Category: Collaboration

Co-production works well locally – let’s ensure it happens nationally

Guest bloggerGuest blog by Rachel Power, Chief Executive, Patients Association

At the Patients Association, we’ve seen the transformative power of shared decision making and patient partnership.

Work we’ve done in partnership to empower patients with musculoskeletal conditions by giving them the tools to make informed treatment choices demonstrated how patient partnership delivers for patients and the NHS.

That project with patients, healthcare professionals, the Patient Information Forum and Nottinghamshire ICB focused on removing barriers to shared decision making. As a collective, participants reviewed patient resources – some already developed, others in development – designed to support patients’ decisions.…

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Co-production in action – voices heard and lessons learned

Guest blog, with thanks to the panellists Claire Blamey, Gareth Gault and Shabir Aziz for their feedback.  

As we prepare for publication of the report of the ARMA Inquiry into MSK and health inequalities, we look back at how the voices of those with lived experience of MSK conditions have been vital – from the initial evidence gathering to discussion of the dissemination plan.  

At the inception of the inquiry process we recruited a panel of paid lived experience experts who brought their unique perspectives of different MSK conditions, backgrounds, and experience of the health system and MSK services to discussions.…

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Chronic pain: What matters to you?

This research aims to better understand what it means to live with and manage chronic pain, from everyone’s perspective. You now have the opportunity to say what matters to you by participating in this survey.

By answering the questionnaire, you can help overcome some of the current uncertainties and challenges of chronic pain management. Your knowledge will enable the researchers to collaborate closely with patients and patient organizations to develop better care that are meaningful for people living with chronic pain and their families.…

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NHSE & RCP Outpatients Strategy Survey

patient surveyThe Patients Association is working with NHS England and the Royal College of Physicians in a collaborative effort to improve outpatient services. They are keen to hear from people who have recently experienced NHS outpatient services. They have launched a survey to gather the experiences of recent users of outpatients, which you can find by clicking on this link.

If you or someone you know will find it difficult to answer this survey online, please call the Patients Association Helpline on 0800 345 7115 who will run through the questions with you over the phone.…

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getUBetter shortlisted for HSJ Partnership of the Year award

HSJ bannerAfter deliberations on a record-breaking 1456 entries and 223 projects, teams and organisations have been shortlisted for the HSJ Awards 2023. One of the finalists is getUBetter, ARMA’s associate member organisation.

getUBetter’s work with South West London Integrated Care System and South West London NHS to deliver digital self-management support to their population has been shortlisted for the Partnership of the Year award at the HSJ Awards 2023, recognising their commitment to collaborative co-design with patient at the centre.

Research opportunities with Orthopaedic Research UK

Orthopaedic Research UKOrthopaedic Research UK aims to fill the most important gaps in research funding in bone, joint and muscle well-being. They fund innovative research projects in the UK that expand knowledge, improve patient outcomes and pioneer new forms of diagnosis and treatment.

To find out more about their latest joint funding opportunities for the orthopaedic and MSK community please visit the joint partnership funds page on the oruk.org website.

Axial SpA and Inflammatory Bowel Disease

gut painIn June, in collaboration with Crohn’s & Colitis UK, and with support from the British Society for Gastroenterology (BSG), NASS launched the findings from their landscape review into diagnosing axial SpA in people living with inflammatory bowel disease.

As part of the NASS Act on axial SpA campaign, lunched in June 2021, we developed a 22-question survey in conjunction with key clinical advisors, Crohn’s & Colitis UK and BSG. There are two major themes emerging from this analysis to help ensure swift recognition, identification, and referral of suspected axial SpA: education and joint working with rheumatology.…

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Musculoskeletal health hub pilot expanding

Musculoskeletal health hub pilot expands to 100 sites as MSK cost to UK hits £5bn a year

The second phase of the UK’s MSK health hub pilot will see the service rolled out to an additional 85 swimming pools and leisure centres from February 2023.

The scheme – a collaboration between UK Active, Good Boost, Orthopaedic Research UK, Escape Pain and Arthritis Action – launched last year across 15 sites to support individuals suffering from musculoskeletal health problems. As well as a presence in physical locations, it also provides users with access to a tablet and app for customised guidance and at-home support.…

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Trailblazing MSK pilot expanding to 100 leisure centres

ukactive’s pilot to transform leisure centres, swimming pools, and gyms into musculoskeletal (MSK) health hubs has been expanded to 100 sites across the UK, as the sector grows its services for the community.

The programme behind the pilot has been designed and provided in collaboration between Good Boost, ukactive, Orthopaedic Research UK, ESCAPE-pain, and Arthritis Action – demonstrating how the fitness and leisure sector can work together to reduce the burden on the healthcare system. Read the full press release.