This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.
  • The Arthritis and Musculoskeletal Alliance (ARMA) is the umbrella body for the arthritis and musculoskeletal community in the UK, and our mission is to transform the quality of life of people with musculoskeletal conditions. We have 33 member organisations ranging from specialised support groups for rare diseases to major research charities and national professional bodies.

International

IMplementation of Physical Activity into routine Clinical pracTice in Rheumatic Musculoskeletal Disease

The IMPACT-RMD study aims to raise awareness on the importance of physical activity in people with Rheumatic and Musculoskeletal Diseases (RMDs). The goal is to help and support managing healthcare practitioners to understand more about physical activity as well as incorporate/include physical activity advice in clinical consultations.

Physical activity has multiple different benefits for RMDs, including better quality of life, better fitness and sleep, less fatigue and pain while it can also reduce inflammation. We believe it is necessary that alongside medication, physical activity is used to better manage symptoms.

There is a team comprised of research experts and patient organizations from across seven countries, with support from the European League Against Rheumatism (EULAR) and the EULAR People with Arthritis and Rheumatism (PARE) organizations.

You are invited to participate in the study by filling-in the survey questionnaire.

The is survey, which takes no more than 10-15 minutes to complete, requests information on symptoms and the affect the have every day, as well as questions on physical activity.

Your feedback is important to us and will be used to develop a proposal and recommendations on specific interventions that will be centred on the patients’ needs.

Participation is entirely voluntary. The IMPACT-RMD has also developed the questionnaire in such a way that all the data you provide are anonymous. There are no correct or wrong answers, since your personal view on the topic is requested.

This project will provide useful information that will improve significantly clinical management and disease symptoms for RMDs. Email any questions directly to the principal investigator: g.metsios@wlv.ac.uk or the researchers that will be responsible for the data collection and analyses: tzika.aik@gmail.com and pvitalis1987@gmail.com  

Exploring the perspectives of young patients with chronic, inflammatory arthritis on patient-reported outcome measures

Having completed Phase 1 of the YoungPro project (focus groups in four different European countries with young people with inflammatory arthritis and the first Task Force meeting), EULAR has developed a survey to be spread across Europe to gather additional information around this topic.

The European League Against Rheumatism Task Force aims to incorporate the perspective of young people with inflammatory arthritis in patient reported outcomes (PROs). To reach this goal, we intended to identify common themes that are important to young people with inflammatory arthritis and to explore if they are covered by the most commonly used PROs. Questionnaires and rating scales are referred to as patient‐reported outcome measures and are completed by patients to reflect their individual perspective. They have become an integral part in assessing disease activity and the impact of disease on individuals and by that influencing treatment decisions, ideally taken together between the patient and the physician.

The study team consists of international rheumatology researchers, health professionals and patient research partners. Currently used patient-reported outcome measures (such as those looking at pain, fatigue and physical functioning) may not capture everything that matters to young people with arthritis.

For this reason, the survey is designed for young people (aged 18 to 35 years) with inflammatory arthritis (including juvenile idiopathic arthritis, rheumatoid arthritis, psoriatic arthritis, spondyloarthritis, ankylosing spondylitis and Still’s disease). Those having been diagnosed with one of these conditions are welcome to take part in the survey. Those above the age of 35 are also welcome to take part in this survey. This information will then be compared to the younger age group.

This survey consists of two parts:

  1. A section asking general questions about you and your health;
  2. A second part, asking about personal experiences with patient‐reported outcome measures.

In order to maximise the reach and overcome the language barrier, the survey was translated in 7 languages (English, German, French, Spanish, Portuguese, Italian and Russian).

It takes about 15 minutes to complete the survey and EULAR is sincerely thankful for your support in spreading the survey to reach as many people as possible!

Find the questionnaire here: www.soscisurvey.de/youngpro/

The 7th World Congress on Controversies, Debates & Consensus in Bone, Muscle & Joint Diseases (BMJD) will take place October 17-19, 2019 in Taipei, Taiwan.

This is your chance to interact with international experts from all areas of rheumatology in one place.

The BMJD aims to reach consensus on controversial issues through debates and expert opinion, and provide updates on major topics of interest for your practice.

BMJD is a comprehensive Congress fully devoted to clinical controversies in bone, muscle and joint Diseases.

The first ever annual WORD Day, “WOrld Young Rheumatic Disease Day” takes place on the 18 March in 2019.

Jointly inaugurated by PReS (www.PRES.EU) and the parent/patient association ENCA (www.ENCA.org), the objectives of this day are to raise parental and professional awareness of these illnesses. Raising awareness of paediatric rheumatic diseases among health care providers will help speed up diagnosis, especially of rarer diseases.

WORD pediatric day is also directed at the wider public, since it is important to raise social awareness to the needs of children with rheumatic illnesses.

Local face-to-face awareness events, hospital websites and educational programs will be aired on both the local and international stage in a range of different countries. Diverse local events will be designed and implemented by local organizing committees in each country, to be run in hospital, universities and public areas (e.g. schools, museums, town centres). These are anticipated to include information stalls, talks and performances given by patients, information and training events for healthcare professionals, ‘peer education’ workshops involving medical student organisations. In particular, WORD day will target doctors who are the first clinicians to come into contact with these patients (e.g. general paediatricians), parents, other health practitioners, educators.

A number of assertive social media campaigns including the patient voice, patient organisations and charities, promotional educational videos, radio and TV interviews with patients and doctors will accompany these events, each directed at a specific audience.

Social media accounts were launched in December 2018 and so far have reached 16,800 Facebook users, and made 15,700 Twitter impressions.

See: Facebook
See: Twitter

Leaflets and booklets on WORD Day will soon be available through the PRES website.

