This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.

Fundraising

FOREUM – Foundation for Research in Rheumatology – announces its Call for International Fellowships (1 year).

FOREUM is committed to funding and promoting scientific research into rheumatic and musculoskeletal diseases (RMD) and has a goal to foster links between rheumatology units in different countries. Consistent with these goals is the establishment of a call for international fellowships that have the specific objective of facilitating the development of research capacity and training high-calibre applicants in RMD research.

Letters of intent can be submitted until 15 February 2019. If you are interested to apply for a grant, please find all information on the application page on the FOREUM website.

With a new strategy, “Driving progress: genetic, rare and undiagnosed”, the HMSA is committed to examining their impact within the four nations of the UK in order to build a plan that ensures they are truly a UK-wide organisation. The first step is to build a picture of how HMSA members currently operate across the UK. There has been a good response the survey; next the aim is to provide more engagement and opportunities for staff and volunteers.

Giving GPs the Tools

The HMSA’s current GP campaign is part of their work to improve professionals’ awareness and education so they’re able to more quickly identify those people presenting with hypermobility related disorders.

A pack of materials is being put together at the moment. A quicker diagnosis leads to reduced disability and impact on a person’s ability to work, go to school and on their quality of life. Much more is being done at local, national and international levels and the HMSA needs your donations to help with all of it. Please consider a donation via their Fundraising page.

The Fit4Change app converts miles to money for charities, giving an extra incentive to take regular physical activity that will improve your MSK health. You can use it for running, walking, cycling and exercising indoors.

Just download the Fit4Change app to your phone, select Arthritis and Musc Alliance as your chosen charity, remember to start before you begin your activity and finish at the end, and the app does the rest. It’s a simple way to support our work – just remember to start the app whenever you start your activity.

The spring edition of the Portsmouth Hospitals’ Department of Rheumatology newsletter is out.

It contains dates and details of a number of upcoming events, groups and meetings, including:

  • Funky Knit Day, a knitting event to raise awareness of Raynauds, 07 Feb 2018 – see the poster
  • Portsmouth Cream Tea & Light Music event, 4 March 2018 – see the poster
  • Portsmouth Easter Tea Dance, 24 March 2018 – see the poster

For more, open and save the spring newsletter (in PDF) here.

Once more NRAS has had a very successful RA awareness week with thousands getting involved in the #behindthesmile campaign. Over 500 awareness packs were sent out in the post and there have been over 1,700 downloads of the posters and infographics from the website.

Our thunderclap went live on the first day of the week and surpassed our target, reaching over 175,000 people, and our RA awareness week frame was used by 2,000 people on Facebook and Twitter.

Click to open the full-size the Behind-the-smile NRAS team photo.

During the week, we launched part 2 of the #behindthesmile video with Jane deciding to talk about having RA.
You can view the video on our website www.nras.org.uk/ra-awareness-week

The full impact is still being calculated but we would like to say a huge thank you to everyone who has supported and shared our posts on social media throughout the week.

#WearPurpleForJIA

A big thank you ARMA and everyone who supported the campaign this year – we are overwhelmed by the fundraising activities that people organised this year in aid of JIA-at-NRAS through #WearPurpleforJIA.

This is an amazing campaign started by two mothers (Lynette and Rachel) just a few years ago. Over £12,000 has already been raised and the cheques are still coming in!

On World Lupus Day (May 10th) the “Lupus Knows No Boundaries e-Report,” which has been co-created by the World Lupus Federation and Glaxosmithkline (GSK), was published.

The report brings together first-hand experiences of people with lupus, their advocates and those who treat them. It tells the real story of lupus, highlighting the ongoing physical and emotional needs of those who are affected by this incurable disease.

The report can be downloaded from the LUPUS UK website at  www.lupusuk.org.uk/world-lupus-day-report/.

Hampshire Lupus Information Day

On Saturday 6th May 2017, Hampshire Lupus Group hosted a lupus information day at the Guildhall in Winchester. The event was well attended with over 80 people present. The day featured expert speakers discussing a variety of lupus-related topics. These talks were recorded and videos are now available to watch online at www.lupusuk.org.uk/hampshire-lupus-day-videos/.

World Lupus Day Sponsored Walk in London

To coincide with World Lupus Day, LUPUS UK once again organised a sponsored walk in the centre of London which took place on Saturday 13th May. We had over 55 people taking part in the walk, raising awareness of lupus and handing out leaflets.

Click here for full-size photo of the walkers.

So far over £5,200 has been received in sponsorship raised from the event.

Polymyalgia Rheumatica & Giant Cell Arteritis UK are excited to announce something brand new for 2017 – PMRGCAuk week!

Between 19th and 25th June, our members and their friends and family across the country will be fundraising to help us reach even more people with PMR and GCA. For example, Elizabeth Mitchell is undertaking a 10-mile sponsored walk in the New Forest on 25th June; nifty knitters in Bradford, Ilkle and Leeds are creating flower brooches to sell; and members of the Orpington Meet Up have organised a coffee morning.

For more information and a free PMRGCAuk week pack please visit our website: www.pmrgca.co.uk/content/pmrgcauk-week.

We are incredibly proud of the 65 runners who represented Arthritis Research UK at the London Marathon, many of whom were running for a loved one with arthritis or who have arthritis themselves. 28 members of staff alongside friends and family helped cheer our runners on from the side-lines at Mile 7 (Cutty Sark), Mile 12 (Tower Bridge) and Mile 25 (Birdcage Walk) and from inside the QEII where we held our post-race party. So far we have raised a total of over £87,000 and are very grateful to everyone who has donated.

Recruiting MP champions

Arthritis Research UK will be working hard during the run up to the election on 8thJune 2017, to ensure that as many prospective parliamentary candidates as possible commit to become Arthritis Champions. We want elected MPs to understand the impact that arthritis can have on people of all ages, and to champion relevant issues in parliament to fight for improvements. For example, we need MPs to ensure they protect the money available for science and research so we can keep investigating new treatment options. We also want the Government to support people with arthritis both in and out of work, and provide high quality health and social care for people with arthritis across the country. In order to recruit MP champions we need people across the country to email their local MP and explain the impact of arthritis. We will be doing this through our campaign pages www.arthritisresearchuk.org/campaign where we will put more information as soon as it is available.