Working in partnership with patients to extend the benefits of pain management programmes

Guest blog by Dr Michelle Farr, Research Fellow at University of Bristol and the National Institute for Health Research Applied Research Collaboration West (NIHR ARC West)

People who experience long-term pain have important insights and strategies that help them manage pain in everyday life. However, they are often not invited to share their knowledge and skills to inform the services that are meant to support them. ARMA has been highlighting the importance of working in partnership with patients and how co-production, where patients and professionals work together, can improve pain services.…

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Pain forecast: building a predictive model of pain

Guest blog by Claire Little, PhD researcher at Centre for Epidemiology Versus Arthritis, University of Manchester

People living with arthritis and chronic pain conditions know that pain is a fluctuating and unpredictable symptom 1. This can cause uncertainty and fear about the future severity of pain 2. I am working on a project to build a ‘pain forecast’ that would provide predictions of future pain. Like the weather forecast, or economic forecasts, this aims to produce predictions about pain in the near future.…

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Raising MSK conditions up the agenda has never been more important…

… that’s why we’ve joined ARMA

Guest blog by Craig Jones, CEO of the Royal Osteoporosis Society

Later this summer the Royal Osteoporosis Society (ROS) will launch its manifesto for a future without osteoporosis. This marks the beginning of a new chapter where we’ll turn up the volume on the fight against osteoporosis through campaigning and advocacy.

Our hospital-by-hospital approach to fostering Fracture Liaison Services (FLS) since 2015 has paid off, with 12.1m more people now having access to the gold standard for secondary fracture prevention.…

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Guest blog: Supporting people living with long term pain

What does the recent NICE guidance mean for pain clinics in this country?

Personal view from Alf Collins, Clinical Director for Personalised Care, NHS England and NHS Improvement

The recently published NICE guidance re: chronic pain management 1 has enjoyed a mixed reception. The purpose of the guidance is to improve the lives of people living with long term pain by improving the quality of pain management services across the NHS but many commentators, patient groups and national professional bodies have not been slow to criticise it, citing that implementation could lead to significant patient harm.…

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Guest blog: The value of charity coalitions

by Charlotte Augst, Chief Executive, National Voices

If the pandemic has taught us anything, it is that the NHS cannot succeed on its own. Whether it’s people’s behaviours around masks or hygiene, the contribution of volunteers to keeping people safe and connected, or partnerships with communities and their organisations to reach people who might otherwise lose out on services (such as the vaccine) – the NHS needs partners.

Here at National Voices, we obviously think mostly about the partnerships that are required to help both the NHS and the voluntary, community and social enterprise sector (VCSE) to reach more people more effectively.…

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Guest blog: A New Deal for Prevention

by Sebastian Rees, Researcher, Reform.

At Reform, we’ve long advocated for prevention to be central to any proposals for building a healthier Britain. Tackling the drivers of ill health early reduces demand on health care services further down the line, easing pressures on our already strained system. Far more importantly, averting or delaying the development of preventable conditions allows people to live for longer in better health. If the goal of our health system is to help people build happier, healthier lives, prevention must remain a priority. …

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Living with a stranger – ‘The Uninvited Guest’ in the time of COVID

Guest blog by Emily Earle

Emily’s 12 year old daughter was diagnosed with JIA in 2010 at the age of 2. Emily now volunteers for the charity ‘CCAA – Kids with Arthritis’ running their local area network of support groups. CCAA offers support to children with JIA and their families across England and Wales.

Life with a child who has a medical condition can be challenging at any time. Families usually manage because we have to. Quite simply, we do not get the choice to say: ‘No thanks!…

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Guest blog – Necessity: the mother of invention!

by Clare Jacklin, Chief Executive, National Rheumatoid Arthritis Society (NRAS)

We have been in the grip of this pandemic now for over a year and I’m sure you are all feeling, like me, rather fed up of it! Perfectly understandable, but we must not lose sight of that light that is at the end of this dark tunnel; and we ARE getting ever closer. The one thing I am struggling to comprehend is this talk of ‘going back to normal’. It is NORMAL that got us into this situation in the first place!…

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Guest blog: Representation in the workforce

by Hannah Oladugba, Physiotherapist, ACPT Network

When I first decided to become a physiotherapist, I looked to my search engine (I believe this was ‘ASK Jeeves’ at the time) for as much information on the profession as possible. I quickly found that physiotherapy is, traditionally, a profession that has long been perceived as Caucasian and middle class. And even in more recent years, research has shown that, from 2017 to 2018, only 19% of all UK physiotherapy programme student enrolments were from a Black and minority ethnic background.…

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Guest blog: A rollercoaster year in MSK

by Andrew Bennett, National Clinical Director for Musculoskeletal Conditions NHS England and NHS Improvement

It’s been a year since I was fortunate to attend the annual ARMA lecture at the canal museum in London and enjoyed a fantastic talk by Brendan Stubbs about physical activity and mental health. New to the role of National Clinical Director for MSK, this was the first time I met Sue Brown the CEO of ARMA, as well as number of other colleagues from the MSK world.…

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