by Ehlers-Danlos Support UK
We were very disappointed to be told just before Christmas that the Royal College of GPs (RCGP) wanted to withdraw the Ehlers-Danlos syndromes (EDS) toolkit for GPs. The College planned to remove the toolkit from the RCGP website at the end of January. The RCGP cited pressure on its limited resources as a result of the pandemic and contention around the toolkit from various sources as reasons for its decision. While we understood that the College wanted to prioritise use of its resources, the move would have been a huge backwards step for people with EDS and related conditions.…
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