Category: Resources

New resource – updated psoriatic arthritis leaflet

The Psoriasis Association has had a busy year updating their leaflet series, with the re-imagined Psoriatic Arthritis Leaflet being the final installment. The new, vibrant leaflet features authentic images of people living with psoriatic arthritis. The leaflet discusses advice on when to see a rheumatologist as well as first-line and second-line treatments.

The resource is ideal to take along to any medical appointments to discuss treatment options and whether you may require a referral to a specialist.
The leaflet is now available to view and download on The Psoriasis Association website here.

Getting the most out of your appointments

The Patients Association has launched two resources, an animation and a guide, which provide patients with the knowledge and tools they need so they are prepared to get the most out of their care. This includes:

  • ensuring they are prepared;
  • guidance on how they can prevent things going wrong;
  • steps they can take at each stage of their journey through the healthcare system.

The advice covers before, during and after appointments, focusing on communication, sharing information, and accessibility.

Both the animation and the guide can be viewed and downloaded from the Patients Association website.…

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Adult Orthopaedic Trauma report

trauma reportAdult Orthopaedic Trauma GIRFT Programme National Specialty Report

The GIRFT Programme has published its Adult Orthopaedic Trauma National Specialty Report.

The report illustrates how multidisciplinary governance can work well, and highlights governance arrangements that can be used in adult orthopaedic trauma services.

The report’s recommendations for providers and systems aim to deliver a service that is more equitable, more responsive to best practice guidance and continuously reduces unwarranted variation.

You can read the full report here.

Unlocking the Miracle Cure – a white paper on movement for health

Unlocking the Miracle Cure – a white paper on movement for health, was jointly published by Nuffield Health and Manchester Metropolitan University, highlighting the critical role of physical activity in improving health outcomes and addressing the nation’s growing health challenges. 

The white paper presents evidence-based policy recommendations to integrate physical activity into health and social care systems. It underscores the need for a concerted effort to prioritise physical activity as a means to prevent and manage long-term health conditions, improve mental health, and reduce pressure on the NHS.…

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GIRFT and elective community MSK waiting times

GIRFT is getting started on a £3.5m programme of activity working with 17 ICBs with the highest waiting lists for elective community MSK services.

The focus is on reducing waiting times for a community MSK appointment; to improve access to MSK treatment and support people back to work.

The GIRFT MSK Community Delivery Programme will see each ICB receive funding and support to develop more efficient ways of getting MSK patients treated, off waiting lists and back onto the path of employment.…

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NRAS Stress Matters booklet

bookletsNRAS is pleased to announce the launch of their new Stress Matters booklet. This follows on from the report by the same name, which covered the results of a survey exploring patient experiences of stress in relation to their inflammatory arthritis (IA).

Stress Matters explores what the findings of the NRAS study mean for people living with IA. It also helps people to understand what stress is, how it might affect them and gives tips on how it can be managed.…

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Collaboration produces updated IHP

collaboration bannerJIA@NRAS, Versus Arthritis and CCAA have all together produced a new updated Individual Healthcare Plan (IHP) template for use in schools and with families.

The template is specific to children/young people with paediatric rheumatological conditions. It contains plentiful tips and ideas to help support children and young people in school/college/nursery and covers all ages. Members may be interested to take a look and refer families / clinicians as appropriate. 

It can be found under the Education Resources tab on the ccaa.org.uk…

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LUPUS Transition to adult care booklet

document coverLupus UK Youth is pleased to launch a new booklet to support and prepare young people with lupus during the transition from paediatrics to adult services. It is based on the T-KASH (Transition Knowledge and Skills in Healthcare) model developed by young people with lived experience from Alström Syndrome UK, and includes tips and a workbook format to help young people think through their individual transition journey.

As lupus is a life-long condition, effective transition from paediatric to adult services is a vital part of healthcare for young people with lupus.…

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Relationships Matter booklet

NRAS is pleased to announce the launch of their new booklet, Relationships Matter, a guide to relationships for people with rheumatoid arthritis (RA) and adult juvenile idiopathic arthritis (AJIA).

A diagnosis of RA or JIA effects every aspect of a person’s life and the lives of those closest to them, including any current or future partner. In this booklet, we discuss a range of topics, including the impact of these conditions on dating, sex and maintaining healthy long-term relationships.

The booklet is inclusive of all sexualities and includes information and tips, as well as anecdotes from people living with these conditions.…

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