APPG Speakers, from left to right: Dr James Prior, Becky Adshead, Dr Raj Sengupta, Zoë Clark.

The third meeting of the All-Party Parliamentary Group for Axial Spondyloarthritis took place on 29 January at Portcullis House in Westminster. The meeting focussed on the delay to diagnosis and included the launch of our Freedom of Information Inquiry report.

Huge thanks go to our speakers: Zoe Clark who gave an emotional account of her seven year wait for a diagnosis; Dr James Prior from Keele University who summarised the latest research into the area; Rebecca Adshead, physiotherapist at Whipp’s Cross Hospital, who gave an example of good practice, presenting on how the delay to diagnosis had been reduced locally; and finally Dr Raj Sengupta from the Royal National Hospital for Rheumatic Diseases presented the draft Gold Standard to Diagnosis.

NASS were also thrilled to launch the report into our Freedom of Information Inquiry which you can read more about on the NASS website.

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