Category: Arthritis News

Launch of EULAR`s Edgar Stene Prize Competition 2019

On behalf of Nele Caeyers, Chair of the EULAR Standing Committee of People with Arthritis/Rheumatism in Europe (PARE); Dieter Wiek, EULAR Vice President, representing PARE; and Polina Pchelnikova, Working Group leader of the Edgar Stene Prize; the EULAR secretariat is delighted to announce the call for entries for the Edgar Stene Prize Competition 2019.

People with rheumatic and musculoskeletal disorders are invited to write about their personal experiences submitting essays on the topic of:

“My ideal employer – Work without barriers for people with RMDs”

Please find more information in the attached documents [both PDFs]:

Please take a careful look at the deadlines and entry rules mentioned in the respective documents.…

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Are we serious about reducing health inequalities?

Guest blog by Ms. Nuzhat Ali, National MSK Lead, Public Health England

Health inequalities are avoidable, unjust differences in people’s health that are persistent and difficult to shift, until and unless we actively focus on them as a society and a whole system.

People living in the most deprived areas in England can expect to spend nearly 20 fewer years in good health compared with those in the least deprived areas. The trajectory and the scale of the inequity worry me for at least three reasons – it is:

  • A societal injustice, one that has serious consequences for us all in many ways
  • A factor in slowing down life expectancy and healthy life expectancy
  • Increasing demand for health care which equates to increasing costs

Health is dependent on so much more than healthcare.  …

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MSK services survey – Please let us know what is happening locally

As part of our Clinical Networks Project, ARMA wants to find out what is happening to improve MSK services across England in order to see how we can best target our support for improvements. Please let us know what is happening in your area by completing this short questionnaire, which should take only five minutes to complete. The information is anonymous and we won’t name individual CCGs or STPs.

The report on the findings will give a national picture of what is happening and help all those working to improve services better target their work.…

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New framework launched to support early access for musculoskeletal conditions

Rapid access to the right care and supporting patients to be fully involved in their care is at the heart of a new capabilities framework launched today (31/07/2018) by NHS England, Health Education England, Public Health England, Skills for Health and the Arthritis and Musculoskeletal Alliance (ARMA). The Musculoskeletal Core Capabilities Framework, aimed at practitioners who will be the first point of contact for people with musculoskeletal conditions, sets out to support improved access to care and ensure quality outcomes for patients.…

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Delay to diagnosis in musculoskeletal disease

Introduction

Across a range of MSK conditions there is evidence of significant delays to diagnosis which result in avoidable morbidity and mortality. GPs have a critical role to play in reducing time to diagnosis. This article looks at the delays, their impact, and the resources available to GPs to support their referral decisions. Our simple message is #ThinkRheum.

Delay to diagnosis

Significant delay from symptom onset to diagnosis has been seen across a range of MSK conditions: an average of 6.4 yeas in Lupus [1], 8.5 years in axial spondyloarthrtis (axial SpA) [2] and an estimated 10 years in Ehlers-Danos syndromes (EDS).…

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From running to professional support: The role of the voluntary sector in MSK

About a year ago I joined parkrun and I still have the enthusiasm of a new convert. It’s a great way to start the weekend, running in a park with about 300 other people, improving your MSK health as you go, and then coffee and a chat after. So I was delighted to hear that parkrun UK and the Royal College of GPs have launched an initiative encouraging GP practices to become ‘parkrun practices’. GPs in this film talk about why they take part in parkrun and suggest it to patients.…

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Help develop the NICE guideline on technology-based ways of changing people’s behaviour

The National Institute for Health and Care Excellence (NICE) produces guidance on the most effective ways to prevent, diagnose and treat disease and ill health, and provide social care support. NICE guidance is based on research evidence and takes into account the views of people working in or using relevant services, and other stakeholder groups.

NICE are currently looking for people who have used technology to change their behaviour and improve their health and wellbeing, as well as their carers and those who advocate on their behalf (usually referred to as ‘lay members’ at NICE).…

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NASS welcomes QS for Spondyloarthritis

NASS welcomes the publication by NICE of a set of Quality Standards for Spondyloarthritis. Now we need to ensure that they are implemented effectively across the country so that every AS patient, every time, gets early diagnosis and high quality care.

The NICE Quality Standard for Spondyloarthritis covers four areas:

  • Adults with suspected axial or peripheral spondyloarthritis are referred to a rheumatologist.
  • Adults with suspected axial spondyloarthritis and an X-ray that does not show sacroiliitis have an MRI using an inflammatory back pain protocol.
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Winners announced for European patient-driven pain grant

The inaugural Brain, Mind and Pain Grant announced its winners in June, naming three innovative, patient-centred projects:

  • Master Your Pain by Groningen University – an e-health platform to help patients with rheumatic pain self-manage their symptoms
  • ASPERGA Association for their prototype auditory aid that aims to reduce sensory pain in people with autism spectrum disorder
  • MyBrainNet by Dystonia Europe – a central platform for neurological brain diseases, providing information to patient groups and patients to help improve their quality of life.
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