For more information and to share your ideas please get in touch through the WORD Day email account – worldyoungrheumaticdiseaseday@gmail.com

Physio UK Conference

As part of the 50th Anniversary of the MACP, the Executive Committee made the decision to partner with Physio UK 2018 and work to deliver the MSK stream across the 2 day conference.

Labelled by CSP’s Karen Middleton as “the best Physio UK ever,” the conference attracted double the delegates of the last few years with a significant increase in abstract submissions from 84 to 328, with the majority aligned with the MSK stream.

Prof David Oliver, Clinical Vice-President of the Royal College of Physicians, delivered the Founders’ Lecture, and he was joined on stage by Jonathon Kruger, Chief Executive of the World Confederation of Physical Therapy.

NHS England’s Chief Transformation Officer, Helen Bevan, closed the event on 20th October, and in-between there were more than 30 sessions covering four specially selected themes with over 250 poster presentations. The MSK proved to be the most popular sessions attracting large number of delegates to hear clinically focused research and clinically focused debate presented by experts in their field.

PowerPoint presentations and poster abstracts are available free on the CSP website and the MACP are sharing some of the key note lectures from the MACP stream on the MACP website in the News section.

IFOMPT NEWS

Nicola Heneghan, in her role of IFOMPT Member Organisation Delegate, has recently travelled to Reno, Nevada for meetings prior to the AAOMPT Conference (US equivalent to MACP). MO meetings are held ahead of the main conference with presentations from Advisory groups (Finance, Research, Branding, RIG Development). Advisory Groups were formed in 2016 with membership coming from MO Delegates and Executive Committee members to feed into and support the work of the IFOMPT Executive Committee. A number of key notes from IFOMPT EC and Standards Committee form part of the AAOMPT Conference with Ali Rushton and Laura Finucane both speaking.

There is much talk about IFOMPT2020 which will be held in Melbourne in October 2020, so we look forward to sharing with you the timeline for registration and abstract submissions in due course. The MACP will be offering mentorship to members thinking of or wishing to submit abstracts. Would be great to have a strong MACP presence down-under….. so watch this space for updates.

 

FOREUM – Foundation for Research in Rheumatology – announces its Call for International Fellowships (1 year).

FOREUM is committed to funding and promoting scientific research into rheumatic and musculoskeletal diseases (RMD) and has a goal to foster links between rheumatology units in different countries. Consistent with these goals is the establishment of a call for international fellowships that have the specific objective of facilitating the development of research capacity and training high-calibre applicants in RMD research.

Letters of intent can be submitted until 15 February 2019. If you are interested to apply for a grant, please find all information on the application page on the FOREUM website.

One strategy, a learning management system, five recommendations, 12 campaign sponsorships and a first – and a tenth – anniversary

The European League Against Rheumatism, EULAR, is celebrating a year of achievement in rheumatology in 2018. EULAR launched its new five-year strategy as well as the EULAR School learning management system. It also published five recommendations, sponsored twelve countries in Europe to launch the EULAR Campaign, “Don’t Delay, Connect Today” at local level – and commemorated the first anniversary of the campaign with a dedicated press conference. 2018 also marked ten years since the People with Arthritis and Rheumatism in Europe were integrated into the EULAR network, becoming one of the three pillars.

The EULAR Congress in Amsterdam, which received a record-breaking number of abstract submissions (5,090) in 2018, hosted the launch of the EULAR Strategy 2018-2023, as well as the launch of the EULAR School online learning management system (LMS).

The strategy is the third strategic cycle in developing excellence in rheumatology in six areas of focus: Education, the annual congress, quality of care, research, advocacy and the internal organisation of EULAR. It is designed to further enhance the excellent standards and activities established and led by EULAR across the field of rheumatology.

The learning management system from the EULAR School is accessible to individuals across the scientific, health professional and patient audience spectrum around the world and provides round-the-clock access to the highest-quality – and the most innovative content – in the area of rheumatology.

EULAR also published five recommendations during 2018. These included recommendations in the management of hand osteoarthritis; the effect of exercise and physical activity promotion in people with rheumatoid arthritis, spondylarthrosis and osteoarthritis; health professional approaches to pain management in inflammatory arthritis and osteoarthritis; the management of Behçet’s syndrome and the use of imaging in large vessel vasculitis in clinical practice.

The sponsorship of twelve countries to implement the EULAR Campaign, Don’t Delay, Connect Today, was started in January 2018 and the campaign’s first anniversary was marked with a dedicated press conference held at the EULAR Congress in Amsterdam in June. The international awareness day, World Arthritis Day, was celebrated around the world on 12 October, with EULAR marking the day with a dedicated video that reached over half a million people.

2018 also marked ten years since the EULAR pillar, People with Arthritis and Rheumatism in Europe (PARE), was integrated into the network.

Looking to 2019, Professor Hans Bijlsma, EULAR President, says, “I would like to extend my personal thanks to all those in the EULAR network and beyond who have contributed to this milestone year in rheumatology. Let us all unite and go forward into the future in fighting rheumatic and musculoskeletal diseases – together, we can contribute to a healthier world.”

There are only a few days left to apply for the prestigious EULAR Edgar Stene Prize Competition 2019. People with rheumatic and musculoskeletal disorders are invited to write about their personal experiences submitting essays on the topic of:

My ideal employer – Work without barriers for people with RMDs

Please find more information in these documents:

Please take a careful look at the deadlines and entry rules mentioned in the respective documents. The deadline for UK entries is Tuesday 11 December 2018, entries should be sent to projects@arma.uk.net by that date.

As with previous years, the national winning essays will be accepted in their native language and the EULAR Secretariat will take care of translating them into English.

EULAR looks forward again to receiving many inspiring and encouraging essays from all over Europe!