self-management | ARMA

Your SpAce is launched

The National Axial Spondyloarthritis Society (NASS) has launched Your SpAce, which has been created in partnership with people living with axial spondyloarthritis (axial SpA) and healthcare professionals.

Your SpAce allows people living with axial SpA to engage with their condition, learn more about axial SpA, and build skills to manage the impact it has on their life.

The programme is free to access on the NASS website and YouTube channel. It includes co-produced, short informative videos on topics such as pain, fatigue and flares.…

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Community-powered MSK Health?

It’s been exciting in the last two years to be working with the BestMSK Health team at NHS England, and now also with MSK improvement work in Wales. There’s been lots of talk about co-production, self-management support, reducing inequalities and a focus on prevention. The direction is very much one that ARMA can support. Then I read A Community Powered NHS from New Local and I started to wonder if we are being brave enough, going far enough, thinking big enough.…

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Decision support tools published

Shared decision making tools NHS England has published a suite of eight decision support tools covering varying conditions along with guidance on how to use them and evaluating the impact.

Four of these relate to MSK conditions:

Decision support tools (DSTs), also called patient decision aids, support shared decision making (SDM) by making treatment, care and support options explicit, providing evidence-based information about the associated benefits and risks, and helping people to consider what matters most to them in relation to the possible outcomes, including doing nothing.…

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Embedding personalised care within MSK-integrated services

by Dr Chloe Stewart, health psychologist and national clinical advisor in personalised care, NHS England

It’s strange how certain moments in life stay with you, etched in your memory while others disappear forever. Sometimes the things we remember are not the big things but small and seemingly insignificant moments. I remember a distinct moment during my health psychology training, some twenty years ago now, when I realised just how much more needs to be done to ensure a shift in power between healthcare professionals and patients.…

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Arthritis: the impact on daily life

Arthritis Action launches report on working aged people with arthritis

Arthritis Action has launched new research with YouGov to explore the experiences of people of working age in Great Britain who live with osteoarthritis or rheumatoid arthritis. YouGov carried out an online survey of 2,120 people aged 25 to 65 living with the conditions, comparing the results to a similar survey conducted by YouGov (for Arthritis Action), in 2018 to see how their situations have changed since the pandemic.

The results gave a good picture of people’s concerns, the impact of arthritis on their daily lives, and how they felt they could be helped further by employers and support services.…

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Not just another NHSE initiative

I have just returned from the BSR conference where it was good to catch up with ARMA members, key stakeholders and make new connections. Watching the contributions of patient organisations to the conference I was struck again by the huge role that the voluntary sector can play in good MSK health.

So, it is good to see this feature increasingly in the BestMSK Health messaging. Phrases such as “consider referral to third sector/voluntary sector for ongoing management rehabilitation and support” appear in many of the programme’s resources.…

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Online Pain Toolkit 5-day workshop

Online Pain Toolkit workshop for UK and English-speaking EU residents
Presented by The Pain Toolkit – the home of supported pain self-management.

Many people may not have access to pain management programmes and so the Pain Toolkit has organised a team of experiences coaches to run a 5-day (2.5hrs a day) workshop. The workshop is open to people living with persistent pain, and open to maximum of 10 participants. Pain Toolkit will be running three workshops during 2022 in Canada and Australia.…

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Working in partnership with patients to extend the benefits of pain management programmes

Guest blog by Dr Michelle Farr, Research Fellow at University of Bristol and the National Institute for Health Research Applied Research Collaboration West (NIHR ARC West)

People who experience long-term pain have important insights and strategies that help them manage pain in everyday life. However, they are often not invited to share their knowledge and skills to inform the services that are meant to support them. ARMA has been highlighting the importance of working in partnership with patients and how co-production, where patients and professionals work together, can improve pain services.…

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Recommendations for the implementation of self-management strategies in IA

NRAS’ National Patient Champion Ailsa Bosworth is the joint convenor (with Elena Nikiphorou, King’s) and a senior author of the paper entitled ‘2021 EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis’ published in the Annuls of Rheumatic Disease last week. These important recommendations come at a crucial time when rheumatology teams are reviewing how they deliver patient-centred care going forward as we come out of the pandemic, and will be presented at EULAR 2021 in June in a session on ‘Mastering Self-management: State of art in a New Era.’…

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Guest blog: Supporting people living with long term pain

What does the recent NICE guidance mean for pain clinics in this country?

Personal view from Alf Collins, Clinical Director for Personalised Care, NHS England and NHS Improvement

The recently published NICE guidance re: chronic pain management ¹ has enjoyed a mixed reception. The purpose of the guidance is to improve the lives of people living with long term pain by improving the quality of pain management services across the NHS but many commentators, patient groups and national professional bodies have not been slow to criticise it, citing that implementation could lead to significant patient harm.…

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