This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.

Publicity

The National Osteoporosis Society launched its new Message to My Younger Self campaign with a bang this month, earning the charity over 300 pieces of media coverage on TV, radio and national press.

The campaign, which runs throughout the summer until the end of October, is looking to start conversations about bone health between generations and launched with a focus on the need for a healthy, balanced diet.

Some of the key coverage included articles in The Daily Telegraph, Daily Mail and BBC Health Online, as well as BBC Radio’s Today Programme and Jeremy Vine show.

The National Osteoporosis Society is also revitalising its Stop at One campaign to encourage people to find out if they are at risk of osteoporosis.

Launching in May 2017, the charity will be piloting new campaign collateral (leaflets, posters and scratch cards) in eight fracture clinics across the UK targeting people over the age of 50 with an existing fracture.

The campaign has two main objectives: to encourage people who have broken a bone and are over 50 to ask for more information on osteoporosis and take an online quiz and to educate key staff in fracture clinics to put people at risk of osteoporosis on the correct pathway to a risk assessment.

 

My name is Keith Diaper and I am 40 year old husband and father from Hedge End in Southampton. I’m an electrician and a keen triathlete.

Starting on Saturday 1st April 2017 I will be doing one middle distance triathlon every Saturday and Sunday for six months – so I will be covering 3655.6 miles in total, over 52 events. That’s about the same distance as travelling from Southampton to New York.

A Middle Distance Triathlon is a 1.2 mile swim, 56 mile cycle and then a 13.1 mile run.

The reason for taking on such a challenge is to help raise awareness and funds for the charity Hypermobility Syndromes Association (HMSA). My wife, Pippa, has Ehlers Danlos Syndrome, one of the long-term conditions covered by the charity. This condition means there is a defect in her collagen which causes her joints to dislocate on a regular basis. She is in daily pain and suffers with fatigue. There is currently no cure for EDS and there is a possibility that she will one day be in a wheelchair.

Pippa was misdiagnosed for many years. The health professionals carried out many tests but thought Pippa had Fibromyalgia, due to a few similar symptoms. After many more visits to specialists over an almost 3 year period, she was finally diagnosed with EDS. Following this we came across the HMSA’s website, everything my wife was going through was listed along with lots of resources to help her cope.

By teaming up with the HMSA my mission is to bring wider awareness of their work and the conditions suffered by so many. I know we currently can’t cure this condition but we can educate people. If my challenge helps people who are in the situation my wife found herself in, then it would be worth it. Any funds we raise along the way will help the HMSA with their work, which covers research, support and education.

For more information contact keith@ironcause.co.uk.
Website: www.ironcause.co.uk
Phone: 07791 893638
Address: 5 Stirling Crescent, Hedge End, Southampton, Hampshire, SO30 2SA

The National Osteoporosis Society is launching “A Message to My Younger Self” – an awareness campaign about keeping bones strong and health. It begins on 12th April 2017 and runs through to World Osteoporosis Day on 20th October. NOS want the generations to have a conversation about healthy bones, to talk about the steps that can be taken to make sure bones are strong, and to give a voice to the millions of people with the condition.

The campaign is being fronted by Liz Earle who is personally concerned about the impact of social media on the eating habits of her teenage children, backed-up by research that we have conducted showing that 20% of 18-24 year olds have reduced or completely cut out dairy from their diets, which could potentially be storing up problems for them in later life.

The campaign has three themes – nutrition, exercise, and “your message”.

www.nos.org.uk/myyoungerself

First up is Nutrition (April and May); then Exercise (June, July and August including the 206 challenge – a sponsored walk hosted by Professor Alice Roberts on 11th June at Tyntesfield, a National Trust property near Bristol); and the initiative will end with “A Message to My Younger Self” on World Osteoporosis Day 20th October where celebrities, our supporters, ambassadors and our royal President will all be sharing messages to their younger selves and passing on tips and advice to the next generation.

The Back Pain Show – 19 & 20 May 2017

After a decade, The Back Pain Show has moved from Olympia London to St Andrews Birmingham, to give access to sufferers from the Midlands and the North of England. This iconic, two-day show is a hub for sufferers to meet doctors and therapists who provide treatment and manufacturers who supply both preventative and therapeutic equipment.

There are many causes of back pain including crush fractures of the spine which are usually caused by osteoporosis. These fractures are amazingly painful and take many months to ease. For a small donation to the charity BackCare – www.backcare.org.uk – at-risk visitors to show can have a two minute DEXA scan to determine their bone density. With lifestyle changes they can significantly decrease the risk of this disabling condition. The scanner uses the same amount of radiation found in a banana!

Lectures for both the public and professionals will be given by leading researchers in the field of back pain. Don’t miss this opportunity to book the professional lectures and fulfil CPD requirements. Both public and professionals can register for the event and book any of the talks and lectures, free of charge, at www.thebackpainshow.co.uk.

For manufacturers, this is the once-a-year opportunity to show products to both the general public and professionals. With easy access (compared to the nightmare of London venues) and free parking, you should book your stand now before they are all snapped up as the number of stands is limited.

