Category: Patients

Could long-term conditions reach the point where patients are actually driving the research agenda?

by Kate Gilbert, PhD, Project Lead for PMRGCAuk’s Rheuma Research Roadshows

I’m writing this on a train on a February evening, feeling worn out but excited, a state of mind familiar to any development worker who has just launched a major project. In this case, the PMRGCAuk team have just held the first of our Research Roadshows, funded by a grant from the Wellcome Trust, focusing on Giant Cell Arteritis and Polymyalgia Rheumatica. The roadshows are going to take place at research hubs around the country. …

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New self-management event in Bury St Edmunds

Arthritis Action will be holding a new two day Self-Management Event on 15th and 16th March 2017 in Bury St Edmunds.

We aim to help our attendees take control of the symptoms of their arthritis, covering topics such as:

  • The impact of physical therapies
  • How you can best manage your pain
  • The benefits of exercise and a healthy diet
  • Ways to work in partnership with healthcare professionals

This event  will be free of charge and refreshments will be provided, and is open to all.…

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New Self-Management Event in Southampton

SME Southampton

Arthritis Action will be holding a new, two-day Self-Management Event on 14th and 15th February 2017, in Southampton.

We aim to help our attendees take control of the symptoms of their arthritis, covering topics such as:

  • The impact of physical therapies
  • How you can best manage your pain
  • The benefits of exercise and a healthy diet
  • Ways to work in partnership with healthcare professionals

This open event will be free of charge and refreshments will be provided.…

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New Friends Scheme for UK Gout Society

Logo-for-UK-Gout-SocietyThe UK Gout Society has launched a new Friends’ scheme through which it aims to provide information and support to more people living with gout in the UK.

For an annual fee of £18, Friends of the Charity will receive a subscription to our quarterly Gout e-News alert and selected discounts on books etc.

To find out how to become a Friend of the Charity, follow the link : http://www.ukgoutsociety.org/support_us…

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Lack of NHS Resources in Wales Could Be Causing Delays to Arthritis Diagnosis and Treatment

Joint release from: British Society for Rheumatology and National Rheumatoid Arthritis Society

Rheumatology and arthritis societies raise concerns for arthritis services in Wales and call for more support to improve long-term patient outcomes.

The number of patients referred to rheumatology departments in Wales has increased by 66% since 2012, but resources for treatment are not keeping up with the demand, say patients and clinicians. As a consequence, new patients are waiting longer to be seen and treated and existing patients are struggling to secure follow up appointments and self-management advice.  …

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Helping people to escape the misery of chronic joint pain ­– A musculoskeletal network in action.

by Professor Michael Hurley, Clinical Director,
Musculoskeletal Programme, Health Innovation Network South London

Along with many others in the musculoskeletal community, I get a tired of hearing about other long term conditions which continuously feature in the headlines – both in national media and NHS policy. Poor old ‘common’ joint pain is neither sexy nor headline-grabbing, but we all know how much it impairs the quality of life – none more so than the people who suffer it.

In the musculoskeletal programme of the Health Innovation Network (South London’s Academic Health Science Network http://www.hin-southlondon.org/clinical-areas/musculoskeletal…

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