information Lines (PAIL) leads to improved quality of care and patient experience.

Whilst a number of the Patient Advice and Information Line calls are related to clinical concerns, patients, family and carers often talk about other life events that may impact on their treatment and management plan. Clinical Nurse Specialists and Members of the Rheumatology Multidisciplinary team need to be responsive with a wealth of knowledge and experience; they must also be imaginative with a bit of Health Service/ Community Care “common sense” to support these patients through these life events.…

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Portsmouth Flare Rollercoaster workshop

Flare Roller Coaster for People Living with Arthritis and Connective Tissue Diseases

The Next Rheumatology Flare Roller Coaster workshop will be held on Saturday 3rd February 2018, from 09:30 -13:00.
Venue: Fracture Clinic – C Level, Queen Alexandra Hospital, Cosham PO6 3LY

Places are limited so please register early.

To book your place or receive more information, email: rheumatology.conference@porthosp.nhs.uk or telephone 02392286935

For frequently asked questions about our Flare Rollercoaster workshop, please see our leaflet [PDF].

If you have arthritis or a connective tissue disease, the festive period can be tough.…

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NOS publishes new Osteoporosis Standards and Vertebral Fractures Guidance

On 30th November 2017, the National Osteoporosis Society published new Osteoporosis Standards and Vertebral Fractures Guidance for Health Professionals. The guidelines help health professionals provide the possible care for people with osteoporosis.

Fizz Thompson, Clinical Director for the National Osteoporosis Society, said: “The National Osteoporosis Society plays a key role in driving positive change in healthcare provision for people affected by fractures and osteoporosis, and these new documents – developed with clinical experts over a two year period – demonstrate how the Charity is setting the agenda in this area.…

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Portsmouth Department of Rheumatology dancing class

Fourteen patients and their partners and staff from the Department of Rheumatology are about to complete their 6-week ballroom class. Over the weeks they will have taken an additional 12,000 steps and exercised for around extra 5.5 hours.

Claire Jeffries, Rheumatology Specialist, Physiotherapist and Hydrotherapy Manager, points out that there are many health benefits of dancing: “it’s great for people of all ages, shapes and sizes”.

Dancing offers a wide range of physical and mental benefits:

  • improved condition of your heart and lungs
  • increased muscular tone, strength, endurance and motor fitness
  • increased aerobic fitness
  • weight management
  • stronger bones and reduced risk of osteoporosis
  • better coordination, balance, agility and flexibility
  • increased physical confidence
  • improved mental functioning and psychological wellbeing
  • greater self-confidence and self-esteem

The Department of Rheumatology would encourage people living with Arthritis and connective tissue diseases to consider dance as a form of activity.…

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DaM-it Arthritis Family Fun Day at Center Parcs Longleat

A fun-packed day for all

On Sunday 22nd October 2017, the Department of Rheumatology staff hosted more than fifteen tables for children’s games and crafts – f rom Dominos, colouring to ghostly table lights, and homemade first aid kits – whilst Dads and Mums living with arthritis and connective tissues attended a number of short presentations aimed at providing help and advice:

  • Strategies for coping with a diagnosis and moving forward
  • How to manage family life work and arthritis and connective tissue diseases
  • Incorporating the benefits for staying active and eating healthily

The DaM-it Arthritis project is funded through the Department of Rheumatology’s charitable funds and non-conditional educational grants, offering free events to support the community of Dads and Mums affected by Arthritis and Connective Tissue Diseases and their families.…

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