Category: Arthritis News

PAE Pain Relief Patient study

Pain Alliance Europe is pleased to share an invitation to take part in the QSPainRelief-patientPREF study, an important initiative seeking to better understand the real-life experiences and preferences of people living with chronic pain, with the aim of contributing to improved future treatment options.

Participation in the questionnaire is entirely voluntary, all data are fully anonymised, and once the questionnaire is completed and analysed, the results will be shared with participating patients in an accessible and transparent way.

In this first questionnaire, you will be asked to:

  • Provide your informed consent to participate
  • Answer a few questions to confirm that you meet the study’s inclusion criteria
  • Share some basic identifying information

The questionnaire can be found here.…

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New report from the APPG on Osteoporosis and Bone Health

A new report by the All-Party Parliamentary Group (APPG) on Osteoporosis and Bone Health has revealed more than half of people with osteoporosis say they’ve had no contact from the NHS about their condition in the past year. 

The ‘Seen, Heard, Supported: Transforming Osteoporosis Care’ report, supported by the Royal Osteoporosis Society, also found that nearly one in four have had no contact for more than three years, exposing them to life-threatening hip and spinal fractures.

The report comes after an APPG Inquiry explored how people with osteoporosis are supported across their care pathway, particularly the transition between hospital, primary and community care, and what happens when responsibility for follow-up, monitoring and ongoing support is unclear or absent.…

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Check out CAT Podcast No. 2

The Cornwall Arthritis Trust is thrilled to be partnering again with Sally Crabtree from Art Connexion to share this, their second podcast episode.

Tune in for inspiring interviews with leading voices—including Professor Tony Woolf and Rachel Faulkner, plus practical tips and empowering advice for anyone living with Arthritis or other MSK conditions.

Whether you’re looking for expert insights or just a bit of motivation, this podcast is for you.

Please take a listen here.

New NRAS Strategy 2025-2029

NRAS is excited to present their new organisational strategy for 2025-2029. This plan sets out how they will achieve their priorities over the next three years, how they will address the significant challenges facing the nearly half a million people living with Rheumatoid Arthritis and Juvenile Idiopathic Arthritis in the UK, and how they will protect the future of the organisation.

NRAS is determined to help create a future where everyone with Rheumatoid Arthritis and Juvenile Idiopathic Arthritis can thrive.

Read more here.

NASS survey for people with axial SpA

NASS is looking to create resources to support people with axial SpA to be more physically active. To understand the issues our community face and co-produce the solutions, we’d love to hear from your patients. You can invite patients to take part by:

If you have any questions or would like to be more involved, please email zoe@nass.co.uk

Join the JIA Champions Forum with CCAA

Make your lived experience count — join the JIA Champions Forum!

The CCAA is looking for passionate individuals over the age of 18 who have lived experience of JIA or JIA-uveitis (either as a patient or a parent/carer) to become JIA Champions.

As a JIA Champion, you will be part of a national forum of advocates, advisors, and ambassadors. Together, we will:

🔹 Contribute to shaping JIA research priorities and design
🔹 Ensure the patient and family voice is at the heart of policy and communications
🔹 Collaborate with researchers, charities, and professional bodies
🔹 Raise awareness and champion equity in care across the UK

This role is reimbursed in line with NIHR guidance.…

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The State of MSK health

The report is a collection of the most up-to-date, UK-wide statistics on arthritis and other musculoskeletal (MSK) conditions. It is a resource for healthcare professionals, policy makers, public heath leads, researchers, people with these conditions, and anyone interested in MSK health. Arthritis UK believes that with the best information you can build awareness, make more informed decisions, feel more confident and ultimately help more people with MSK conditions, such as arthritis.

The State of Musculoskeletal Health | Arthritis UK