Arthritis and Musculoskeletal Alliance
Influencing policy and care together for best lifelong musculoskeletal health
Join NRAS for an exclusive Northern Ireland event: Coping with RA during COVID-19.
Wednesday 16 December, 1:30pm-3:30pm on Zoom.
There will be an update from Clare Jacklin, NRAS Chief Executive, as well as special guest speakers.
Register via the sign-up form.
Making decisions about shielding – based on guidance issued 22 September for England
This document is based on guidance for England. The principles of assessing your own risk and the risk of different activities is the same wherever you live. If you live in Wales, Scotland or Northern Ireland, check your national guidance and advice for people who are clinically extremely vulnerable – see links below.
Just over 2 million people in England were advised earlier this year that they needed to shield because they are extremely vulnerable to the COVID-19 virus.…
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NRAS has a new video on the benefits of the Right Start Service for patients newly or recently diagnosed with rheumatoid arthritis.New2RA Right Start is a service launched by the National Rheumatoid Arthritis Society (NRAS) at the BSR 2019 congress and to which many rheumatology services are referring their patients. Right Start supports people newly diagnosed with Rheumatoid Arthritis to understand their diagnosis and how it is likely to affect them. Getting the right, supportive start can help people to make adjustments to their behaviour, lifestyle and health beliefs and understand why self-management is essential, and learn how to make those important first steps to managing their disease effectively.…
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During the COVID-19 pandemic, 42% of people living with arthritis reported that their pain has increased [1] according to a survey by UK Charity Arthritis Action looking at the effects of COVID-19 and lockdown on the daily lives of people with arthritis. Considering there are over 10 million people living with some form of arthritis in the UK [i] this would equate to over 4 million people experiencing increased arthritis pain during the ongoing pandemic.…
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By Jane Green – advocate ex Assist. Headteacher, BSc (HONS) Psych., PGCE QTS, Adv.Dip.Ed.(CD), MA Ed. (Leadership and Management), Social Care Institute for Excellence Trustee and on the co-production steering board for four years
For anyone on the long journey to diagnosis of Ehlers-Danlos syndromes (EDS) (previously Joint Hypermobility syndrome (JHS)) or the closely related Hypermobility Spectrum Disorders (HSD), the knowledge, practice and understanding of appropriate musculoskeletal issues from practitioners is hugely beneficial.…
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In July and August 2020, NRAS ran a survey asking about the impact of the Covid-19 lockdown on the working lives of people living with rheumatoid arthritis or another form of inflammatory arthritis.
The survey received 348 responses and a short report will be published next month. The overall picture is a concerning one: people reported that their career opportunities, in-work support and the understanding they experienced from colleagues and employers dropped slightly during lockdown. Asked about their expectations for the future, many expected this trend to get worse.…
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On 7 November 2020, NASS will be hosting a new event for any affected by axial SpA (AS).
Physio in Focus will be run entirely by physiotherapists and in partnership with AStretch. Please do share this with your patients. We also welcome attendance from physiotherapists who would like to engage further with NASS and AStretch.
The Patients Association has published a report of patient experiences of Covid-19. The results show the massive toll on all patients of the coronavirus pandemic and the emergency measures taken in response to it. Some patients reported good ongoing care, and were impressed by the way their local communities came together to support them.
The report contains recommendations for the next phase of the emergency response, and also a call for the health and care system to be built back better after the pandemic: the current emergency footing cannot be the basis for the ongoing relationship between patients and the NHS.…
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After more than four months shielding, NRAS founder and National Patient Champion Ailsa Bosworth MBE has shared her thoughts on shielding coming to an end.
You can watch Ailsa’s video of her personal reflections on the lockdown experience and coming out of shielding on the NRAS YouTube channel.
by Victoria Wells, a personal reflection about a new play with a theme of dancing for health – how a work of theatrical art relates to my experience of joint replacement surgery, pre-operative rehab, post-op rehabilitation and a lifetime of dancing.
On 3 October 2020, a play by Fiona Hamilton will be screened for the first time.
My experience contributed to one of its main characters.
As a child I enjoyed dancing and getting lost in the rhythm. I was born with hip dysplasia that was not diagnosed until mid-childhood and, as a result, I walked with constant pain.…
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