With a new strategy, “Driving progress: genetic, rare and undiagnosed”, the HMSA is committed to examining their impact within the four nations of the UK in order to build a plan that ensures they are truly a UK-wide organisation. The first step is to build a picture of how HMSA members currently operate across the UK. There has been a good response the survey; next the aim is to provide more engagement and opportunities for staff and volunteers.
Giving GPs the Tools
The HMSA’s current GP campaign is part of their work to improve professionals’ awareness and education so they’re able to more quickly identify those people presenting with hypermobility related disorders.
A pack of materials is being put together at the moment. A quicker diagnosis leads to reduced disability and impact on a person’s ability to work, go to school and on their quality of life. Much more is being done at local, national and international levels and the HMSA needs your donations to help with all of it. Please consider a donation via their Fundraising page.