This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.

International

With the help of their partners and endorsers, Pain Alliance Europe has created a Framing Paper and Joint Statement: policy documents that analyse the existing initiatives and remaining gaps in policy actions to tackle the impact of pain on societies, economies and individuals.

This document was discussed with the participants in attendance to the first webinar of the Thematic Network on the Societal Impact of Pain (SIP), hosted by the European Commission, which took place 25 June 2018. The webinar can be watched again here.

An updated version of the document following the webinar is available here.

Please get in touch with Anca Pop or Vittoria at the PAE Secretariat if you have any comments that you would like to see included into the documents.

What´s next?

The European Commission will host the next Societal Impact of Pain webinar on:

Thursday 20 September 2018, 11:30 to 12:30 CET.

Pain Alliance Europe will follow up with an official invitation and the instructions to join the webinar. For now, save the date in your calendars!

On behalf of Nele Caeyers, Chair of the EULAR Standing Committee of People with Arthritis/Rheumatism in Europe (PARE); Dieter Wiek, EULAR Vice President, representing PARE; and Polina Pchelnikova, Working Group leader of the Edgar Stene Prize; the EULAR secretariat is delighted to announce the call for entries for the Edgar Stene Prize Competition 2019.

People with rheumatic and musculoskeletal disorders are invited to write about their personal experiences submitting essays on the topic of:

“My ideal employer – Work without barriers for people with RMDs”

Please find more information in the attached documents [both PDFs]:

Please take a careful look at the deadlines and entry rules mentioned in the respective documents. The deadline for UK entries is Tuesday 11 December 2018, entries should be sent to projects@arma.uk.net by that date.

As with previous years, the national winning essays will be accepted in their native language and the EULAR Secretariat will take care of translating them into English.

EULAR looks forward again to receiving many inspiring and encouraging essays from all over Europe!

The EULAR PARE Editorial Board need your input regarding their publications, in order to assess their impact and value. They are looking for one person per organisation to give feedback on their e-Breakthrough newsletter and the hard copy, Breakthrough.

It would help them if you could fill out a short online survey by 30 July at the latest.

EULAR sends thanks in advance for your kind support!

The inaugural Brain, Mind and Pain Grant announced its winners in June, naming three innovative, patient-centred projects:

  • Master Your Pain by Groningen University – an e-health platform to help patients with rheumatic pain self-manage their symptoms
  • ASPERGA Association for their prototype auditory aid that aims to reduce sensory pain in people with autism spectrum disorder
  • MyBrainNet by Dystonia Europe – a central platform for neurological brain diseases, providing information to patient groups and patients to help improve their quality of life.

The Brain, Mind and Pain Grant is the first grant into chronic pain that is run by patients, for patients. Winners were judged by a jury of patients and patient representative, with the support of scientific experts.

“Patient voices are essential to drive the research and innovation agenda. Our lived experience should be at the centre of every research project because no one knows the disease better than the person living with it,” says patient jury member Joke Jaarsma.

The grant received over 19 applications from over 8 European countries. The grant ceremony was attended by over 100 people, including:

  • MEP Danuta Jazlowiecka (EPP, Poland)
  • MEP Marian Harkin (ALDE, Ireland)
  • MEP Nessa Childers (S&D, Ireland)
  • Pain Alliance Europe President Joop van Griensven
  • EFNA Executive Director, Donna Walsh
  • Mark Fladrich, CCO Grünenthal
  • EFNA President Joke Jaarsma

The Brain, Mind, and Pain Patient Centred Innovation Grant is a joint project run by Pain Alliance Europe and financially supported by Grünenthal, with partner support from the European Pain Federation (EFIC), the European Academy of Neurology (EAN), and the European Federation of Neurological Associations (EFNA).

EMEUNET (the Emerging Eular NETwork) and the EULAR School of Rheumatology have launched an online educational initiative called Twitter Journal Club, facilitated by experienced rheumatologists. The aim is to allow Twitter users to participate in a discussion with colleagues around the world about recent key papers in rheumatology.

Each month details of the article selected for the Journal Club as well as the EMEUNET paper of the month will be available for download on our the EMEUNET websiteYou can also have a look at the previous Journal Club sessions.

Survey: Social Media for health-related purposes

You are invited to participate in a research study titled “Understanding how people with rheumatic and musculoskeletal diseases (RMDs) use social media for health-related purposes.”  This study is being undertaken by a team of international researchers and patient research partners.

Social media has been gaining increasing momentum in recent years and is used by different groups to stay up to date or exchange information. Social media tools are easily accessible and independent of geographical location. Therefore, social media also provides people with chronic conditions, such as rheumatic and musculoskeletal diseases (RMDs), with new opportunities to identify information about their condition(s) and treatment(s), as well as the ability to connect with other patients, carers, patient organisations and healthcare professionals. However, despite the premise of social media for people with RMDs, it is less clear how and why people with RMDs use social media in relation to their health and wellbeing.

