NRAS Work survey

In July and August 2020, NRAS ran a survey asking about the impact of the Covid-19 lockdown on the working lives of people living with rheumatoid arthritis or another form of inflammatory arthritis.

The survey received 348 responses and a short report will be published next month. The overall picture is a concerning one: people reported that their career opportunities, in-work support and the understanding they experienced from colleagues and employers dropped slightly during lockdown. Asked about their expectations for the future, many expected this trend to get worse.…

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Co-production: patients and healthcare professionals improving care together

Last month’s newsletter included a blog about how NHS England/Improvement is working in partnership with people with lived experience of MSK conditions to “co-produce” work on MSK services. In September, over fifty people joined our tweet chat on co-production. In the course of an hour, professionals and people with MSK conditions engaged in lively discussion and debate about what helps coproduction, what gets in the way and good examples in practice. A summary of the discussion has now been published.

Coproduction means that all involved feel engaged in a collaborative healthcare approach with a shared commitment to quality, where everyone is treated with respect and dignity and everyone feels that their needs matter.…

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NHS Change Challenge initiatives published

The NHS Change Challenge used crowdsourcing to identify almost 200 initiatives introduced during lockdown which proved beneficial. The project is now working to write these up in more detail so that we can publish them back onto the site for further comments and discussion. Due to the overwhelming responses received, the focus initially is on writing up the highest-scoring ideas based on impact and feasibility within each challenge area. 

The first two ideas have been published on the site. Keep checking for further ideas which will be published over the next few weeks.

Pandemic Patient Experience

The Patients Association has published a report of patient experiences of Covid-19. The results show the massive toll on all patients of the coronavirus pandemic and the emergency measures taken in response to it. Some patients reported good ongoing care, and were impressed by the way their local communities came together to support them.

The report contains recommendations for the next phase of the emergency response, and also a call for the health and care system to be built back better after the pandemic: the current emergency footing cannot be the basis for the ongoing relationship between patients and the NHS.…

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Bone and Joint Week 2020 Resources

This Bone and Joint Week, 12-20 October 2020, good musculoskeletal health is now more important than ever. Whether you have a musculoskeletal condition, or you’re a commissioner, GP, health professional or employer, find resources on this page for help with musculoskeletal health.

People with bone, joint and muscle conditions (musculoskeletal conditions)

Arthritis Action: https://www.arthritisaction.org.uk

CCAA Kids with Arthritis: https://www.ccaa.org.uk/

Ehlers Danlos Support UK: www.ehlers-danlos.org

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BOA Patient statement regarding COVID-19 and elective care

The British Orthopaedic Association has published their latest patient statement for those people currently awaiting elective surgery, many of whom are experiencing uncertainties and difficulties. Growing waiting lists are affecting all planned surgery, but particularly orthopaedics (bone and joint treatment) which has the largest overall waiting list of any individual specialty.

The BOA has created this statement to provide some information and guidance to support patients during this time. If you could please pass this on to help reach those affected it would be most appreciated.…

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New Video for South Asian Communities about COVID-19

For some time now NRAS and their Health Professional Medical Advisor in this field, Dr. Kanta Kumar, (Lecturer at the University of Birmingham), have wanted to be able to provide a tailored service and support for the UK South Asian population. One of NRAS’s long term strategic aims is to make our services more visible, relevant and accessible to those who need them most, particularly those communities who, for reasons of language, culture and/or health literacy skills may be less able to negotiate about their healthcare needs or successfully navigate the health system.…

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The Good Boost Home App

Responding to the pandemic with co-design to create digital solutions.

Good Boost is a social enterprise which transforms public swimming pools into therapeutic spaces for people living with MSK conditions. We create individually-tailored aquatic rehabilitation programmes using AI-powered software on waterproof tablets. We’ve been developing rehabilitation technology for the last 5 years since starting up as a community research project in Oxford, UK.

We’re working to make sure we continue supporting people living with MSK conditions while minimising risk of transmission” Ben Wilkins, CEO.…

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ESCAPE-pain: using education and exercise to support people with chronic joint pain

Health Education England e-Learning for Healthcare (HEE e-LfH) has worked with ESCAPE-pain and the Health Innovation Network to develop two e-learning resources, aimed at helping healthcare professionals and exercise instructors understand the principles behind the ESCAPE-pain programme – facilitating group education and exercise sessions for people living with chronic joint pain and learning how the programme may be implemented in their organisation.

What is the ESCAPE-pain programme?

ESCAPE-pain is an evidence-based and cost-effective group rehabilitation programme for people with chronic joint pain.…

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