This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.

International

Reumavid is a questionnaire investigating the consequences of the covid-19 pandemic on people living with rheumatic conditions in United Kingdom.

The survey is aimed at people living with rheumatic diseases who are experiencing confinement due to COVID-19.

Its aim is to describe the consequences of the pandemic on the evolution of the disease, support services, healthcare, the quality of life and the emotional well-being of people living with rheumatic diseases.

This study is promoted by National Axial Spondyloarthritis Society (NASS), National Rheumatoid Arthritis Society (NRAS), and Arthritis Action, and conducted by the Health & Territory Research (HTR) of the University of Seville, with the support of Novartis Pharma AG.

Visit the survey page for full details and to take part.

Pain UK would like to alert you to the work of the Covid-19 Global Rheumatology Alliance, an organisation established to “collect, analyze and disseminate information about COVID-19 and rheumatology to patients, physicians and other relevant groups to improve the care of patients with rheumatic disease.”

Rheumatology patients are invited to complete a patient survey, whether or not they have been diagnosed with COVID-19. A worldwide consortium of doctors, scientists and patient groups are seeking your views on the current situation. Tell them how it is for you via this link.

Word Day, March 18 #wordday2020

World Young Rheumatic Diseases Day is on 18 March aiming to raise the awareness and knowledge level of parents, doctors, primary practitioners, teachers, and the general public to help in early diagnoses, and a quick referral. It aims to improve the level of treatment children receive and their prognosis worldwide.

Find out more at the Word Day website.

The late Edgar Stene, who had severe ankylosing spondylitis, was a great promoter of co-operation between doctors, patients and community workers. The EULAR Edgar Stene Prize Competition runs yearly in his memory and honour. First prize is € 1,000 and the winner will be invited to attend the EULAR Congress in Frankfurt. Second prize is €700 and third prize is €300.

The 2020 prize will be awarded to the winning essay on the topic:

“Being a person with a rheumatic or musculoskeletal disease (RMD) – How my voluntary work benefits me”

The EULAR Edgar Stene Prize 2020 competition is open to people 18 years and over who are living with a rheumatic and musculoskeletal (RMD) disease.

EULAR said, “People with RMDs are invited to write about their personal experiences. We all want to live life to the fullest and independently and work is an essential part of our life. But for many people with RMDs it cannot always be a paid employment or a fulltime job due to the challenges caused by the disease. Voluntary work can be equally fulfilling and being a great opportunity to be contributing to society as essential part of it. Thankfully this has also been noticed by the society in recent years and volunteering has become more positively acknowledged and appreciated in many countries. We would love to hear why people with RMDs are volunteering, their motivation and what they are doing. Also, what experiences they have made in their country, what challenges they face but most of all about the personal benefits related to voluntary work.”

As the UK’s national member organisation of EULAR–PARE, ARMA appoints a judging panel to decide upon the one essay we will submit on behalf of the UK.

You are invited to send in an essay NOT exceeding two pages of A4 in Ariel 12 point. The deadline for the competition is Thursday 5 December 2019.

Competition rules

Please submit all completed essays, along with your name, email address and telephone number to projects@arma.uk.net by Thursday 5th December 2019.

Please see the full competition rules before you apply. Consent forms [Word docx] also need to be completed for each entry.

The Edgar Stene Prize winner, chosen by a EULAR jury, will be announced by 15 March 2020. The Edgar Stene Prize winner will be awarded a prize of € 1,000 and will be invited to attend the Opening Plenary Session of the EULAR Congress in Frankfurt with travel and accommodation for four nights covered and an invitation to the EULAR Congress Gala Dinner.

The late Edgar Stene, who had severe ankylosing spondylitis, was a great promoter of co-operation between doctors, patients and community workers. The EULAR Edgar Stene Prize Competition runs yearly in his memory and honour. First prize is € 1,000 and the winner will be invited to attend the EULAR Congress in Frankfurt. Second prize is €700 and third prize is €300.

The 2020 prize will be awarded to the winning essay on the topic:

 “Being a person with a rheumatic or musculoskeletal disease (RMD) – How my voluntary work benefits me”

The EULAR Edgar Stene Prize 2020 competition is open to people 18 years and over who are living with a rheumatic and musculoskeletal (RMD) disease.

EULAR said, “People with RMDs are invited to write about their personal experiences. We all want to live life to the fullest and independently and work is an essential part of our life. But for many people with RMDs it cannot always be a paid employment or a fulltime job due to the challenges caused by the disease. Voluntary work can be equally fulfilling and being a great opportunity to be contributing to society as essential part of it. Thankfully this has also been noticed by the society in recent years and volunteering has become more positively acknowledged and appreciated in many countries. We would love to hear why people with RMDs are volunteering, their motivation and what they are doing. Also, what experiences they have made in their country, what challenges they face but most of all about the personal benefits related to voluntary work.”

