The third meeting of the All-Party Parliamentary Group for Axial Spondyloarthritis took place on 29 January at Portcullis House in Westminster. The meeting focussed on the delay to diagnosis and included the launch of our Freedom of Information Inquiry report.
Huge thanks go to our speakers: Zoe Clark who gave an emotional account of her seven year wait for a diagnosis; Dr James Prior from Keele University who summarised the latest research into the area; Rebecca Adshead, physiotherapist at Whipp’s Cross Hospital, who gave an example of good practice, presenting on how the delay to diagnosis had been reduced locally; and finally Dr Raj Sengupta from the Royal National Hospital for Rheumatic Diseases presented the draft Gold Standard to Diagnosis.…
Read more of this article
I’ve read a few things about how hard it is to get going after the festive break, or “blue Monday” part way through January, rumoured to be the most depressing day of the year. I’ve had a very different experience this year with a positive start to 2020. January has involved conversations and planning for our 2020 activities. Lots of positivity from members and stakeholders means I’m optimistic and looking forward to a successful year.
Two new outputs have been published by the Q Lab and Mind on improving care for people living with both mental and physical health problems:
by Clare Jacklin, Chief Executive, NRAS
