Arthritis and Musculoskeletal Alliance
This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.
  • The Arthritis and Musculoskeletal Alliance (ARMA) is the umbrella body for the arthritis and musculoskeletal community in the UK, and our mission is to transform the quality of life of people with musculoskeletal conditions. We have 33 member organisations ranging from specialised support groups for rare diseases to major research charities and national professional bodies.

World Arthritis Day

To mark the 22nd World Arthritis Day on 12th October and Bone and Joint Week from 12th-20th October, Arthritis Action held education and support group meetings in various locations across the UK for people with arthritis during the whole month of October.

Attendees heard from a variety of speakers on a range of issues affecting those with arthritis, including healthy eating, exercise, and physical therapy.

Leicester-based Arthritis Action Member Pauline Walker, aged 60, said: I’m an Arthritis Action member and have enjoyed the local Group meetings in which members, old and new have shared experiences and useful tips on managing arthritis. We have had invaluable input and support from the Charity and I have found the Groups to be pleasant, social occasions with a positive approach.

“The theme for this year’s World Arthritis Day, “it’s in your hands, take action”, is a really good one as I know that I have a tendency to rely too much on medication and health professionals, and Arthritis Action events cover a range of issues such as pain management and the benefits of physical activity.”

Bristol-based Arthritis Action Member, Christine Wilmot, aged 60, said: “I have had Palindromic Arthritis since 2011 and joined Arthritis Action earlier this year. I’ve now been to three meetings in Bristol and have found them full of positive, helpful advice. The Group is quite small, friendly and informal, with everyone sharing their own experiences. I have learned useful ways to deal with pain and tiredness during ‘flare-ups’ and how to improve mobility through exercise, diet and relaxation.”

Arthritis Action’s Groups offer people with arthritis a platform to meet others, share their stories, questions and tips on living with arthritis, whilst helping them to overcome the physical and emotional problems associated with the condition to improve their quality of life. Arthritis Action runs Groups in London, Bristol, Bury St Edmunds, Norwich, Staines, Eastbourne, Ferndown, Coventry, Leicester, and Warrington.

Shantel Irwin, Chief Executive of Arthritis Action, said: “Around 10 million people in the UK live with arthritis. It is the leading cause of pain and disability nationwide. Arthritis Action is lending its support to World Arthritis Day and calls on health communities everywhere to prioritise arthritis and help raise awareness of how the condition impacts those living with it.

“We are delighted to be bringing people with arthritis together to discuss their feelings and how arthritis impacts their everyday life. We hope to continue to empower people with arthritis in the UK to better manage the physical and emotional pain associated with the condition and help them lead more active lives.”

nras-15-birthday-photoLast week NRAS was delighted to celebrate its 15th Birthday with an evening reception held at our offices in Maidenhead.

We were delighted to welcome His Honour Charles Elly representing the Lord Lieutenant of Berkshire and the Deputy Mayor of the Royal Borough of Windsor and Maidenhead, Councillor John Lenton and his Escort, Deputy Mayoress, Mrs Margaret Lenton to the event.

We were also joined by current and previous Trustees, NRAS staff and volunteers, valued suppliers and other distinguished guests. A video montage of birthday messages can be found on our YouTube channel.

A huge thank you to everyone who has supported us over the past 15 years and here’s to the next 15!

 

World Arthritis Day – Behind the Smile

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To mark World Arthritis Day on Wednesday 12th October, NRAS was involved in a project to raise more awareness of the invisible symptoms of the disease. A set of videos were released the day itself. “Behind the Smile” has already had over 46,000 views via social media and has been shared by over 1,100 people. The main character, Jane, has rheumatoid arthritis (RA). She might look fine but she isn’t. See what goes on behind the smile. (https://www.youtube.com/watch?v=5wI5RVWzn9Q&t=27s)

You can also watch two further films containing commentary by Donna Saunders, NRAS Volunteer and Member and Professor Iain McInnes, Director Institute of Infection, Immunity and Inflammation and Consultant Rheumatologist, University of Glasgow.