As the UK’s national member organisation of EULAR–PARE, ARMA appoints a judging panel to decide upon the one essay we will submit on behalf of the UK.

You are invited to send in an essay NOT exceeding two pages of A4 in Ariel 12 point. The deadline for the competition is Thursday 5 December 2019.

Competition rules

Please submit all completed essays, along with your name, email address and telephone number to projects@arma.uk.net by Thursday 5th December 2019. 

Please see the full competition rules before you apply. Consent forms [Word docx] also need to be completed for each entry.

The Edgar Stene Prize winner, chosen by a EULAR jury, will be announced by 15 March 2020. The Edgar Stene Prize winner will be awarded a prize of € 1,000 and will be invited to attend the Opening Plenary Session of the EULAR Congress in Frankfurt with travel and accommodation for four nights covered and an invitation to the EULAR Congress Gala Dinner.

A new resource on MSDs for workplaces – ‘Conversation Starters for workplace discussions on musculoskeletal disorders’ – is now available online from the European Agency for Safety and Health at Work (EU-OSHA).

This is an Occupational safety and health (OSH) resource for running workplace group discussions on MSDs and their prevention. Each activity includes an MSD scenario and a series of questions to facilitate discussion.

The discussion activities also cover raising MSD issues promptly with your employer, and how to speak with your employer/employee about an individual MSD problem, including an RMD – see conversation starters 9 to 12. The resource includes annexes providing tips for employers and workers about having a conversation about an RMD.

Read the news article from EU-OSHA and download the resource here.

IMplementation of Physical Activity into routine Clinical pracTice in Rheumatic Musculoskeletal Disease

The IMPACT-RMD study aims to raise awareness on the importance of physical activity in people with Rheumatic and Musculoskeletal Diseases (RMDs). The goal is to help and support managing healthcare practitioners to understand more about physical activity as well as incorporate/include physical activity advice in clinical consultations.

Physical activity has multiple different benefits for RMDs, including better quality of life, better fitness and sleep, less fatigue and pain while it can also reduce inflammation. We believe it is necessary that alongside medication, physical activity is used to better manage symptoms.

There is a team comprised of research experts and patient organizations from across seven countries, with support from the European League Against Rheumatism (EULAR) and the EULAR People with Arthritis and Rheumatism (PARE) organizations.

You are invited to participate in the study by filling-in the survey questionnaire.

The is survey, which takes no more than 10-15 minutes to complete, requests information on symptoms and the affect the have every day, as well as questions on physical activity.

Your feedback is important to us and will be used to develop a proposal and recommendations on specific interventions that will be centred on the patients’ needs.

Participation is entirely voluntary. The IMPACT-RMD has also developed the questionnaire in such a way that all the data you provide are anonymous. There are no correct or wrong answers, since your personal view on the topic is requested.

This project will provide useful information that will improve significantly clinical management and disease symptoms for RMDs. Email any questions directly to the principal investigator: g.metsios@wlv.ac.uk or the researchers that will be responsible for the data collection and analyses: tzika.aik@gmail.com and pvitalis1987@gmail.com  

Exploring the perspectives of young patients with chronic, inflammatory arthritis on patient-reported outcome measures

Having completed Phase 1 of the YoungPro project (focus groups in four different European countries with young people with inflammatory arthritis and the first Task Force meeting), EULAR has developed a survey to be spread across Europe to gather additional information around this topic.

The European League Against Rheumatism Task Force aims to incorporate the perspective of young people with inflammatory arthritis in patient reported outcomes (PROs). To reach this goal, we intended to identify common themes that are important to young people with inflammatory arthritis and to explore if they are covered by the most commonly used PROs. Questionnaires and rating scales are referred to as patient‐reported outcome measures and are completed by patients to reflect their individual perspective. They have become an integral part in assessing disease activity and the impact of disease on individuals and by that influencing treatment decisions, ideally taken together between the patient and the physician.

The study team consists of international rheumatology researchers, health professionals and patient research partners. Currently used patient-reported outcome measures (such as those looking at pain, fatigue and physical functioning) may not capture everything that matters to young people with arthritis.

For this reason, the survey is designed for young people (aged 18 to 35 years) with inflammatory arthritis (including juvenile idiopathic arthritis, rheumatoid arthritis, psoriatic arthritis, spondyloarthritis, ankylosing spondylitis and Still’s disease). Those having been diagnosed with one of these conditions are welcome to take part in the survey. Those above the age of 35 are also welcome to take part in this survey. This information will then be compared to the younger age group.

This survey consists of two parts:

  1. A section asking general questions about you and your health;
  2. A second part, asking about personal experiences with patient‐reported outcome measures.

In order to maximise the reach and overcome the language barrier, the survey was translated in 7 languages (English, German, French, Spanish, Portuguese, Italian and Russian).

It takes about 15 minutes to complete the survey and EULAR is sincerely thankful for your support in spreading the survey to reach as many people as possible!

Find the questionnaire here: www.soscisurvey.de/youngpro/