Category: Patients

Decision support tools published

Shared decision making toolsNHS England has published a suite of eight decision support tools covering varying conditions along with guidance on how to use them and evaluating the impact.

Four of these relate to MSK conditions:

Decision support tools (DSTs), also called patient decision aids, support shared decision making (SDM) by making treatment, care and support options explicit, providing evidence-based information about the associated benefits and risks, and helping people to consider what matters most to them in relation to the possible outcomes, including doing nothing.…

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NRAS Stress Matters survey

At the National Rheumatoid Arthritis Society (NRAS), research helps develop and deliver services to best meet the needs of all those living with inflammatory arthritis. NRAS is planning to develop resources with practical information about managing stress levels. The ‘Stress Matters’ project is an NRAS initiative that aims to develop a better understanding on the topic and develop appropriate resources for people living with inflammatory arthritis (IA).

To kick off the project NRAS has developed a survey to gather your lived experiences of how stress impacts your arthritis as well as your insights into what sort of support, if any, you’ve found or have been offered, that helps.…

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NRAS Wellbeing Courses

wellbeing scheduleNRAS launched their Wellbeing Courses in May and owing to their success the next set are now being released.

The NRAS Wellbeing Courses starting within the next month are: 

  • Tripudio: Gentle form of exercise performed to different genres of music. 
  • Yoga: Breathing exercises to help support day-to-day exercises, designed to help create a little mobility and strength throughout the entire body.
  • Tapping for Pain Management: Gently tap the various acupressure points with techniques aiming to relax the mind and body. 

The courses consist of either two or five/six weeks in length, meeting once a week online.…

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‘Medicines in RA’ – new module launching in SMILE soon

SMILE-RA is a unique and engaging e-learning experience for people with RA and their families who want to understand more about RA, and its treatments. SMILE-RA has a modular approach to learning, so each module is on a particular theme or subject and takes between 20 mins and half an hour to complete.

There is an intuitive interface that makes it easy to use and navigate your way around. After registering and completing the Foundation module which includes baseline evaluation questions, you can then direct your own learning experience and choose whichever modules are of interest to explore next.…

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Tiny Magic Moments: how treating my RMD has influenced my hopes for the future

By Anna Wilson – EULAR Edgar Stene Prize essay competition, runner-up in the UK national competition

After almost nine years of increasing intensity, the pain throughout my body was becoming unbearable. I vividly remember arriving at my doctor’s appointment that day to receive my blood test results, my fingers tightly clutching a list of symptoms.

“I know it sounds like I’m a hypochondriac,” I began awkwardly, “but I get inflamed eyes, rib cage pain, lower back spasms and stabbing in my hips that is so bad I struggle to walk in the morning.…

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Charity collaborative on mental health support in paediatric rheumatology

A group of JIA charities (CCAA, Juvenile Arthritis Research, JIA@NRAS, SNAC and Versus Arthritis), working collaboratively with the British Society for Rheumatology, is investigating access to mental health provision and support within paediatric rheumatology. 

In February 2022 CCAA sent out a survey to families which ran for three weeks and received just over 300 responses. The plan is to use the information gathered to help campaign for better services for children, young people and their families. CCAA is incredibly grateful to all those families who took time to respond and to share their experiences.…

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Blood matters

Blood Matters is the new National Rheumatoid Arthritis Society (NRAS) guide to the blood tests used in managing rheumatoid arthritis (RA) and adult juvenile idiopathic arthritis (JIA).

Blood tests are an important part of both the diagnosis and monitoring of RA and JIA, but the different tests, abbreviations and numbers can be confusing, and it might not always be clear to you what the purpose of each test is, why it’s important and what the results mean.

NRAS has created this resource because they strongly believe that having a good understanding of your blood tests is important to help you to manage your condition and improve outcomes.…

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How treating my rheumatic disease has influenced my hopes for the future

Guest blog by Chantal Lyons. This essay was the national selection entry winner for the UK for the Edgar Stene Prize 2022

Everything changed in the year I turned twenty-three. In the spring, I began to run, dragging my unfit body off the sofa and into the local park. In the summer, I began to dream of running the London Marathon like my father had. And in the autumn, I could no longer ignore the white-hot pain growing in my hips and back.…

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Introducing Informatree

The Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) is delighted to launch Informatree, a brand new, free website resource aimed at helping people with psoriatic arthritis to live well.

People living with psoriatic arthritis worked together with healthcare professionals who treat people with the condition, psychologists and researchers to develop the new resource. The contents were agreed upon by people living with psoriatic arthritis and clinicians.

The project was led by the University of Oxford in the United Kingdom, and informed by people living with psoriatic arthritis worldwide.…

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Brace Yourself! PROP-OA knee pain trial

How a research trial will support people living with knee pain and osteoarthritis though advice, exercise and knee braces

Knee pain affects one in four people over 45 years in the UK. The most common cause is osteoarthritis, but many people will suffer without getting the diagnosis.

Osteoarthritis and its symptoms vary a lot and negatively affect people’s daily lives. There is no cure for osteoarthritis, but with treatment, symptoms can be improved and allow people to stay active.

Wearing a knee brace is one of the options that could help by reducing the load going through the joint and improving its stability.…

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