The show will host the AGM of the BackCare charity on Saturday afternoon. All members are welcome to come and meet the trustees and members of the research, publications and executive committees. Membership will be available at the charity’s stand at the entrance of the show. Come and support our unique charity supporting those with back and neck pain and preventing thousands of people from developing these disabling conditions.

 

Arthritis Care has launched a new survey, “Your life with Arthritis”, which is available online at: http://www.arthritiscare.org.uk/yourlifesurvey

Please circulate the survey to anyone with arthritis who may be interested in taking part. The evidence we gather will help us to understand what matters most to people with arthritis and campaign for better care and support. For more information about the survey or to request a paper copy, please email campaigns@arthritiscare.org.uk

 

BBC Radio 4 appeal

Broadcaster and Radio 2 DJ Jo Whiley made the Radio 4 Appeal on behalf of Arthritis Care last month, speaking about how arthritis has affected her life and family.

The Faculty of Sport and Exercise Medicine (FSEM) UK welcomes new rules by the Committees of Advertising Practice (CAP) to ban the advertising of high fat, salt and sugar food and drink products in children’s media and supports both the Obesity Health Alliance (OHA) and the Children’s Food Campaign in their responses to the measures, calling for loopholes to be closed.

The FSEM, as part of the OHA, is calling for a sustained increase in regular physical activity, according to UK Chief Medical Officer guidelines, to be part of all children’s daily routines to prevent and manage obesity, alongside measures to reduce the consumption of less healthy food and drink.

Dr Natasha Jones, Vice President of the Faculty of Sport and Exercise Medicine, comments: “We recognise the importance of reducing exposure to unhealthy food and drink advertising creating a less obesogenic environment for our children. Healthcare focus and policy should also be strongly directed towards promoting physical activity to prevent chronic disease and childhood obesity.

Children and young people should aim for at least 60 minutes of moderate to vigorous physical activity every day, this can be made easier by incorporating a favourite indoor or outdoor physical activity spread throughout the day and encouraging walking and climbing the stairs wherever possible.”

OHA statement:

“We welcome CAP’s long awaited rules to protect children from junk food marketing across all types of media and are pleased to see them recognise that restrictions should apply to kids up to the age of 16. But it’s concerning that the new restrictions only apply when it can be shown that at least 25% of the audience are children. This loophole means that a significant number of children could still be exposed to adverts for high fat, salt and sugary products.

Children aged 5-15 spend up to 15 hours a week online – so it’s absolutely right that they’re protected from junk food marketing. Research shows advertising greatly influences the food children choose to eat, and with one third of children overweight or obese by their eleventh birthday, we need to protect them from relentless junk food marketing in all walks of life.”

Children’s Food Campaign statement:

“The Committee of Advertising Practice has finally listened to the voices of parents and health professionals, after years of resisting calls for stronger measures to reduce children’s exposure to junk food marketing online. The new rules, which prohibit HFSS advertising from appearing in children’s media, are a positive step and go some way to removing the most blatant forms of advertising of less healthy food and drink to under-16s.

But CAP has failed to learn the lessons from industry’s exploitation of loopholes in TV advertising regulations.  Just as many of the TV programmes most watched by children aren’t covered by the rules, so it looks like many of the most popular social media sites won’t be either; neither will billboards near schools, or product packaging itself.

Unfortunately, the power still seems to be very much in the hands of manufacturers and advertisers, not parents.  Instead of a comprehensive and transparent definition of what constitutes marketing ‘directly appealing to children’, which Children’s Food Campaign proposed, CAP will only apply the restrictions when children are over 25% of the audience. This figure provides insufficient protection to children, whilst giving parents little knowledge of what is and isn’t covered. Parents will also be disappointed to find out there will be no restrictions on sugary food and drink emblazoned with children’s favourite cartoon or film characters, or in the use of child-friendly brand characters on packaging either. 

Ultimately, the new rules are only as good as the body which enforces them.  We hope that from July 2017 CAP and the Advertising Standards Authority will ensure companies follow both the letter and the spirit of these new rules, and close any loopholes which arise.”

The FSEM is continuing to work alongside Public Health England, the Royal College of General Practitioners and other public health facing organisations to ensure physical activity assessment, advice and exercise medicine can be a key part of the NHS to prevent and manage many common conditions, including childhood obesity.

ramble1Arthritis Care is delighted that Children in Need continue to fund our work with young people.

The charity recently benefited from coverage on the Countryfile special ‘Ramble for Children in Need’ and on the recent BBC Radio 4 charity appeal.

 

 

nos-and-usbji2-animationThe National Osteoporosis Society, in conjunction with the United States Bone and Joint Initiative, has worked on an animation about osteoporosis which they have remastered for a UK audience. The animation has been voiced by the charity’s ambassador, Miriam Margolyes, famous the world over for her hundreds of film, theatre and television credits including Harry Potter, Blackadder and the Real Marigold Hotel.

The animation, titled “Learn more about osteoporosis with Miriam Margolyes,” is finished and ready to be launched. ARMA members who would like to see it pre-release can contact Sarah Wolf at the NOS to attain a preview password. 

The video will be publicly launched and promoted with the help of Miriam (who has the condition) within the next few weeks.