Tag: Support group

Working in partnership with patients to extend the benefits of pain management programmes

Guest blog by Dr Michelle Farr, Research Fellow at University of Bristol and the National Institute for Health Research Applied Research Collaboration West (NIHR ARC West)

People who experience long-term pain have important insights and strategies that help them manage pain in everyday life. However, they are often not invited to share their knowledge and skills to inform the services that are meant to support them. ARMA has been highlighting the importance of working in partnership with patients and how co-production, where patients and professionals work together, can improve pain services.…

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HMSA support groups for August

As you know, the pandemic restrictions have been lifted, but as far as the HMSA group meetings are concerned, HMSA is not ready to risk physical groups as yet, so all local HMSA meetings will still be virtually for a while longer. Given the virtual meetings have given so many more people access to this type of support, even when physical meetings do re-start, they will be combined with virtual meetings, so everyone gets a chance to attend.

The dates for the support groups for August are listed below.…

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HMSA local groups update

HMSA local groups are still meeting virtually and this month’s theme is “Hobbies and Achievements”. It’s where the group get to share what they do for hobbies and explain how they overcome any obstacles with physical restrictions. It’s a bit of a ‘show and tell’ meeting and it’s always great to see how talented and inventive the participants are!

Here are the meeting dates for April:

Group

Date

Time

Group email address

Nottingham

11/4 & 24/4

2:00 PM

notts@hypermobility.org

Gateshead

17/4

10:30 AM

gateshead@hypermobility.org

…

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Upcoming NASS self-management sessions

The next NASS Facebook Live sessions:

  • Thursday 23 February 2023, 18.00: High-Intensity Interval Training session with Josh Poole, Senior Physiotherapist; and
  • Wednesday, 1 March, 13.00: Talking to friends and family about your axial SpA with Zoë Clark, NASS Senior Self-management Programme Officer.

To watch live, visit the NASS Facebook page at the time of the live session. (If you can’t see the video, refresh your page.)

The NASS Facebook Live sessions have been running for about three years now, helping people to manage their axial SpA (AS) in unprecedented times and beyond.…

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You are not alone; keep active, stay connected

Mr Jones is 72 today. A few years ago, he would have celebrated with friends in the pub, but now the pain in his back makes is hard to go out and he gets tired quickly. So, he’s at home watching TV while his wife cooks a meal. He spends a lot of time watching TV and his back seems to be getting worse, but his GP says there is nothing she can do for him but being more active will help.…

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DaM-it Arthritis Family Fun Day at Center Parcs Longleat

A fun-packed day for all

On Sunday 22nd October 2017, the Department of Rheumatology staff hosted more than fifteen tables for children’s games and crafts – f rom Dominos, colouring to ghostly table lights, and homemade first aid kits – whilst Dads and Mums living with arthritis and connective tissues attended a number of short presentations aimed at providing help and advice:

  • Strategies for coping with a diagnosis and moving forward
  • How to manage family life work and arthritis and connective tissue diseases
  • Incorporating the benefits for staying active and eating healthily

The DaM-it Arthritis project is funded through the Department of Rheumatology’s charitable funds and non-conditional educational grants, offering free events to support the community of Dads and Mums affected by Arthritis and Connective Tissue Diseases and their families.…

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LUPUS UK launches #THISISLUPUS campaign

LUPUS UK has recently launched its campaign in build up to Lupus Awareness Month 2017 in October. The #THISISLUPUS campaign is encouraging people affected by lupus to share their experiences of the disease and the impact it has on their lives. By opening up about lupus more, we hope to show people something that they may not usually see – we aim to make the invisible visible.

We have decided to re-use a design for our campaign poster because it ties very well with our aims and generated a lot of conversation when we first used it five years ago.…

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Arthritis support groups in Wales, Aug-Dec 2017

Upcoming North Wales support group meetings for people with arthritis and chronic pain.

Dates:

7th August 2017
4th September 2017
2nd October 2017
6th November 2017
4th December 2017

Venue:
Holywell Community Hospital, North Wales.
The meeting room is behind the cafe and opposite the reception area.

Open full-size and save the flyer for more details, or see the North Wales Arthritis & Chronic Pain Support Group Facebook page.

New Self-Management Event in Coventry

Arthritis Action will be holding a two-day Self-Management Event in Coventry on Wednesday 26th April 2017 at 2 pm – 4.30 pm and Thursday 27th April 2017 at 10.00 am – 1.00 pm.

 

We aim to help our attendees take control of the symptoms of their arthritis, covering topics such as:

  • The impact of physical therapies
  • How you can best manage your pain
  • The benefits of exercise and a healthy diet
  • Ways to work in partnership with healthcare professionals

This event will be free of charge and refreshments will be provided, and is open to all.…

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