It’s been a very busy month for the HMSA with the release of new EDS nosology. We’ve prepared some material for people unsettled by these developments in classification: a letter which can be printed and given to medical professionals explaining what the changes mean, and an update for clinicians that contains a simplification of the changes for people working in the MSK field. Both can be found on our website sidebar, appended to an interview with our HSD Ambassador, Hannah Ensor, here: hypermobility.org/hsdandme…
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Category: Arthritis News
Ironcause – 52 Middle Distance Triathlons
My name is Keith Diaper and I am 40 year old husband and father from Hedge End in Southampton. I’m an electrician and a keen triathlete.
Starting on Saturday 1st April 2017 I will be doing one middle distance triathlon every Saturday and Sunday for six months – so I will be covering 3655.6 miles in total, over 52 events. That’s about the same distance as travelling from Southampton to New York.
A Middle Distance Triathlon is a 1.2 mile swim, 56 mile cycle and then a 13.1 mile run.…
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The NHS Mandate 2017-18
The Government’s Mandate to NHS England for 2017-18 has been published. This sets out annual deliverables against the seven objectives to 2020. All of these objectives are relevant to musculoskeletal services, but one has been added which makes specific reference to MSK data. This is in relation to the Government’s goal to reduce the disability employment gap and says the NHS should:
“Work with Government to identify opportunities for regular collection of data about incidence, prevalence, clinical activity and outcomes of musculoskeletal patients and services in England.”…
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Rheumatology Forum at the RCN Congress
The Royal College of Nursing Congress runs from 13th – 17th May in Liverpool Arena & Convention Centre.
The RCN Rheumatology Forum will be facilitating a fringe meeting on the 16th May 2017 at 1pm, at which Rheumatology Nursing will be showcased to a wide range of nurses, working in a wide variety of health care settings. All those interested are welcome to attend.
Updated Biologic therapies practitioner
The fourth edition of this guidance document will soon be published online.…
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Updated LUPUS UK Publications
In the past month LUPUS UK has published updated versions of three of our information leaflets/booklets. These publications were updated to ensure that they meet the requirements of the Information Standard and reflected the most up-to-date evidence.
Physical copies are available to order free of charge from LUPUS UK National Office, or you can read/download them on our website by following the hyperlinks:
Contribution to the Scottish Medicines Consortium’s (SMC) consultation of the use of Benlysta (belimumab) in SLE
Benlysta (belimumab) is due to be discussed by the SMC and a decision made for its use by certain SLE patients in Scotland.…
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DMARDs guideline for prescriptions and monitoring
The latest guidance is out for the prescription and monitoring of non-biologic disease-modifying anti-rheumatic drugs (DMARDs). It’s aimed at primary and secondary care practitioners managing patients with rheumatic disease in the UK.
Significant updates include:
(1) Harmonisation of monitoring schedules, recommending that all DMARDs that require laboratory monitoring follow the same frequency of testing
(2) More nuanced discussion of the use of methotrexate in lung disease is provided, drawing from the two large meta-analyses recently published.
(3) Significant change is made regarding the evaluation of retinal toxicity for hydroxychloroquine users:
Lead author Dr James Galloway, Senior Clinical Lecturer at King’s College London says:
“These updates have two major focuses: firstly, streamlining monitoring schedules wherever possible, given the myriad of different regimens across drugs, and most of the schedule variations were somewhat arbitrary in their origins; second, to review and incorporate the evidence base available, acknowledging several key publications that have emerged since the first guidance.…
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Providing physical activity for people with musculoskeletal conditions
This month Arthritis Research UK launched the new report ‘Providing physical activity interventions for people with musculoskeletal conditions’ at the Local Government Association/Associated Directors of Public Health conference on the 9th of March, where we also ran a policy session outlining the work in the report and the wider relationship between physical activity and musculoskeletal health.
Joining us at the event were speakers from Public Heath England, the Royal Borough of Greenwich and an expert patient on exercising with arthritis and we were very pleased that delegates from a wide range of professional backgrounds attended the session. …
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World Federation of Chiropractic Assembly
ARMA trustee, Matthew Bennett, attended the World Federation of Chiropractic (WFC) Assembly in Washington, a meeting of the leaders of the worlds’ chiropractic associations. A common theme was the growth of the profession. In the Republic of Congo, with just two chiropractors for example, there is an urgent need for development and the WFC does a great job supporting emerging professions in countries like this.
The Assembly was told about the WFC’s work at the WHO. The WFC is a recognised Non-Governmental organisation (NGO) at the WHO – the only one with a focus on spinal health.…
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Bisphosphonates
There have been reports in the media recently about a new study highlighting that patients taking drugs like alendronate for osteoporosis might weaken rather than strengthen bones. The National Osteoporosis Society, with our expert clinical advisers, has produced a response to this so that people with the condition can make an informed decision about their treatment. Radio 4’s The Today Programme and Inside Health have both covered this issue, and as a charity we have received calls from people with osteoporosis asking about treatments.…
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Fibromyalgia Awareness Day is Friday 12th May
Organise a coffee and cake morning on Friday 12th May for Fibromyalgia Awareness Day!
The 12th May is recognised as the international fibromyalgia awareness day. Charities and groups around the world will be organising events to increase awareness of the condition. Why not celebrate with us and raise awareness by organising a coffee and cake event? This could be with your family and friends in your home, in your workplace, in a local cafe or even a picnic in the park.…
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