Category: Publicity

RA awareness week 2017

Once more NRAS has had a very successful RA awareness week with thousands getting involved in the #behindthesmile campaign. Over 500 awareness packs were sent out in the post and there have been over 1,700 downloads of the posters and infographics from the website.

Our thunderclap went live on the first day of the week and surpassed our target, reaching over 175,000 people, and our RA awareness week frame was used by 2,000 people on Facebook and Twitter.

Click to open the full-size the Behind-the-smile NRAS team photo.…

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The Societal Impact of Pain – SIP 2017

The UK Gout Society recently attended the 7th European Symposium of the Societal Impact of Pain (SIP 2017) in Malta, organised by the European Pain Federation (EFIC), Pain Alliance Europe, the Active Citizen Network and Grünenthal.
The event brought together stakeholders from across the EU and MSK community – and provided a platform to raise awareness of the impact of pain, exchange ideas and information, develop consensus and policy strategies, and debate pain as a quality indicator for healthcare systems.

One-in-five adults in the EU are currently living with chronic pain.…

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RA Awareness week and WearPurpleForJIA

RA awareness week 19-25th June

The RA Awareness week packs are flying off the shelves and we’re looking forward to an action-packed week.

NRAS is holding the 1st “Rheum for You” conference of the year in Swindon on the Wednesday 21st June and have lots of people signed up to hold their own events during the week. We have a different theme every day and you can keep an eye on our plans on the NRAS website, Facebook and Twitter channels.…

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Video ‘What is AS’ to increase awareness and understanding

World AS Day was on Saturday 6 May. Every year, our aim on the day is to increase awareness and understanding of AS.

We produced a short video called ‘What is AS’ explaining the condition and how it affects people and asked people to share it on social media. We were delighted to have a reach of more than 55,000 on Facebook alone. This is the first in a series of videos.

Click here to open https://www.youtube.com/watch?v=Tfoivx6Sgtc

 

We also worked with the BMJ this month to produce an infographic of the NICE Spondyloarthritis Guideline.…

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National Osteoporosis Society Campaign media coverage success

The National Osteoporosis Society launched its new Message to My Younger Self campaign with a bang this month, earning the charity over 300 pieces of media coverage on TV, radio and national press.

The campaign, which runs throughout the summer until the end of October, is looking to start conversations about bone health between generations and launched with a focus on the need for a healthy, balanced diet.

Some of the key coverage included articles in The Daily Telegraph, Daily Mail and BBC Health Online, as well as BBC Radio’s Today Programme and Jeremy Vine show.…

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Ironcause – 52 Middle Distance Triathlons

My name is Keith Diaper and I am 40 year old husband and father from Hedge End in Southampton. I’m an electrician and a keen triathlete.

Starting on Saturday 1st April 2017 I will be doing one middle distance triathlon every Saturday and Sunday for six months – so I will be covering 3655.6 miles in total, over 52 events. That’s about the same distance as travelling from Southampton to New York.

A Middle Distance Triathlon is a 1.2 mile swim, 56 mile cycle and then a 13.1 mile run.…

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A Message to My Younger Self

The National Osteoporosis Society is launching “A Message to My Younger Self” – an awareness campaign about keeping bones strong and health. It begins on 12th April 2017 and runs through to World Osteoporosis Day on 20th October. NOS want the generations to have a conversation about healthy bones, to talk about the steps that can be taken to make sure bones are strong, and to give a voice to the millions of people with the condition.

The campaign is being fronted by Liz Earle who is personally concerned about the impact of social media on the eating habits of her teenage children, backed-up by research that we have conducted showing that 20% of 18-24 year olds have reduced or completely cut out dairy from their diets, which could potentially be storing up problems for them in later life.…

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Calling all back pain sufferers

The Back Pain Show – 19 & 20 May 2017

After a decade, The Back Pain Show has moved from Olympia London to St Andrews Birmingham, to give access to sufferers from the Midlands and the North of England. This iconic, two-day show is a hub for sufferers to meet doctors and therapists who provide treatment and manufacturers who supply both preventative and therapeutic equipment.

There are many causes of back pain including crush fractures of the spine which are usually caused by osteoporosis.…

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Your Life with Arthritis Survey

Arthritis Care has launched a new survey, “Your life with Arthritis”, which is available online at: http://www.arthritiscare.org.uk/yourlifesurvey

Please circulate the survey to anyone with arthritis who may be interested in taking part. The evidence we gather will help us to understand what matters most to people with arthritis and campaign for better care and support. For more information about the survey or to request a paper copy, please email campaigns@arthritiscare.org.uk

 

BBC Radio 4 appeal

Broadcaster and Radio 2 DJ Jo Whiley made the Radio 4 Appeal on behalf of Arthritis Care last month, speaking about how arthritis has affected her life and family.