Upcoming NRAS JIA events

Join NRAS for their first JIA Zoom event: Coping with JIA during COVID-19.
This event is exclusively for parents who have children with JIA.
When: Wednesday 10^th March, 6:30pm-8pm on Zoom.

There will be an update from Debbie Wilson, NRAS Young Persons Project Co-ordinator, an update from Nick Wilkinson, Paediatric Rheumatologist, and a short talk from one of our Young Voices.

Visit this link to sign up.

In April, loin NRAS for a Zoom event for young people living with JIA:
Navigating your Future with inflammatory arthritis

This event is exclusively for young people aged 16-30.…

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BOA Annual Congress 2021 – abstracts now open

Under the theme of ‘Tackling Infection‘, the 2021 BOA Congress will take place 21–24 September 2021 at P&J Live, The Event Complex Aberdeen (TECA).

In a slight change from previous years, BOA abstract submissions – including those from medical students – will open and close on the same dates; the BOA is pleased to announce that abstract submissions are now open and will close on Friday 7 May 2021.

Please note: you do not have to be a BOA member to submit an abstract.…

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X-Factor star learns about axial SpA

Talia Dean meets Dasha and Gillian to learn more about axial SpA (AS)

Singer-songwriter, Talia Dean, made a big announcement in January 2021. In 2020 she was diagnosed with axial SpA (AS). Watch this video as she meets Dasha and Gillian, who live with the disease, and starts her journey towards becoming an #ASWarrior. #TaliasASJourney

See Talia’s story in the BBC article, 15 January 2021:
‘My back pain was misdiagnosed for 15 years – now I can’t dance‘

Welcoming a new member

We are delighted to welcome a new ARMA member, Physio First.

Physio First is a membership trade association of self-employed Chartered physiotherapists. Their organisational statement of intent: to “champion evidenced value based private physiotherapy with Physio First members in the changing healthcare marketplace.”

Read more about Physio Fast on our Membership page.

Key MSK COVID-19 resources

ARMA continues to keep our COVID-19 resources page up to date. There have been some new resources added in recent weeks and others have become more relevant as the pressure on the NHS increases. Here are some of the key resources to be aware of:-

Urgent and Emergency Musculoskeletal Conditions Requiring Onward Referral

The guidance supports primary and community care practitioners in recognising serious pathology which requires emergency or urgent referral to secondary care in a patient who presents with new or worsening MSK symptoms.…

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CEO update: Looking forward together

by Sue Brown, CEO ARMA

Here we are back in lockdown, with the NHS under even more pressure and MSK services severely impacted. COVID-19 response is still dominating the work of ARMA, although we are also progressing plans for other work in 2021. There are some different issues for MSK this time around, and vaccination currently dominates our work. When some people with MSK conditions are vaccinated, the timings of MSK treatment may need to be considered.

I am delighted that ARMA can host a document setting out the principles for these timing decisions.…

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Guest blog – Necessity: the mother of invention!

by Clare Jacklin, Chief Executive, National Rheumatoid Arthritis Society (NRAS)

We have been in the grip of this pandemic now for over a year and I’m sure you are all feeling, like me, rather fed up of it! Perfectly understandable, but we must not lose sight of that light that is at the end of this dark tunnel; and we ARE getting ever closer. The one thing I am struggling to comprehend is this talk of ‘going back to normal’. It is NORMAL that got us into this situation in the first place!…

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Proposed Health Index consultation

The Office for National Statistics is consulting on a new measure for health in England, recognising that the nation’s health is an asset – as important to the economy and wider society as it is to the individual. The proposed health index not only measures how healthy people are today but also looks at the wider social and economic circumstances that will influence our – and the next generation’s – ability to live healthy lives in the future. Tracking these indicators over time provides the opportunity to finally look beyond GDP as a sole measure of national success.…

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Inclusion Health: applying All Our Health

Public Health England
Guidance

Inclusion Health: applying All Our Health

Published 11 January 2021

Published by Public Health England, this guide is part of ‘All Our Health’, a resource that helps health and care professionals prevent ill health and promote wellbeing as part of their everyday practice. The information below will help front-line health and care staff use their trusted relationships with individuals, families and communities to take action on inclusion health.

‘Inclusion health’ is a catch-all term used to describe people who are socially excluded, typically experience multiple overlapping risk factors for poor health (such as poverty, violence and complex trauma), experience stigma and discrimination, and are not consistently accounted for in electronic records (such as healthcare databases).…

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Royal College of GPs and EDS toolkit

by Ehlers-Danlos Support UK

We were very disappointed to be told just before Christmas that the Royal College of GPs (RCGP) wanted to withdraw the Ehlers-Danlos syndromes (EDS) toolkit for GPs. The College planned to remove the toolkit from the RCGP website at the end of January. The RCGP cited pressure on its limited resources as a result of the pandemic and contention around the toolkit from various sources as reasons for its decision. While we understood that the College wanted to prioritise use of its resources, the move would have been a huge backwards step for people with EDS and related conditions.…

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