Our CEO, Ailsa, was also chosen to be part of the official World Arthritis Day video showcasing how those living with RMDs are living life to the fullest. Watch the video on their website here. (www.worldarthritisday.com)

 

Dates for the diary:

Tuesday 8th November – Stoke-on-Trent area NRAS Group Launch

Wednesday 9th November – Southend-on-Sea NRAS RA information evening

19-25th June 2017 – NRAS RA Awareness week

usbji-control-arthritisTo coincide with October’s World Arthritis Day, the U.S. Bone and Joint Initiative (USBJI) has released three new animated videos. These form part of their public education Experts in Arthritis programme, an exciting element to aid in their efforts to educate the public about taking control of Arthritis.

The videos can be seen at www.ControlArthritis.org.    

The goal of USBJI is to significantly increase the number of Americans who will become better educated about how to alter their lifestyle and take control of their Arthritis. 

Please help by sharing the videos with your professional network, your patients, the visiting public, and on social media. If you are interested in scheduling a live session of Experts in Arthritis in your community, register at www.ControlArthritis.org, or email usbji@usbji.org.

Westminster Hall Debate

We have, through our ‘Arthritis Champions’ in the House of Commons, moved a backbench debate in Westminster Hall, to be held on Thursday 20 October.  This debate will be discussing, primarily the themes of Arthritis Research UK’s Share Your Everyday campaign and we will be briefing MPs as such.

In support of our campaign, we aim for this debate to be an opportunity for MPs to share their own experiences of arthritis in order to encourage more people with arthritis to tell with their own stories about living with the condition and how it affects their day-to-day lives.

The focus of the debate will largely be on osteoarthritis and back pain, the burden of these conditions on both the individual and society, the challenges that these conditions raise for the health and care system and the support people with arthritis receive in and out of work.

DCLG consultation on proposed retention of 100% of business rates by local authorities

The policy team will be submitting a response to this consultation, making the case that the proposed transition from the current system of 50% retention of business rates and 50% of central government grants to 100% retention will have a significant impact on people with arthritis.  In particular we are focusing on the potential for increased health inequalities due to the loss of the public health grant and the impact on social care if Attendance Allowance and the Better Care Fund are funded by business rates in the future.

Share Your Everyday campaign

Kicking off on World Arthritis Day this October, Share your Everyday will run for six weeks.  Following the same format as last year, the campaign will give people with arthritis an opportunity to share their experience of living with arthritis – we want to hear how they push back the limits of arthritis to make their everyday life better.

More information will be available at www.arthritisresearchuk.org soon.

Bone & Joint Action Week is our opportunity to highlight the importance of musculoskeletal health and the need to effectively prevent and manage conditions which affect it.

During this week there are dedicated days to highlight major rheumatic and musculoskeletal conditions:

12 October: World Arthritis Day

16 October: World Spine Day

17 October: World Trauma Day

19 October: World Pediatric Bone & Joint Day

20 October: World Osteoporosis Day

The Bone & Joint Decade, the Global Alliance for Musculoskeletal Health, gives an overarching theme for the week as well as encouraging active support of the individual days.

World Arthritis Day (WAD) – 12th October 2016

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EULAR are running a campaign for WAD on ”The Future In Your Hands’, encouraging people to share their stories about how they have taken action to live their life to the fullest with a rheumatic or musculoskeletal disease (RMD) and support others with RMDs.

Get involved via Facebook, Instagram and Twitter and join the conversation with the hashtag #WADstory.
Find out more at http://www.worldarthritisday.org/our-campaign.

National Ankylosing Spondylitis Society (NASS) campaign:

NASS-2015-logo-square-smallSee the NASS campaign www.nass.co.uk/patientvoicepatientchoice

Follow on Twitter with @NASSexercise.

 

Share Your Everyday campaign

aruk-2016-new-logoKicking off on World Arthritis Day this October, Share your Everyday will run for six weeks. www.arthritisresearchuk.org/shareyoureveryday

Following the same format as last year, the campaign will give people with arthritis an opportunity to share their experience of living with arthritis – we want to hear how they push back the limits of arthritis to make their everyday life better.

 

World Spine Day – 16th October

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World Spine Day is an initiative of the Global Alliance for Musculoskeletal Health, coordinated each year by the World Federation of Chiropractic.

This year the theme is “Straighten Up and Move” which accords with evidence supporting optimum care for spinal disorders and the World Health Organization’s focus on physical activity as a way to combat a range of health disorders including cardiovascular disease, obesity and, of course, musculoskeletal disorders.

For information and resources about how organisations can get involved go to http://www.worldspineday.org/.

World Trauma Day – 17th October

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World Trauma Day began in 2011 in New Delhi with the purpose to set a day aside to consider the impact, prevention and treatment of traumatic injuries and deaths.

