This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.
  • The Arthritis and Musculoskeletal Alliance (ARMA) is the umbrella body for the arthritis and musculoskeletal community in the UK, and our mission is to transform the quality of life of people with musculoskeletal conditions. We have 40 member organisations ranging from specialised support groups for rare diseases to major research charities and national professional bodies.

Fundraising

Once more NRAS has had a very successful RA awareness week with thousands getting involved in the #behindthesmile campaign. Over 500 awareness packs were sent out in the post and there have been over 1,700 downloads of the posters and infographics from the website.

Our thunderclap went live on the first day of the week and surpassed our target, reaching over 175,000 people, and our RA awareness week frame was used by 2,000 people on Facebook and Twitter.

Click to open the full-size the Behind-the-smile NRAS team photo.

During the week, we launched part 2 of the #behindthesmile video with Jane deciding to talk about having RA.
You can view the video on our website www.nras.org.uk/ra-awareness-week

The full impact is still being calculated but we would like to say a huge thank you to everyone who has supported and shared our posts on social media throughout the week.

#WearPurpleForJIA

A big thank you ARMA and everyone who supported the campaign this year – we are overwhelmed by the fundraising activities that people organised this year in aid of JIA-at-NRAS through #WearPurpleforJIA.

This is an amazing campaign started by two mothers (Lynette and Rachel) just a few years ago. Over £12,000 has already been raised and the cheques are still coming in!

On World Lupus Day (May 10th) the “Lupus Knows No Boundaries e-Report,” which has been co-created by the World Lupus Federation and Glaxosmithkline (GSK), was published.

The report brings together first-hand experiences of people with lupus, their advocates and those who treat them. It tells the real story of lupus, highlighting the ongoing physical and emotional needs of those who are affected by this incurable disease.

The report can be downloaded from the LUPUS UK website at  www.lupusuk.org.uk/world-lupus-day-report/.

Hampshire Lupus Information Day

On Saturday 6th May 2017, Hampshire Lupus Group hosted a lupus information day at the Guildhall in Winchester. The event was well attended with over 80 people present. The day featured expert speakers discussing a variety of lupus-related topics. These talks were recorded and videos are now available to watch online at www.lupusuk.org.uk/hampshire-lupus-day-videos/.

World Lupus Day Sponsored Walk in London

To coincide with World Lupus Day, LUPUS UK once again organised a sponsored walk in the centre of London which took place on Saturday 13th May. We had over 55 people taking part in the walk, raising awareness of lupus and handing out leaflets.

Click here for full-size photo of the walkers.

So far over £5,200 has been received in sponsorship raised from the event.

Polymyalgia Rheumatica & Giant Cell Arteritis UK are excited to announce something brand new for 2017 – PMRGCAuk week!

Between 19th and 25th June, our members and their friends and family across the country will be fundraising to help us reach even more people with PMR and GCA. For example, Elizabeth Mitchell is undertaking a 10-mile sponsored walk in the New Forest on 25th June; nifty knitters in Bradford, Ilkle and Leeds are creating flower brooches to sell; and members of the Orpington Meet Up have organised a coffee morning.

For more information and a free PMRGCAuk week pack please visit our website: www.pmrgca.co.uk/content/pmrgcauk-week.

We are incredibly proud of the 65 runners who represented Arthritis Research UK at the London Marathon, many of whom were running for a loved one with arthritis or who have arthritis themselves. 28 members of staff alongside friends and family helped cheer our runners on from the side-lines at Mile 7 (Cutty Sark), Mile 12 (Tower Bridge) and Mile 25 (Birdcage Walk) and from inside the QEII where we held our post-race party. So far we have raised a total of over £87,000 and are very grateful to everyone who has donated.

Recruiting MP champions

Arthritis Research UK will be working hard during the run up to the election on 8thJune 2017, to ensure that as many prospective parliamentary candidates as possible commit to become Arthritis Champions. We want elected MPs to understand the impact that arthritis can have on people of all ages, and to champion relevant issues in parliament to fight for improvements. For example, we need MPs to ensure they protect the money available for science and research so we can keep investigating new treatment options. We also want the Government to support people with arthritis both in and out of work, and provide high quality health and social care for people with arthritis across the country. In order to recruit MP champions we need people across the country to email their local MP and explain the impact of arthritis. We will be doing this through our campaign pages www.arthritisresearchuk.org/campaign where we will put more information as soon as it is available.

My name is Keith Diaper and I am 40 year old husband and father from Hedge End in Southampton. I’m an electrician and a keen triathlete.

Starting on Saturday 1st April 2017 I will be doing one middle distance triathlon every Saturday and Sunday for six months – so I will be covering 3655.6 miles in total, over 52 events. That’s about the same distance as travelling from Southampton to New York.

A Middle Distance Triathlon is a 1.2 mile swim, 56 mile cycle and then a 13.1 mile run.

The reason for taking on such a challenge is to help raise awareness and funds for the charity Hypermobility Syndromes Association (HMSA). My wife, Pippa, has Ehlers Danlos Syndrome, one of the long-term conditions covered by the charity. This condition means there is a defect in her collagen which causes her joints to dislocate on a regular basis. She is in daily pain and suffers with fatigue. There is currently no cure for EDS and there is a possibility that she will one day be in a wheelchair.

Pippa was misdiagnosed for many years. The health professionals carried out many tests but thought Pippa had Fibromyalgia, due to a few similar symptoms. After many more visits to specialists over an almost 3 year period, she was finally diagnosed with EDS. Following this we came across the HMSA’s website, everything my wife was going through was listed along with lots of resources to help her cope.

