Category: Research

Important new axial SpA & COVID-19 APPG Clinical Survey

NASS would like to bring your attention to an important new clinical survey on the impact that COVID-19 is having on axial SpA (AS) services and care.

The survey has been developed to help inform the work of a new inquiry that is being carried out by the All-Party Parliamentary Group (APPG) on Axial Spondyloarthritis. Findings from the survey will support the APPG, the National Axial Spondyloarthritis Society (NASS) and other stakeholders in the area to identify key recommendations that can be put forward to help safeguard the provision of axial SpA (AS) care and ensure that patients are able to receive the best care possible in the months ahead.…

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What questions would you like to see answered by psoriatic arthritis research?

The British Psoriatic Arthritis Consortium is working with the James Lind Alliance to run a priority setting partnership (PSP). The aim is to create a national top-10 list of research priorities for psoriatic arthritis. They want ideas and thoughts from people with different experiences and backgrounds: those with psoriatic arthritis, their families, carers and clinicians.

The survey has now been open for two months and 228 surveys have been completed. You can read information on who has completed the survey so far in the survey’s update document.…

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Reumavid study

Reumavid is a questionnaire investigating the consequences of the covid-19 pandemic on people living with rheumatic conditions in United Kingdom.

The survey is aimed at people living with rheumatic diseases who are experiencing confinement due to COVID-19.

Its aim is to describe the consequences of the pandemic on the evolution of the disease, support services, healthcare, the quality of life and the emotional well-being of people living with rheumatic diseases.

This study is promoted by National Axial Spondyloarthritis Society (NASS), National Rheumatoid Arthritis Society (NRAS), and Arthritis Action, and conducted by the Health & Territory Research (HTR) of the University of Seville, with the support of Novartis Pharma AG.…

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Global rheumatology patient survey – Covid 19

Pain UK would like to alert you to the work of the Covid-19 Global Rheumatology Alliance, an organisation established to “collect, analyze and disseminate information about COVID-19 and rheumatology to patients, physicians and other relevant groups to improve the care of patients with rheumatic disease.”

Rheumatology patients are invited to complete a patient survey, whether or not they have been diagnosed with COVID-19. A worldwide consortium of doctors, scientists and patient groups are seeking your views on the current situation. Tell them how it is for you via this link.

£4 million for musculoskeletal research

Research funding awarded by Nuffield Foundation’s Oliver Bird Fund

The Nuffield Foundation has awarded £4 million to six teams across five UK Universities for research to improve the lives of people living with musculoskeletal (MSK) conditions by influencing policy and practice. Two of the awards, made in partnership with Versus Arthritis, will develop innovative ways to join up MSK data across an area to improve care and service provision. The remaining projects look at different aspects of the causes, consequences, and experiences of living with MSK.…

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NAIF inpatient falls

The first report of the new continuous National Audit of Inpatient Falls (NAIF) provides a detailed look into the care and management of patients who sustain a hip fracture as the result of a fall while they are in hospital.

Falls are the most frequently reported incident affecting hospital inpatients, with 247,000 falls occurring in inpatient settings each year in England alone (NHS Improvement). The data collected by NAIF and presented in this report provide ample opportunity to identify areas in which to enhance the quality of care for people who sustain an inpatient hip fracture. …

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Healthy ageing research prioritisation survey

The Productive Healthy Ageing team at Public Health England are developing the research framework for healthy ageing and would like to invite you to take part in a survey to support this process. They will use the survey to identify the gaps in research on healthy ageing and to produce a list of the highest priority research questions to influence future research proposals.

The survey is designed to reflect the four themes of the Productive Healthy Ageing programme – Healthy Behaviours, Financial Security, Independence and Place, and Meaning and Purpose.…

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FLS-DB annual report 2020

The Fracture Liaison Service Database Annual report 2020, published in January by the Royal College of Physicians, provides the third national benchmark for the performance of FLSs at the patient level.

There were 58,979 of an expected 322,660 patients who sustained a fragility fracture in 2018 across England and Wales were reported on in the Fracture Liaison Service Database (FLS-DB). The FLS-DB used eleven key performance indicators (KPIs) for this report to measure secondary fracture prevention.

With over 300,000 fragility fractures in England and Wales detected every year in patients aged 50 years and over (NHFD, 2019), secondary fracture prevention is more important than ever.…

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Quality in osteopathic practice report

The Quality in Osteopathic Practice report brings together existing research around the patient experience with research on clinical effectiveness and the safety of osteopathic practice.

Full of useful statistics and information, the report is relevant to anyone who has an interest in finding out more about osteopathic practice and the evidence that there is available, whether as a patient or a member of the wider general public, a private or NHS commissioner of service or other colleagues in healthcare.

Read the Quality in Osteopathic Practice report from the Institute of Osteopathy.

Fibromyalgia survey for healthcare professionals

Can you help us improve healthcare for people with fibromyalgia in the UK?

Professor Gary Macfarlane and Dr Rosemary Hollick of the PACFiND study team are looking for healthcare professionals who see patients with fibromyalgia to take part in a short online survey.

This survey will help PACFiND understand current provision of NHS services for people with fibromyalgia.

PACFiND (PAtient-centred Care for Fibromyalgia: New pathway Design) is a project aimed at developing new pathways of care for people with fibromyalgia. 

Please click here to complete this survey.…

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