Tag: ankylosing spondylitis

Your SpAce is launched

Your Space imageThe National Axial Spondyloarthritis Society (NASS) has launched Your SpAce, which has been created in partnership with people living with axial spondyloarthritis (axial SpA) and healthcare professionals.

Your SpAce allows people living with axial SpA to engage with their condition, learn more about axial SpA, and build skills to manage the impact it has on their life.

The programme is free to access on the NASS website and YouTube channel. It includes co-produced, short informative videos on topics such as pain, fatigue and flares.…

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NASS seeks partner to co-design integrated pilot

NASS invites expressions of interest to co-design and test an Integrated Pilot as part of the implementation of our Gold Standard Time to Diagnosis for axial SpA.

Do you want to be at the forefront of ending the delay to diagnosis in axial SpA?

In June 2021, the National Axial Spondyloarthritis Society (NASS) published a route map to achieve a Gold Standard Time to Diagnosis of one year through the Act on Axial SpA campaign. The route map proposes four key interventions for achieving this goal.…

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Upcoming My AS, My Life Facebook live sessions

My AS, My Life is a resource hub from NASS to help you build the confidence and skills you need for those times when you have to manage your axial SpA (AS) condition on your own.

It includes self-management guides, videos, blogs and links to a whole range of issues covering both your physical and mental health. 

Each event will be hosted live on the NASS Facebook page, then uploaded to the My AS, My Life webpage.

Here are dates for the upcoming NASS Facebook live sessions:

  • Thurs 14 Oct, 13.00: Foot health for people with axial SpA, with Dr Lindsey Cherry
  • Weds 20 Oct, 12.00: Pilates for axial SpA ‘improver’ session, with Ruth Larkin
  • Tues 26 Oct, 10.00: Relaxation session, with Ali Potter
  • Weds 3 Nov, 13.00: Acupuncture for pain, with Ian Appleyard
  • Weds 10 Nov, 13.00: Looking after your axial SpA in the winter, with Colin Beevor
  • Weds 17 Nov, 18.00: HIIT exercise session, with Josh Poole
  • Weds 24 Nov, 13.00: Women and axial SpA, with Dr Helena Marzo-Ortega

 

X-Factor star learns about axial SpA

Talia Dean meets Dasha and Gillian to learn more about axial SpA (AS)

Singer-songwriter, Talia Dean, made a big announcement in January 2021. In 2020 she was diagnosed with axial SpA (AS). Watch this video as she meets Dasha and Gillian, who live with the disease, and starts her journey towards becoming an #ASWarrior. #TaliasASJourney

See Talia’s story in the BBC article, 15 January 2021:
‘My back pain was misdiagnosed for 15 years – now I can’t dance‘

Ankylosing Spondylitis video – Not just Back Pain

NASS are delighted to launch the second in their series of three videos explaining what Ankylosing Spondylitis is and how it affects people.

The animation ‘Ankylosing Spondylitis – Not just Back Pain’ describes how AS can affect other joints, tendons and ligaments, along with other areas including the eyes, bowels and skin.

We hope you find the video interesting.

Please do share it to raise awareness of how AS affects 200,000 people in the UK.

GP eLearning course for AS diagnosis

The current delay to diagnosis of ankylosing spondylitis (AS) stands at 8.5 years. NASS are committed to reducing this delay to diagnose. There are many factors impacting on this delay but an important issue is the recognition of AS in primary care and prompt referral on to rheumatology.

NASS have worked in partnership with the British Society for SpondyloArthritis (BRITSpA) to sponsor an eLearning course on ankylosing spondyloarthritis (axial spondyloarthritis) (AS) on the Royal College of General Practitioners (RCGP) website. The course aims to educate GPs about AS.…

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