Updated LUPUS UK Publications

In the past month LUPUS UK has published updated versions of three of our information leaflets/booklets. These publications were updated to ensure that they meet the requirements of the Information Standard and reflected the most up-to-date evidence.

Physical copies are available to order free of charge from LUPUS UK National Office, or you can read/download them on our website by following the hyperlinks:

 

Contribution to the Scottish Medicines Consortium’s (SMC) consultation of the use of Benlysta (belimumab) in SLE

Benlysta (belimumab) is due to be discussed by the SMC and a decision made for its use by certain SLE patients in Scotland.…

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DMARDs guideline for prescriptions and monitoring

The latest guidance is out for the prescription and monitoring of non-biologic disease-modifying anti-rheumatic drugs (DMARDs). It’s aimed at primary and secondary care practitioners managing patients with rheumatic disease in the UK.

Significant updates include:

(1) Harmonisation of monitoring schedules, recommending that all DMARDs that require laboratory monitoring follow the same frequency of testing

(2) More nuanced discussion of the use of methotrexate in lung disease is provided, drawing from the two large meta-analyses recently published.

(3) Significant change is made regarding the evaluation of retinal toxicity for hydroxychloroquine users:

Lead author Dr James Galloway, Senior Clinical Lecturer at King’s College London says:
“These updates have two major focuses: firstly, streamlining monitoring schedules wherever possible, given the myriad of different regimens across drugs, and most of the schedule variations were somewhat arbitrary in their origins; second, to review and incorporate the evidence base available, acknowledging several key publications that have emerged since the first guidance.…

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Providing physical activity for people with musculoskeletal conditions

aruk thumbThis month Arthritis Research UK launched the new report ‘Providing physical activity interventions for people with musculoskeletal conditions’ at the Local Government Association/Associated Directors of Public Health conference on the 9th of March, where we also ran a policy session outlining the work in the report and the wider relationship between physical activity and musculoskeletal health.

Joining us at the event were speakers from Public Heath England, the Royal Borough of Greenwich and an expert patient on exercising with arthritis and we were very pleased that delegates from a wide range of professional backgrounds attended the session.  …

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World Federation of Chiropractic Assembly

image of Scott HaldemanARMA trustee, Matthew Bennett, attended the World Federation of Chiropractic (WFC) Assembly in Washington, a meeting of the leaders of the worlds’ chiropractic associations. A common theme was the growth of the profession. In the Republic of Congo, with just two chiropractors for example, there is an urgent need for development and the WFC does a great job supporting emerging professions in countries like this.

The Assembly was told about the WFC’s work at the WHO. The WFC is a recognised Non-Governmental organisation (NGO) at the WHO – the only one with a focus on spinal health.…

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Bisphosphonates

There have been reports in the media recently about a new study highlighting that patients taking drugs like alendronate for osteoporosis might weaken rather than strengthen bones. The National Osteoporosis Society, with our expert clinical advisers, has produced a response to this so that people with the condition can make an informed decision about their treatment. Radio 4’s The Today Programme and Inside Health have both covered this issue, and as a charity we have received calls from people with osteoporosis asking about treatments.…

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Fibromyalgia Awareness Day is Friday 12th May

Organise a coffee and cake morning on Friday 12th May for Fibromyalgia Awareness Day!

The 12th May is recognised as the international fibromyalgia awareness day. Charities and groups around the world will be organising events to increase awareness of the condition. Why not celebrate with us and raise awareness by organising a coffee and cake event? This could be with your family and friends in your home, in your workplace, in a local cafe or even a picnic in the park.…

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PIER showcases good practice to NHS delegation

A group of senior delegates from the NHS Health Literacy Collaborative Group visited the Haywood Hospital in late February to look at the Patient Information and Resource Centre, (PIER) and see what effect its presence has had on the health literacy of patients and carers using the hospital.

Based within the outpatients’ area of the Haywood Hospital, the PIER, which opened in October 2015, provides patients, their families and carers with access to information on arthritis and related conditions. Visitors have access to a range of printed and online material in modern comfortable surroundings.…

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SEM services can deliver much needed MSK cost savings to the NHS

Disease Risk Reduction via Regular Physical Activity
Heart Disease 40%
Stroke 27%
Colon Cancer 25%
Breast Cancer 24%
Type 2 Diabetes 30%
Hypertension 50%
Source:  A Fresh Approach in Practice – NHS North West and the FSEM UK 2011

The Faculty of Sport and Exercise Medicine (FSEM) UK has responded to the Scottish Parliament Health and Sport Committee Preventative Agenda Inquiry, emphasising the risk reduction for many common conditions and the cost savings which can be made by greater use of Sport and Exercise Medicine (SEM) services in the NHS.…

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A Message to My Younger Self

The National Osteoporosis Society is launching “A Message to My Younger Self” – an awareness campaign about keeping bones strong and health. It begins on 12th April 2017 and runs through to World Osteoporosis Day on 20th October. NOS want the generations to have a conversation about healthy bones, to talk about the steps that can be taken to make sure bones are strong, and to give a voice to the millions of people with the condition.

The campaign is being fronted by Liz Earle who is personally concerned about the impact of social media on the eating habits of her teenage children, backed-up by research that we have conducted showing that 20% of 18-24 year olds have reduced or completely cut out dairy from their diets, which could potentially be storing up problems for them in later life.…

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Musculoskeletal toolkit launched to help employers support people with musculoskeletal conditions

ARMA worked with Public Health England and Business in the Community to develop a new toolkit for employers in the workplace, which launched at the Health and Wellbeing at Work Conference in the NEC today (7 March 2017). Musculoskeletal conditions are an important consideration for businesses as they are a leading cause of pain and disability in the UK, affecting many employees.

The toolkit draws together information for employers to support staff in the prevention, early identification, management and adaptation for people affected by musculoskeletal conditions.…

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