By teaming up with the HMSA my mission is to bring wider awareness of their work and the conditions suffered by so many. I know we currently can’t cure this condition but we can educate people. If my challenge helps people who are in the situation my wife found herself in, then it would be worth it. Any funds we raise along the way will help the HMSA with their work, which covers research, support and education.

For more information contact keith@ironcause.co.uk.
Website: www.ironcause.co.uk
Phone: 07791 893638
Address: 5 Stirling Crescent, Hedge End, Southampton, Hampshire, SO30 2SA

The Department of Rheumatology at Portsmouth Hospitals Trust are looking for nimble-fingered knitters to get out the needles and wool and craft us some Funky Gloves. If knitting’s your passion, you could help to create some little amazing funky gloves for our Glove Sale on Wednesday 1st February 2017.

The event will be part of our “Wear your gloves” campaign to raise awareness of Raynauds.

Donations of knitted gloves can be dropped off in the Department of Rheumatology at Queen Alexandra Hospital any time up to the day of the 1st February 2017.

Funds raised will be donated to the Rheumatology Department.

Follow us on Facebook PortsmouthHospitalsCharity
Follow us on Twitter @PorthospCharity

Logo-for-UK-Gout-SocietyThe UK Gout Society has launched a new Friends’ scheme through which it aims to provide information and support to more people living with gout in the UK.

For an annual fee of £18, Friends of the Charity will receive a subscription to our quarterly Gout e-News alert and selected discounts on books etc.

To find out how to become a Friend of the Charity, follow the link : http://www.ukgoutsociety.org/support_us

acare-my-child-has-arthritisArthritis Care’s information booklet, My Child has Arthritis, was highly commended by reviewers at the BMA Patient Information Awards.

The booklet aims to provide the information that parents need to help them and their child understand and manage the condition, and to help them cope with both the practical and the emotional challenges involved in parenting a child who has any form of arthritis. The booklet is available to download here.

Arthritis Care was also the winner of the Third Sector Awards 2016 award for Fundraising Team of the Year.

Chris Deighton, one of NRAS’s Medical Advisors, is once again raising funds for NRAS. Having taken part in the Great North Run for several years (in fancy dress), he decided 2016 was the year for a different challenge!

NRAS-Chris-DeightonOn the 22nd April, Chris started trekking the Inca Trail for us – a challenge that has been on Chris’s ‘bucket list’ for a long time. Chris’s JustGiving page.

Pauline Mark is a Rheumatology Specialist Nurse at Royal Hallamshire Hospital in Sheffield, and recently took part in the Sheffield Half Marathon on 10th April. Pauline was supporting three charities, including NRAS, and raised just under £200 for each charity. Pauline’s JustGiving page

Lisa Harwood is a Senior Nurse and manages the Rheumatology Nurse Specialist Team at the University Hospital of Wales in Cardiff. Lisa recently ran the Llanelli Marathon. This was Lisa’s 3rd marathon – as she has set herself the challenge of running a Marathon in each home nation – and has already raised a fantastic £190. Lisa’s JustGiving page.

If you’ve been inspired by the healthcare professionals above, we have guaranteed places in the Great North Run in September – find out more here.

GP-on-a-bike1Vineet Joshi is a GP based in Wantage, Oxford. Vineet and his friend Rob are cycling 920 miles in July, from John O’Groats to Land’s End.

Vineet’s inspiration comes from a little boy Alex who is just 9 and lives with JIA. Alex entered one of our JIA & Me art competitions, and after seeing his wonderful piece of art depicting what JIA feels like to live with as a 9-year-old boy, Vineet took up the challenge to raise £5,000.

To read more about Dr Joshi’s fundraising challenge and about Alex, please visit either Vineet’s JustGiving page or his Facebook page – a great story of new-found friendship!

fab-at-40-no-text-logo_600x665NASS turns 40 this year, and two of our very own are helping us to celebrate in style!

NASS trustee Dr Karl Gaffney, from Norfolk and Norwich University Hospital, is spreading the birthday cheer across the pond as he embarks on a 300 mile cycle to Paris on 20-23 July. You can donate via his JustGiving page, or by texting CLTP followed by your amount to 70070.

Our Chief Executive Debbie Cook is also taking on her own massive challenge as she tackles the Great North Run on 11 September. Read more of Debbie’s story on her JustGiving page.

Visit our website to find out more about our Fab At 40 celebrations and how you can help to raise awareness of AS and NASS.

NRAS-Great-North-RunA HUGE thank you to our fabulous Great North Run team who took part in the race – you were all fantastic! Thanks so much for braving the heat to raise so much money to support people living with RA! Pictures from the day can be found on the NRAS Facebook page. It’s also not too late to donate to Ailsa & the NRAS dream team via the Justgiving site

If you’re feeling inspired by our runners this year, why not sign up today for the world’s biggest and most iconic half marathon? We have guaranteed places for 2016 and you can find out more and register your place on our website here.

NRAS is coming to Northern Ireland!

The NRAS rheumatoid and inflammatory arthritis group will be launched at an information evening on Wednesday 21st October 2015. The event is taking place in Lecture Theatre 1, Trust HQ/MDEC Building, Altnagelvin Area Hospital, Glenshane Road, Londonderry, BT47 6SB from 6:30-8:00pm. 

This meeting is supported by the Western Health and Social Care Trust, and is open to anyone living with RA or inflammatory arthritis, and their family and carers.  It is a free event, everyone is welcome to attend, and you do not need to be a member of NRAS.

There will be presentations from representatives of NRAS, a keynote talk from Dr. Philip Gardiner, Consultant Rheumatologist and a question-and-answer opportunity with a panel of expert healthcare professionals.

If you would like to attend or if you would like any further information, please contact Kim or Gill on 01628 823 524 or email groups@nras.org.uk