Author: Garreth

NASS starts the search for new Chief Executive

The National Ankylosing Spondylitis Society are sad to report that after six years with NASS as Chief Executive, Debbie Cook is moving on, out of the medical health sector. During her time with NASS Debbie has overseen the transformation of the charity into one that AS charities around the world aspire to emulate.

Her bold leadership and strong vision, whilst always remaining sensitive to the needs of the membership, have defined NASS’s approach and will set the tone for the future.…

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October is Lupus Awareness Month

We would like to remind everyone that October is Lupus Awareness Month. Throughout the month LUPUS UK will be sharing facts, videos, information and case studies on social media. We would be very grateful to any organisations that can spread the word about our #THISISLUPUS campaign and direct people towards the LUPUS UK website for more information or support.

Three LUPUS UK Factsheets Revised and Updated

Three factsheets have recently been revised and updated to meet the requirements of The Information Standard.

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EDS UK launches free membership and toolkit for GPs

The Ehlers-Danlos Support UK (EDS UK) has launched free membership alongside a brand new website and logo. This is a major change for the charity in its 30th year and is intended to attract new supporters.

The website is kept up to date with news and the latest information on the Ehlers-Danlos syndromes as well as vital support. Have a look here: www.ehlers-danlos.org.

 

The charity is also proud to be working in partnership with the Royal College of GPs this year to create an EDS toolkit for GPs.…

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A Guide to Rheumatology: Parliamentary briefing

In late September, BSR are releasing ‘A Guide to Rheumatology: Parliamentary briefing,’ which seeks to address the challenges and opportunities faced by the rheumatology multidisciplinary team and identify ways to improve the treatment and care received by individuals with rheumatic and musculoskeletal diseases. It highlights the significant difficulties experienced by rheumatology services and the patients they serve: 

  • Waiting times: 38% of patients in England with suspected rheumatoid arthritis were assessed within three weeks of referral.
  • Diagnostic delay: Only 18% of patients in England were referred to rheumatology within the NICE recommended three days of presentation to their GP.
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NHSE/ARMA Webinar & WHO Global Action Plan

NHSE/ARMA Webinar Gains Traction on YouTube

The “Sport, Exercise and Musculoskeletal Training in the NHS” webinar has received almost 300 views on YouTube; please continue to share and promote this important resource which highlights physical inactivity as the largest public health problem of the 21st century and outlines how Exercise Medicine and Musculoskeletal Medicine, delivered within the NHS, can have a positive impact on public health. View the Webinar here.

 

FSEM (UK) Responds to Draft WHO Global Action Plan on Physical Activity

The Faculty of Sport and Exercise Medicine (UK) has responded to a recent consultation by the World Health Organisation on physical activity.…

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Back Care Awareness Week media pack

During Back Care Awareness Week, which this year is targeted at the Education sector, BackCare will be conducting media interviews and distributing promotional packs containing posters, pamphlets/leaflets and flyers.

Their aim is to disseminate guidance and advice on maintaining healthy backs for children during their school life and beyond.

BackCare have issued a press release, which you can download here.

Back Care Awareness Week runs 2 – 6 October 2017.
If you are interested in the information packs, you can get them here.…

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Seeking new trustees for ARMA

ARAM logoThe Arthritis and Musculoskeletal Alliance (ARMA) is seeking to expand our trustee board to bring in people from different professional backgrounds. This is the ideal opportunity for someone who wishes to gain experience of serving at board level with an interest in improving health services for people with arthritis and other musculoskeletal conditions. We are looking for trustees with a business or fundraising background to complement our existing board’s strengths in health provision and charity management.

ARMA is an umbrella body bringing together 35 member organisations, ranging from specialised support groups for rare diseases to major research charities and national professional bodies.…

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NRAS Events in September & October

New RA event in Solihull

NRAS are pleased to announce a FREE Rheumatoid Arthritis event in Solihull taking place on Saturday 16th September. The event takes place at The Village Hotel, Solihull (B90 4JG) and there is plenty of free parking available. Please arrive for refreshments at 13:30 with talks due to start at 13:45 and the event will run until approximately 16:00.
The keynote speaker is Professor Christopher Buckley, DPhil FRCP, Kennedy Professor of Translational Rheumatology, Director of the Birmingham NIHR Wellcome Trust Clinical, Research Facility, Director of Clinical Research, Kennedy Institute of Rheumatology.…

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Older People’s Day – 1 October 2017

Older People’s Day is celebrated on 1 October across the UK to coincide with the United Nations International Day of the Older Person (UNIDOP).

The Arthritis and Musculoskeletal Alliance is proud to join people across the world on Older People’s Day in celebrating the achievements and contributions that older people make to our society.

The CSP has assembled a page of Older People’s Day promotional material, presentations for healthcare professionals containing falls data and custom exercises for older people, and resources to help set up your own OPD event.…

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