This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.
  • The Arthritis and Musculoskeletal Alliance (ARMA) is the umbrella body for the arthritis and musculoskeletal community in the UK, and our mission is to transform the quality of life of people with musculoskeletal conditions. We have 40 member organisations ranging from specialised support groups for rare diseases to major research charities and national professional bodies.

Tag: Support group

A fun-packed day for all

On Sunday 22nd October 2017, the Department of Rheumatology staff hosted more than fifteen tables for children’s games and crafts – f rom Dominos, colouring to ghostly table lights, and homemade first aid kits – whilst Dads and Mums living with arthritis and connective tissues attended a number of short presentations aimed at providing help and advice:

  • Strategies for coping with a diagnosis and moving forward
  • How to manage family life work and arthritis and connective tissue diseases
  • Incorporating the benefits for staying active and eating healthily

The DaM-it Arthritis project is funded through the Department of Rheumatology’s charitable funds and non-conditional educational grants, offering free events to support the community of Dads and Mums affected by Arthritis and Connective Tissue Diseases and their families.

We recognise that social and emotional peer support is as essential as medical care for people living with these long-term conditions.

The Department of Rheumatology at the Portsmouth Hospital NHS Trust aims to understand the needs of this group and will be hosting a variety of family-centred events in 2018, combining fun and games with an understanding of the conditions and the impact it has on the family. We aim to offer a variety of workshops, classes, groups and activities in a non-residential, home-like setting.

Read the DaM-it-Arthritis info-sheet here.

Jenny Kynes, Head of Nursing, MSK Services, said: “Dads and Mums affected by Arthritis and Connective Tissues diseases need a place where others understand what they are going through. I am so pleased to see and hear about the work of the Rheumatology Department where the Dads and Mums get the opportunity to discuss and question healthcare professionals about subjects important to them.

Alex Fletcher, DAWN coordinator, said: “I was humbled and amazed at listening to the dads and mums’ stories. It gave me a true understanding, in-depth, of the impact living with arthritis and connective tissue diseases has on their lives and the lives of their partners and children. Until then, I only knew of their names from updating the information systems, so meeting them was revealing, touching and often heartwarming. It reminds us to think of a person, not just a condition, and ask what matters most to them?”

LUPUS UK has recently launched its campaign in build up to Lupus Awareness Month 2017 in October. The #THISISLUPUS campaign is encouraging people affected by lupus to share their experiences of the disease and the impact it has on their lives. By opening up about lupus more, we hope to show people something that they may not usually see – we aim to make the invisible visible.

We have decided to re-use a design for our campaign poster because it ties very well with our aims and generated a lot of conversation when we first used it five years ago. The ‘zip’ poster was designed by a lupus patient, Karen Fox, to highlight that lupus is often an invisible disease and that you cannot always know what is going on beneath the surface.

Click here to see the full poster.

The main focus of our campaign is on social media where we are encouraging people to share photos and videos about their experiences with lupus. We will be sharing these throughout October. We will also be using contributions to create a few videos which we hope will raise awareness of the impact lupus can have. You can learn more about this project and how to get involved at http://www.lupusuk.org.uk/thisislupus-video/.

 

East Midlands Lupus Information Day – Nottingham – Saturday 7th October 2017

The next LUPUS UK information day is taking place at De Vere Jubilee Conference Centre, Nottingham University, NG8 1BB on Saturday 7th October 2017. We have a number of expert medical speakers including:

  • Dr Frances Rees
    Consultant Rheumatologist, Nottingham
  • Dr Ian Todd
    Associate Professor and Reader, University of Nottingham
  • Alice Muir
    Lupus Nurse Specialist, Nottingham
  • Mandy McCartney
    Lupus Nurse Specialist, Leicester
  • Mr Dharminder Singh
    Pharmacist, Keyworth Pharmacy

Tickets are free of charge and can be requested online at www.lupusuk.org.uk/east-midlands-info-day-2017.

Upcoming North Wales support group meetings for people with arthritis and chronic pain.

Dates:

7th August 2017
4th September 2017
2nd October 2017
6th November 2017
4th December 2017

Venue:
Holywell Community Hospital, North Wales.
The meeting room is behind the cafe and opposite the reception area.

Open full-size and save the flyer for more details, or see the North Wales Arthritis & Chronic Pain Support Group Facebook page.

Arthritis Action will be holding a two-day Self-Management Event in Coventry on Wednesday 26th April 2017 at 2 pm – 4.30 pm and Thursday 27th April 2017 at 10.00 am – 1.00 pm.

 

We aim to help our attendees take control of the symptoms of their arthritis, covering topics such as:

  • The impact of physical therapies
  • How you can best manage your pain
  • The benefits of exercise and a healthy diet
  • Ways to work in partnership with healthcare professionals

This event will be free of charge and refreshments will be provided, and is open to all. For more information, please contact us at info@arthritisaction.org.uk or 020 3781 7120 and we will be able to provide you with further details.

 

As the nights start to draw in it feels like winter is on its way. Last year we experienced one of our busiest ever winter periods and, whilst our staff coped admirably, our services were under huge pressure. This year we would like to help our local community be ‘winter ready’ and to stay as well as possible.

To read on, open and download the Portsmouth and District ARMA Local Network Update – Winter 2016 as Word doc.

 

The Department of Rheumatology at Portsmouth Hospitals Trust are looking for nimble-fingered knitters to get out the needles and wool and craft us some Funky Gloves. If knitting’s your passion, you could help to create some little amazing funky gloves for our Glove Sale on Wednesday 1st February 2017.

The event will be part of our “Wear your gloves” campaign to raise awareness of Raynauds.

Donations of knitted gloves can be dropped off in the Department of Rheumatology at Queen Alexandra Hospital any time up to the day of the 1st February 2017.

Funds raised will be donated to the Rheumatology Department.

Follow us on Facebook PortsmouthHospitalsCharity
Follow us on Twitter @PorthospCharity

There is local interest in establishing a new NRAS support group in the Stoke area.

An initial meeting will take place on –
Tuesday 8th November 2016, 6:30pm to 8:00pm

This is an open meeting and free to attend with presentations and a Q&A with an expert panel including healthcare professionals from the Rheumatology team at the Haywood Hospital.

Register your interest by calling Kim or Gill on 01628 823524, or email groups@nras.org.uk.

NRAS Stoke on Trent Area
Main Hall,
Haywood Academy,
High Lane,
Burslem,
Stoke on Trent
ST6 7AB