After the success of RA Awareness Week, this year NRAS is having its first JIA Awareness week #SameJIADifferentDay, which will run from the 13 to 17 June 2022.
The staff members at NRAS understand it can be very frustrating for children, young people and even adults with JIA to keep explaining that JIA is a fluctuating condition, and some days are good, and some are bad. No two days are the same living with JIA and you can help raise awareness of this by getting involved:
- Share, like, retweet #SameJIADifferentDay posts: it makes a big difference.
- You can add a social media frame to your profile: NRAS has a ‘JIA Awareness Week’ one and a ‘Wear Purple’ one.
- You can create a video to explain what a good day and bad day looks like for you or explaining how each day is different. For example, on a good day being able to write and on a bad day not able to hold a pen/pencil, on a good day being able to play football and a bad day struggling to walk. You can use the selfie frame/props to help you and a voiceover is fine. Please send them to jia@nras.org.uk via WeTransfer in an MP4 format.
- You do not have to do a video; you can send your stories and photos to us with or without the selfie frame/props at jia@nras.org.uk.
- Follow the JIA-at-NRAS TikTok account JIA_NRAS, be inspired to create your own using the hashtag #SameJIADifferentDay.
- Remember to give consent for your photos and videos to be used by NRAS when you register for your pack, or we can email you a consent form once you have sent in your videos/photos.
To get involved, visit the NRAS campaigning page.