NASS needs to hear from you

NASS is excited to launch a call for evidence as part of their efforts to establish a Gold Standard in Treatment and Care for Axial Spondyloarthritis as part of the Aspiring to Excellence programme.

NASS is looking for people with lived experience of axial SpA, and healthcare professionals to share with us their real-life examples of good treatment and care.

For people with lived experience, an example might be a course or education session you attended, a new way of being able to communicate with your healthcare team which improved your experience, or a routine that you were able to develop with your healthcare team to help with a specific part of living with axial SpA.

For healthcare professionals, an example might be implementing a protocol, developing a way of working with other disciplines or introducing a self-management course.

There are five workstreams, with a variety of sub-categories within those:

  • Organisation of Care
  • Pharmacological interventions (medication)
  • Therapy-led interventions
  • Extra axial care
  • Living with axial SpA

The closing date to share your experience and evidence is Friday 16 August 2024.

Visit the NASS website to find out how to express an interest, and also to see all of the information on the workstreams, and what NASS is trying to achieve.