Category: Patients

How to prepare for joint replacement surgery

Webinar – Preparing for Joint Replacement Surgery and Recovery
Thursday 24th October 2024, 1.00pm

Arthritis Action’s next webinar will discuss how to prepare for joint replacement surgery, what you can expect on the day, and how best to manage recovery.

Arthritis Action’s Medical Advisor, Honorary Consultant Rheumatologist Dr Wendy Holden will speak to Arthritis Action Volunteer Rebecca Sadri about her experience of arthritis, and how she prepared for, and recovered from her hip replacement surgery. The webinar will include a Q&A session.…

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NRAS Live: Introduction to The Wren Project

NRAS LiveJoin NRAS on Wednesday 25th September at 7pm for a discussion on how NRAS and The Wren Project support those with autoimmune conditions.

The Wren Project is a fantastic initiative that offers listening support to people living with autoimmune diseases throughout the UK.

The discussion will be hosted by Sarah Watford, NRAS Support Service Manager and Amy Allen, Information and Support Coordinator – both of whom are part of the NRAS Information & Support team. The team will be joined by Kate Middleton (Wren Project Chief Executive) and a Wren volunteer, to talk about how they support people living with RA and other autoimmune diseases.…

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New NHS Resource for adults with chronic primary pain

Decision-making documentNHS England has published a new decision support tool – Making decisions to help you live well with chronic primary pain.

The resource is intended as a decision aid for people aged 16 years and over with chronic primary pain to help you think about what options you might like to consider to help you live well with pain.

You can find the decision support tool here.

NRAS Live: Dental Care, Oral Health & RA

If you have rheumatoid arthritis and think that oral health shouldn’t be top of your list – you may be surprised! Findings from recent studies suggest that there are significant links between oral health and those living with RA and other common co-morbidities such as heart disease and diabetes.

In this NRAS Live chat, Ailsa will be joined by Iain Chapple, Professor of Periodontology at University of Birmingham and Maddy Roberts, our Families and Young Peoples Service Manager from the JIA-at-NRAS team.…

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People’s Experiences of Diagnosis

National Voices has published a new report, People’s experiences of diagnosis, which brings together insights from people with lived experience and members on the entire process of diagnosis – from trying to get an appointment for a diagnostic referral, to undergoing tests, and experiences post-diagnosis.

The report covers the themes of challenges in diagnosis, inequalities in diagnosis, and new innovation in diagnosis, before concluding with nine recommendations for improving patient experience of diagnosis.

report coverThese nine recommendations include: 

  • Adjustments and adaptations to enable access 
  • Provide better support while waiting 
  • Listen to the patient 
  • Better communication around diagnosis 
  • Make sure people have a plan 
  • Provide access to support groups 
  • Collect better data to understand the driver of diagnostic health inequalities, and act on it rapidly 
  • Upskill, coordinate and ultimately increase the workforce 
  • Have health equity embedded into new innovations the start 

You can read the full report here (pcdn.co)…

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Creating your AS flare toolkit

Most people with axial SpA tend to have times of flare and times when their symptoms are more manageable or settled. A flare can include an increase in pain and joint stiffness, either local or generally.

online meetingFind tools to help you to feel more in control and prepare for axial SpA flares with the NASS axial SpA online peer support meeting on 4 June 2024 at 6pm.

Join this friendly online meeting to:

  • Find tools to help you prepare for flares and create your flare toolkit
  • Get advice to reduce the impact a flare has on you
  • Connect with other people with axial SpA
  • Share your experiences
  • Ask the NASS team any questions you may have

Book via this link.…

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No NRAS Live this month!

Due to many of the NRAS team going to the BSR conference later in the month, there is unfortunately no NRAS Live this month. However, if you have missed any of their live broadcasts – remember you can watch ALL previous NRAS Lives via their YouTube channel.
 
They have even made this handy playlist, which has all previous lives events in order and ready for a weekend binge!

The TIPTOE Study into knee/hip pain

TIPTOE study

Do you or someone you know have knee or hip joint pain that is impacting daily life?

The TIPTOE research study is aimed at people 70+ with knee and / or hip pain, comparing a new support package, which aims to give people the knowledge, confidence and skills to live well independently, with standard care.

If you decide to take part, you will be put at random into one of two groups:

  1. TIPTOE Support programme: this includes having up to 6 personalised coaching sessions with a trained healthcare practitioner and you will also receive a copy of our ‘living well with joint pain’ book.
…

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NASS needs to hear from you

NASS is excited to launch a call for evidence as part of their efforts to establish a Gold Standard in Treatment and Care for Axial Spondyloarthritis as part of the Aspiring to Excellence programme.

NASS is looking for people with lived experience of axial SpA, and healthcare professionals to share with us their real-life examples of good treatment and care.

For people with lived experience, an example might be a course or education session you attended, a new way of being able to communicate with your healthcare team which improved your experience, or a routine that you were able to develop with your healthcare team to help with a specific part of living with axial SpA.…

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