Arthritis and Musculoskeletal Alliance
Influencing policy and care together for best lifelong musculoskeletal health
Due to many of the NRAS team going to the BSR conference later in the month, there is unfortunately no NRAS Live this month. However, if you have missed any of their live broadcasts – remember you can watch ALL previous NRAS Lives via their YouTube channel.
Do you or someone you know have knee or hip joint pain that is impacting daily life?
The TIPTOE research study is aimed at people 70+ with knee and / or hip pain, comparing a new support package, which aims to give people the knowledge, confidence and skills to live well independently, with standard care.
If you decide to take part, you will be put at random into one of two groups:
NASS is excited to launch a call for evidence as part of their efforts to establish a Gold Standard in Treatment and Care for Axial Spondyloarthritis as part of the Aspiring to Excellence programme.
NASS is looking for people with lived experience of axial SpA, and healthcare professionals to share with us their real-life examples of good treatment and care.
For people with lived experience, an example might be a course or education session you attended, a new way of being able to communicate with your healthcare team which improved your experience, or a routine that you were able to develop with your healthcare team to help with a specific part of living with axial SpA.…
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Wednesday 6th March 2024
Arthritis Action is running its first self-management event specifically targeted at the needs and lives of people aged 18-40. The online event will address topics such as: pain management, healthy eating & weight management, staying active, hobbies and social life, emotional wellbeing and pacing and distraction techniques.
Tickets are free and anyone interested in attending can contact events@arthritisaction.org.uk, or send a message via WhatsApp: 07702 813737, or book direct from Eventbrite.
While there are no NRAS Live events planned this month, if you missed any of their live broadcasts, remember you can watch ALL previous NRAS Lives via their YouTube channel.
They have even made this handy playlist, which has all previous live events in chronological order for those of you who would like a Christmas binge!
With numbers on the NHS waiting list at a record high of 7.75 million and rising, on the 30th of November 2023, ITV’s flagship current affairs programme ‘ITV Tonight’ focused on the huge waiting lists for joint replacement surgery: Tonight – Series 25 – Episode 35 – ITVX
With input from Versus Arthritis, Dr Zoe Williams investigates the health impacts on the estimated one million-plus people currently waiting, in some cases for years, for trauma and orthopaedic treatment. The programme looked behind those figures and into the lives of those waiting in pain for transformative orthopaedic treatment, explored whether surgery is the only option for patients in severe pain, and discussed how people can wait as well as possible whilst awaiting treatment.…
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This research aims to better understand what it means to live with and manage chronic pain, from everyone’s perspective. You now have the opportunity to say what matters to you by participating in this survey.
By answering the questionnaire, you can help overcome some of the current uncertainties and challenges of chronic pain management. Your knowledge will enable the researchers to collaborate closely with patients and patient organizations to develop better care that are meaningful for people living with chronic pain and their families.…
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NRAS founder and National Patient Champion, Ailsa Bosworth, reflected on her personal journey living with RA in this blog post for World Arthritis Day 2023.
Read about her early years, how she was diagnosed, becoming a mother whilst managing the condition and much more in this fascinating read.
Register for FREE webinar – ‘Achieving the best in psoriasis care.’
The Psoriasis Association and St John’s DermAcademy are delighted to collaborate for a fourth year running to bring you ‘Achieving the best in psoriasis care’, a free webinar of informative talks from experts at the forefront of psoriasis research and practice.
If you are living with psoriasis yourself, or you have a friend or family member who is, then this event may be of particular interest to you.
The webinar will take place via Zoom on Thursday 26th October 2023 at 6pm.…
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In October 2023 the COVID Shielding Voices report was published. Funded by Versus Arthritis and conducted by the Centre for Epidemiology at the University of Manchester, it is a research study about people with autoimmune inflammatory conditions, such as rheumatoid arthritis, who shielded during the pandemic. The report has been shared with both the UK and Scottish COVID-19 inquiries.
The COVID Shielding Voices report captures the depth of people’s experiences of shielding during the pandemic and its long-lasting impact on them, their families, their mental health, and their working lives.…
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