This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.
  • The Arthritis and Musculoskeletal Alliance (ARMA) is the umbrella body for the arthritis and musculoskeletal community in the UK, and our mission is to transform the quality of life of people with musculoskeletal conditions. We have 33 member organisations ranging from specialised support groups for rare diseases to major research charities and national professional bodies.

Tag: self-management

Since the NHS Long Term Plan (LTP) was published on 7 January 2019, the Universal Personalised Care: Implementing the Comprehensive Model has been published.

The document defines personalised care: people have choice and control over the way their care is planned and delivered based on ‘what matters’ to them and their individual strengths, needs and preferences.

There are six components to the model:

  1. Shared decision making
  2. Personalised care and support planning
  3. Enabling choice, including legal rights to choice
  4. Social prescribing and community-based support
  5. Supported self-management
  6. Personal health budgets and integrated personal budgets.

The document sets out the key principles of each component and what evidence would show that it is implemented.

Social prescribing – includes a reference to the need for this to be appropriately funded. There should be a one stop shop connector service with link workers (up to 5 per Primary Care Network) about to connect people to community groups and voluntary organisations that are supported to receive referrals. There should be community-based approaches to providing peer support. ARMA would argue that there is a role for patient groups in providing this peer support.

Supported self-management – This can include:

  • Health coaching or structured group coaching course
  • Self-management education approaches (face-to-face and virtual), which include disease-specific, generic and online self-management courses
  • Peer support through a link worker

Personal health budgets – People will have an indication of how much money they have available for healthcare and support, enough to meet the health and wellbeing needs and outcomes agreed in the personalised care and support plan. They will be able to use the money to meet their outcomes in ways and at times that make sense to them, as agreed in their personalised care and support plan.

 

Implementation

The document lists 21 actions needed to deliver personalised care at scale. These include:

  • Workforce training, including to all GPs.
  • An intensive face to face training programme for 75,000 health care professionals by 2023/4
  • Recruit and train over 1,000 social prescribing link workers by 2020/21
  • Work with partners in the voluntary and community sector, and others, to explore the best models for commissioning the local voluntary and community sector to support innovative provision.
  • Support for programmes to enable self-management
  • Train up to 500 people with lived experience to become system leaders by 2023/24.

For more details, see the full universal personalised care document.

 

ARMA policy teams and CEOs collaborated to agree a Policy Position Paper on Supported Self-Management for People with Arthritis and Musculoskeletal Conditions. The Policy Position Paper sets out recommendations for change.

The evidence identifies the importance of patients as partners in their own care. While people with musculoskeletal conditions can play a pivotal role in their condition, most are simply unaware of the difference they can make. That’s why the Alliance believes people should be supported to take a proactive role in their health, to live well, feeling confident and in control of their condition with supported self-management. Currently, supported self-management sits at the side-lines yet it works – it improves quality of life and clinical outcomes. In the paper, recommendations include a whole system, integrated approach across the care pathway, joining up public health messaging and clinical care.

ARMA works in partnership with our members and other stakeholders. Please get in touch if you would like to work with us to promote this paper, would like us to write a blog or article for your publication or are interested in other collaboration.

The Welsh Government has published its draft ‘Living with persistent pain in Wales guidance’ for consultation and is seeking views on the draft guidance which will replace the Service Development and Commissioning Directive for Chronic Non-Malignant Pain 2008.

The consultation is on the proposed direction of the draft guidance, which includes: living with pain, supported self-management and health service provision.

More information on the consultation, together with the draft guidance, can be downloaded from the gov.wales website.

The consultation ends 14 September 2018.

To help inform the Arthritis Care / Arthritis Research UK input, Hywel Evans, Policy and Engagement Manager Wales, would be grateful to receive copies of responses to this consultation from ARMA member organisations.

Please send your feedback to hywele@arthritiscare.org.uk .

EULAR has funded a project aimed at understanding the development, evaluation and implementation of mobile phone applications for self-management in patients with rheumatic diseases.

Following a systematic literature teview, the project task force is now at a stage where it would like to gain insights into the patient’s views, perceptions and current use of health apps for self-management.

