Author: Garreth

Upcoming NASS self-management sessions

The next NASS Facebook Live sessions:

  • Thursday 23 February 2023, 18.00: High-Intensity Interval Training session with Josh Poole, Senior Physiotherapist; and
  • Wednesday, 1 March, 13.00: Talking to friends and family about your axial SpA with Zoë Clark, NASS Senior Self-management Programme Officer.

To watch live, visit the NASS Facebook page at the time of the live session. (If you can’t see the video, refresh your page.)

The NASS Facebook Live sessions have been running for about three years now, helping people to manage their axial SpA (AS) in unprecedented times and beyond.…

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Reumavid study

Reumavid is a questionnaire investigating the consequences of the covid-19 pandemic on people living with rheumatic conditions in United Kingdom.

The survey is aimed at people living with rheumatic diseases who are experiencing confinement due to COVID-19.

Its aim is to describe the consequences of the pandemic on the evolution of the disease, support services, healthcare, the quality of life and the emotional well-being of people living with rheumatic diseases.

This study is promoted by National Axial Spondyloarthritis Society (NASS), National Rheumatoid Arthritis Society (NRAS), and Arthritis Action, and conducted by the Health & Territory Research (HTR) of the University of Seville, with the support of Novartis Pharma AG.…

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Global rheumatology patient survey – Covid 19

Pain UK would like to alert you to the work of the Covid-19 Global Rheumatology Alliance, an organisation established to “collect, analyze and disseminate information about COVID-19 and rheumatology to patients, physicians and other relevant groups to improve the care of patients with rheumatic disease.”

Rheumatology patients are invited to complete a patient survey, whether or not they have been diagnosed with COVID-19. A worldwide consortium of doctors, scientists and patient groups are seeking your views on the current situation. Tell them how it is for you via this link.

Arthritis Action Webinar “COVID-19 and Arthritis: Live Q&A”

Arthritis Action invites you to a webinar dedicated to addressing coronavirus concerns for people with arthritis.

“COVID-19 and Arthritis: Live Q&A” will take place on Thursday 18 June 2020, 11am – 12pm. 

The webinar will be presented by Arthritis Action CEO, Shantel Irwin, who will be asking their Medical Advisor, Dr Wendy Holden, Consultant Rheumatologist at North Hampshire Hospitals, patients’ most frequently asked questions about COVID-19 and Arthritis.

Anyone interested can register here. Attendees are invited to submit questions relating to this topic on or before Friday 5 June 2020, by emailing onlinesme@arthritisaction.org.uk…

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NRAS New2RA and Chatbot

New2RA Right Start

The NRAS New2RA Right Start service supports people newly diagnosed with Rheumatoid Arthritis to understand their diagnosis and how it is likely to affect them. Getting the right, supportive start can help people to make adjustments to their behaviour, lifestyle and health beliefs and understand why self-management is essential, and learn how to make those important first steps to managing their disease effectively.

Further information can be accessed on the NRAS New2RA Right Start service page. This service is essential during this time for those newly diagnosed during the COVID-19 crisis, offering extra support when appointments are being delayed.…

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Could you be an ARMA trustee?

Nominations for the election of ARMA trustees are open!

There are three vacancies and we encourage you to apply. The Arthritis and Musculoskeletal Alliance (ARMA) provides a collective voice for the arthritis and musculoskeletal community in the UK. Our vision is that musculoskeletal (MSK) disorders are a priority in policy and practice in the UK. We work collectively and collaboratively with our members – 30 organisations, ranging from specialised support groups for rare diseases to major research charities and national professional bodies.…

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Working Together conference in November

First ever ARMA multi-disciplinary MSK health conference

Working Together to change the face of MSK

30 November 2020

Venue: Cecil Sharp House, Camden, London

ARMA holds its first ever multi-disciplinary MSK health conference – Working Together to change the face of MSK.

This one-day conference is a multi-disciplinary event covering some of the latest trends and practical examples on working together/integrated care for musculoskeletal health, transcending disciplines and boundaries.

The conference will support the delivery of high quality MSK services through a focus on excellent services, from prevention at a population level to excellent specialist services in orthopaedics, rheumatology and pain.…

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NRAS Live and Here for you

NRAS is adapting to these challenging times and has been hosting live broadcasts via Facebook Live and webinars since the beginning of this crisis. You can watch any of the recorded sessions again on the NRAS Live – Ask Your Questions page.

We’ve also launched the Here For You service, linking up people who are in need of a friend during this time of self-isolation. Our trained telephone support volunteers are really able to understand the difficulties people may be facing and the anxieties because they all live with RA themselves.…

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