Chronic pain: Unseen, unequal, unfair

A few years ago, Versus Arthritis funded the inclusion of a chronic pain questionnaire in the Health Survey for England. The findings from these questions are stark. Of great concern is that 5.5 million people in England (12% of the population) have high-impact chronic pain, the most severe form, which means a person struggles to take part in daily activities such as self-care, family, community and work.

Versus Arthritis’ new report, ‘Chronic pain in England: Unseen, unequal, unfair’ sets out key findings from the survey (initially analysed by Public Health England) and a series of recommendations which call for a fundamental re-think in how we support people with chronic pain through far-reaching solutions.…

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University of Manchester pain research

The University of Manchester is looking for people with arthritis or any other long-term musculoskeletal pain condition to take part in the Manchester Digital Pain Manikin study.

  • Do you have arthritis or any other long-term musculoskeletal pain condition?
  • Are you interested in improving the way long-term pain is measured?

As part of a thirty day study, participants will make a daily report on their pain using the Manchester Digital Pain Manikin app.

Open the feasibility flyer here for more details and follow the links within.

Royal Osteoporosis Society launches its largest ever survey

The Royal Osteoporosis Society (ROS) has launched its 2021 ‘Life with osteoporosis’ survey, to help understand the impact of osteoporosis on the lives of people living with the condition.

Following the previous ‘Life with osteoporosis’ survey conducted in 2014, the ROS aims for this to be the largest survey of its kind – so please share it with relevant audiences.

The survey is open to anyone living with osteoporosis and the results will be used to:

  • build a full picture of what it’s like to live with osteoporosis, including its impact on day-to-day life, relationships, independence and body image
  • inform an APPG Inquiry to engage parliamentarians and improve NHS services
  • understand whether people’s experiences of living with osteoporosis have changed since the last survey took place in 2014, including the impact of the COVID-19 pandemic

The survey is open until Thursday 8 July 2021 and takes around 15-25 minutes to complete.…

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Recommendations for the implementation of self-management strategies in IA

NRAS’ National Patient Champion Ailsa Bosworth is the joint convenor (with Elena Nikiphorou, King’s) and a senior author of the paper entitled ‘2021 EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis’ published in the Annuls of Rheumatic Disease last week. These important recommendations come at a crucial time when rheumatology teams are reviewing how they deliver patient-centred care going forward as we come out of the pandemic, and will be presented at EULAR 2021 in June in a session on ‘Mastering Self-management: State of art in a New Era.’…

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Pain Alliance Europe Chronic Pain Survey

The Pain Alliance Europe is inviting people with chronic pain or their caregivers to take part in their 2021 survey on diagnosis and treatment. It’s available in 15 languages.

This is a second version of the survey The Pain Alliance Europe conducted in 2017. It will compare the responses from four years ago with the situation now, to see if there have been improvements over time.

PAE will use the survey results as a snapshot of the lives of people with chronic pain across Europe – the picture may vary from country to country.…

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Warwick study of mental defeat in chronic pain (WITHIN study)

Do you have chronic pain?
Volunteers are needed to take part in psychological research which aims to help explain distress and disability in chronic pain.

The WITHIN Study is funded by the Medical Research Council and is investigating to what extent mental defeat explains variations in pain severity, distress, and disability in the long term in patients with chronic pain.

If you are interested in taking part in the online questionnaire, complete the screening questionnaire to see if you are eligible.…

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Outcomes data collection in orthopaedics

The latest NOA guest blog post by Rebecca Lafferty, national PROMS network co-ordinator and outcomes manager (Wrightington, Wigan and Leigh Teaching Hospitals NHS Foundation Trust) looks at outcomes data collection in orthopaedics and outlines her personal experience of outcomes pathways and processes.

Outcomes data collection can mean different things to different people. It depends on the provider and how the data collection process is set up. In some units, the data collected contributes to a bigger picture through national data sets such as the National Joint Registry, National Ligament Registry and Non-Arthroplasty Hip Registry.…

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Second Survey: PSP Psoriatic Arthritis

The British Psoriatic Arthritis Consortium is working with the James Lind Alliance to run a priority setting partnership (PSP),
looking to create a national ‘top 10’ list of research priorities for psoriatic arthritis.

Survey 2 – What questions would you like to see answered by #PsoriaticArthritis research?

Following the first PSP survey in June 2020, the process moves to identifying the questions that are the most important to people who live and work with psoriatic arthritis.

This is a unique opportunity for you to have your say in psoriatic arthritis research.…

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LJMU chronic pain experiences survey

Researchers at Liverpool John Moores University (LJMU) are aiming to understand chronic pain experiences in and out of the UK’s current lockdown. Individuals are invited to participate in the survey.

Title of Project: Locked-down: Differences in Chronic Pain Experience
Researcher: Dr David Moore and Bethany Donaghy, School of Psychology

The study will take 20 minutes to complete and will involve completing a set of questionnaires online via outlets such as computers or mobile phones. There will also be the option to participate in a second phase of the study.…

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State of health and care: The NHS Long Term Plan after COVID-19

State of Health reportState of health and care: The NHS Long Term Plan after COVID-19

A new report from IPPR shows the extent to which the coronavirus pandemic has disrupted progress on the NHS Long Term Plan. The report looks at cancer, mental illness, cardiovascular disease and multiple long term conditions, but the findings are equally relevant to MSK services.

The report argues that COVID-19 should not become an excuse for low ambition, and that world-class healthcare must remain the overall goal. To achieve this, the report recommends a package of six ambitious changes designed to do three things:

  • Ensure the pandemic does not cause lasting damage to healthcare services for future generations.


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