EULAR therefore kindly asks you to fill in the following survey:
surveymonkey.com/mHealthAppsSurvey
It takes 5 to 10 minutes to complete.

Arthritis Action will be holding a new two-day Self-Management Event on 2-3 May 2018 between 2pm–4.30pm at Blackpool Central Library, Queen Street, FY1 1PX

The aim is to help attendees take control of the symptoms of their arthritis, covering topics such as:

  • The impact of physical therapies
  • How you can best manage your pain
  • The benefits of exercise and a healthy diet
  • Ways to work in partnership with healthcare professionals

This event will be free of charge and refreshments will be provided, and is open to all.

For more information, please contact info@arthritisaction.org.uk or 020 3781 7120 and Arthritis Action will be able to provide you with further details.

Alternatively, please register via this Eventbrite link.

The Hypermobility Syndromes Association, in partnership with Stickman Communications, hosted a Hypermobility Management Workshop on Saturday 25 February, with sections on exercise, pacing, flare-up plans, pain, and communicating about hidden disabilities.
The lecture-format sessions were in Hannah Ensor’s typical style – straightforward, with a dose of humour. The group discussions then provided a valuable opportunity to discuss and apply the information to daily life, sharing and exploring different solutions to the challenges we face.

Of course, being about pacing, what better opportunity to practice what we preach? Each ‘lecture’ was a maximum of 30 minutes, with wiggle breaks in between, and it was great to see the ‘beanbag corner’ being used as well as people standing up, moving and stretching when they needed to.

We asked Hannah Ensor, what was her favourite part of the day?

“Well, first I apologise for forgetting to put out plates with the snacks! But for me, there were two stand-out highlights: First, it was being reminded how incredibly useful discussing solutions with other bendies can be. During a discussion someone shared how their health care professional had recommended that they ‘pace’ their nutrition – so they don’t end up constantly having to rest after full meals, and instead eat little and often, which enabled them to avoid the post-meal crash. I am definitely going to look at whether this will help me too!

The second highlight was that every single person who handed in a completed feedback forms said they felt the workshop had improved their understanding of how to manage a hypermobility syndrome, and would be making changes as a result of the workshop. Which is totally awesome!”

Here are a few comments from the delegates:

  • “The formal sessions were excellent, but the opportunity to talk to others was the icing on the cake.”
  • “The session was fantastic, so useful and funny too! I learned so much.”
  • “[The most useful part was] the pacing info and being able to talk to others with HMS.”
  • “Very well presented in manageable chunks, delivered in a way that was very listenable to and easy to understand.”

Arthritis Action will be holding a new two-day Self-Management Event (SME) on Friday 9 February at 6pm–8.30pm and Saturday 10 February at 2pm–4.30pm.

For the first time we are holding our SME outside our usual daytime schedule, to attract a younger audience of attendees who may be in employment or otherwise unavailable during the week.

We aim to help our delegates take control of the symptoms of their arthritis, covering topics such as:

  • The impact of physical therapies
  • How you can best manage your pain
  • The benefits of exercise and a healthy diet
  • Ways to work in partnership with healthcare professionals

This event will be free of charge but places must be booked, via this link.
It is open to all, and refreshments will be provided.

For more information, please contact us by email at info@arthritisaction.org.uk or phone 020 3781 7120.

ESCAPE-pain is a 6 week rehabilitation programme for individuals with knee and hip osteoarthritis which aims to educate participants on their condition, self-management and coping strategies as well as exercise. The Health Innovation Network, the Academic Health Science Network, has been working hard for the past 3+ years to spread the adoption of ESCAPE-pain across the U.K, and recently, has been awarded a grant by Sport England as part of their ‘Active Ageing’ project to target inactive adults in particular and increase access to the programme.

As part of our preliminary research efforts to identify new potential settings in which to deliver ESCAPE-pain, we have put together a very short survey of only 6 questions, to try and understand potential user preferences. If you are an adult aged 55+ and have experience of living with osteoarthritis, or any other exercise restricting condition, we would really appreciate it if you could take just 3 minutes to complete it by following this link: www.surveymonkey.co.uk/ESCAPEpain.

The survey will not ask any personal questions, and will be kept completely anonymous.
For more information please visit our website.