Guest blog by Dr Michelle Farr, Research Fellow at University of Bristol and the National Institute for Health Research Applied Research Collaboration West (NIHR ARC West)
People who experience long-term pain have important insights and strategies that help them manage pain in everyday life. However, they are often not invited to share their knowledge and skills to inform the services that are meant to support them. ARMA has been highlighting the importance of working in partnership with patients and how … Read this article
NRAS’ National Patient Champion Ailsa Bosworth is the joint convenor (with Elena Nikiphorou, King’s) and a senior author of the paper entitled ‘2021 EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis’ published in the Annuls of Rheumatic Disease last week. These important recommendations come at a crucial time when rheumatology teams are reviewing how they deliver patient-centred care going forward as we come out of the pandemic, and will be presented at EULAR … Read this article
What does the recent NICE guidance mean for pain clinics in this country?
Personal view from Alf Collins, Clinical Director for Personalised Care, NHS England and NHS Improvement
The recently published NICE guidance re: chronic pain management 1 has enjoyed a mixed reception. The purpose of the guidance is to improve the lives of people living with long term pain by improving the quality of pain management services across the NHS but many commentators, patient groups and national professional bodies … Read this article
The NASS Facebook Live sessions have been running since March, helping people to manage their axial SpA (AS) in these unprecedented times and beyond. All of these sessions are available live, allowing comments and questions to be answered. Check the NASS Facebook events page for details of upcoming sessions.
The sessions are also recorded and form part of ‘My AS My Life’ – a new self-management hub on the NASS website.
The A2E deadline has been extended
The Aspiring to … Read this article
During these unusual times, NASS has been sharing tops tips through live videos. Topics we’re covering include rib pain, working from home, night-time pain, gardening with AS, mindfulness and looking after yourself emotionally.
You can find all the recordings on the NASS Facebook page.
With everyone now spending a lot more time at home, it could have a significantly negative impact on people’s physical activity levels. For people with musculoskeletal conditions, there are things that can be done to protect health and manage illness, to maintain good physical and mental health.
Provided people are well enough and following the latest government guidelines, exercise matters during this period and it’s more important than ever right now. It can help manage stress and anxiety too. Here … Read this article
CEO update by Sue Brown
One of the things I love about my job is the variety of things I get involved in. The wide scope of what is covered by musculoskeletal health and the variety of ARMA members, partners and stakeholders means no two days are ever the same. August has been a month to prepare for the exciting variety of activity we have planned including our annual lecture, a roundtable on pain, an event on physical activity and … Read this article
Since the NHS Long Term Plan (LTP) was published on 7 January 2019, the Universal Personalised Care: Implementing the Comprehensive Model has been published.
The document defines personalised care: people have choice and control over the way their care is planned and delivered based on ‘what matters’ to them and their individual strengths, needs and preferences.
There are six components to the model:
- Shared decision making
- Personalised care and support planning
- Enabling choice, including legal rights to choice
- Social prescribing
… Read this article
ARMA policy teams and CEOs collaborated to agree a Policy Position Paper on Supported Self-Management for People with Arthritis and Musculoskeletal Conditions. The Policy Position Paper sets out recommendations for change.
The evidence identifies the importance of patients as partners in their own care. While people with musculoskeletal conditions can play a pivotal role in their condition, most are simply unaware of the difference they can make. That’s why the Alliance believes people should be supported to take a proactive … Read this article
The Welsh Government has published its draft ‘Living with persistent pain in Wales guidance’ for consultation and is seeking views on the draft guidance which will replace the Service Development and Commissioning Directive for Chronic Non-Malignant Pain 2008.
The consultation is on the proposed direction of the draft guidance, which includes: living with pain, supported self-management and health service provision.
More information on the consultation, together with the draft guidance, can be downloaded from the gov.wales website.… Read this article