World Health Organization (WHO) research has shown that at least 50 percent of road deaths occurring in developing countries could have been prevented with effective intervention after trauma has occurred, including immediate pre-hospital care.

World Pediatric Bone & Joint Day – 19th October

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World Pediatric Bone and Joint (PB&J) Day, developed by the multi-disciplinary Pediatric Specialty Group of the United States Bone and Joint Initiative (USBJI) features educational stories on important bone and joint-related conditions and their impact on children.

The USBJI Pediatric Specialty Group’s goal is to identify the primary areas of concern with regard to children’s musculoskeletal health and to develop programmes and activities through research, education and advocacy.

Share your event or the day on Facebook or via Twitter @USBJI.

WAD-hi-5-thumbMonday 12th October was World Arthritis Day and NRAS Founder and CEO, Ailsa Bosworth, had a very busy day as she was interviewed on 21 different radio stations’ day time programmes, reaching over 6 million listeners across the UK.  Raising awareness of RA and JIA is vitally important and it will continue to be at the core of NRAS’s work. The podcast of the most in depth interview will shortly be available to listen to on the NRAS website.

As you can see from the picture, the NRAS team also took part in the #WADHigh5 campaign on social media! Click the photo to see it full size.

eye-witness-report-coverWorld Arthritis Day was also the launch of the ‘Eye Witness Report‘, celebrating the huge advancement in rheumatoid arthritis care and treatment over the last 20 years.

It reveals real-life experiences of patients, doctors, nurses and NRAS founder and NRAS Chief Executive Ailsa Bosworth.

The Eyewitness Report has been authored by Nigel Hawkes, independent science and health journalist, and urges patients, public, and the profession to unite to ensure that today’s achievements provide a springboard for further success in the future. You can download the report from the NRAS website.

Rheum2Talk

Free training day for rheumatology nurses, physiotherapists, OTs and other allied health professionals.

The publication of the NRAS booklet on the impact of RA on patients’ emotions, relationships and sexuality, followed by our recent one day training day in Manchester, have both been a great success.

This innovative and interactive workshop is designed to enhance the understanding of the emotional and sexual needs of RA patients.

NRAS is now delighted to be holding our second FREE ‘Rheum2Talk’ training day in Oxford on Thursday 10th December 2015.

When and where:
Thursday 10th December 2015
9:00am – 4:30pm

Oxford Campus (venue to be confirmed)
Lunch and refreshments provided

For further information and to register your place for this free training event, please contact Nicky Freemantle on 01628 823524 or email nicola@nras.org.uk.

WAD-bigThe topic for World Arthritis Day in 2015 and 2016 is ‘It’s in your hands, take action’.  The aim is to encourage people with rheumatic and musculoskeletal diseases (RMDs) along with their carers, healthcare professionals, policy-makers, researchers and the general public to seize every opportunity to take action and make a difference to the quality of life of people with RMDs.

Join us on Social Media and take action! 

Find resources and more info on our official website: www.worldarthritisday.org

WAD on Facebook

WAD on Twitter

BJD-bannerKey dates and activities during BJD Action week 12th to 20th October 2015 are:

Monday 12th October               World Arthritis Day (WAD)

‘It’s in your hands, take action’ – EULAR PARE are asking people to take action for WAD share virtual High 5s on social media, using the hashtag #WADHigh5.

Lots of other activities are also running, see www.worldarthritisday.org for full details.

 

Friday 16th October                  World Spine Day

With back pain and neck pain one of the most common reasons for sick leave from work the focus of the day is helping people to maintain good spinal health and prevent workplace injuries. Take a photo of “your back at work” demonstrating a healthy spine habit and share using #spineselfie, #worldspineday.

See www.worldspineday.org for more details and download these tips on how to keep your back healthy.

 

Tuesday 20th October             World Osteoporosis Day  

Show your support by wearing white on World Osteoporosis Day. The National Osteoporosis Society are also running a campaign to encourage people to buy special orange laces, put them in their trainers, walking boots and shoes, and to get active in order to keep their bones healthy and strong.

Find out more at www.laceupforbones.co.uk and please share with friends, colleagues and family using the #laceupforbones. The charity are also running three free ‘Tie’ Chi events in Bath, Nottingham and Portsmouth which will include a flash mob of orange lace wearers.