You can read the project summary here [in PDF] and take part in the survey via this link.

 

In May 2018, The European League Against Rheumatism published a set of recommendations designed to help health professionals implement approaches to pain management in inflammatory arthritis and osteoarthritis patients. The aim is to reduce pain and the burden on the individual and society.

Pain is the predominant symptom for people with inflammatory arthritis (IA) and osteoarthritis (OA), mandating the development of new, evidence-based EULAR Recommendations for the health professional’s approach to pain management in inflammatory arthritis and osteoarthritis.

The target users of these recommendations are health professionals in the field of rheumatology, including rheumatologists. Prompt and knowledgeable pain management support can reduce pain, increase functioning and well-being, and reduce individual and societal costs. Practitioners in all healthcare settings should therefore have the knowledge and skills required to help people with IA and OA to better manage their pain; rheumatology health professionals are ideally placed to provide comprehensive, evidence-based, and patient-centred care.

Click on the image to see it full size,
or click here to download this flow chart as PDF.

Pain management typically includes education. Based on the needs of the patient, education is complemented by physical activity and exercise; aids and assistive devices; psychological and social interventions; sleep hygiene education; weight management; pharmacological and joint-specific treatment options; and interdisciplinary pain management. Underpinned by available systematic reviews and meta-analyses, these recommendations enable health professionals to provide knowledgeable pain management support for people with IA and OA. 

A multidisciplinary task force including patient representatives conducted a systematic literature review to evaluate evidence regarding effects on pain of multiple treatment modalities. The task force, which included eighteen members from twelve countries, consisted of patient representatives, nurses, physiotherapists, psychologists, rheumatologists, a general practitioner, an occupational therapist, a clinical epidemiologist, and a research fellow. 

From 2,914 studies initially identified, 186 met inclusion criteria. Based on the reviewed studies and expert opinion, the task force emphasised the importance for the health professional to adopt a patient-centred framework within a biopsychosocial perspective, to have sufficient knowledge of IA and OA pathogenesis, and to be able to differentiate localised and generalised pain. The assessment of patient needs, preferences and priorities; pain characteristics; previous and ongoing pain treatments; inflammation and joint damage; and psychological and other pain-related factors were deemed important. 

The 6th World Congress on Controversies, Debates & Consensus in Bone, Muscle & Joint Diseases (BMJD) will take place November 8-10, 2018 in Bangkok, Thailand. bmjd-congress.org

The 6th BMJD Congress will address the most burning questions in the field of Rheumatoid Arthritis, Inflammatory Arthritis, Osteoarthritis, Spondyloarthropathy, Lupus, and more. Through debates of controversial issues and discussions on clinically relevant updates, the Congress will help provide practical management solutions to a number of challenging issues encountered in daily practice.

 

Chair of Arthritis and Musculoskeletal Alliance Receives Top Honor from American College of Rheumatology

Professor Tony Woolf was honored with the designation of Master by the American College of Rheumatology (ACR) during the 2017 ACR/ARHP Annual Meeting in San Diego. Recognition as a Master is one of the highest honors that the ACR bestows on its distinguished members.

The designation of Master is conferred on ACR members who have made outstanding contributions to the field of rheumatology through scholarly achievement and/or service to their patients, students, and the rheumatology profession and are age 65 or older. Honorees have devoted their careers to furthering rheumatology research and improving clinical standards in the treatment of rheumatic diseases.

 “It’s an honor to be recognized for my commitment to advancing the health of patients with rheumatic and musculoskeletal diseases in Cornwall, across the UK and also globally,” said Prof Woolf. “I am truly humbled to receive this designation and join the ranks of many distinguished rheumatologists.”

ACR Masters must be highly accomplished individuals. Evidence of their achievements can come from many types of endeavors and honors, such as research, education, health care initiatives, volunteerism, and administrative positions. The Master must be distinguished by the excellence and significance of his or her contributions to the science and art of rheumatology.

Prof. Tony Woolf was consultant rheumatologist, Royal Cornwall Hospital from 1987 until 2015 and is currently Clinical Director, National Institute of Health Research (NIHR) Clinical Research Network South West Peninsula.  His work has focused on reducing the impact of rheumatic and musculoskeletal conditions by influencing policy and practice nationally and internationally through evidence and advocacy. He works with and advises policymakers in UK, European Commission and WHO. The current focus is on the importance of musculoskeletal health in the workplace and in ageing populations.  Prof. Woolf is chair of Arthritis and Musculoskeletal Alliance and has held leading positions within various national, European and International organisations – immediate Past Chair and founder member of the Global Alliance for Musculoskeletal Health; past Chair, National Osteoporosis Society UK; past member of EULAR Executive Committee as chair of the Education and Training Standing Committee; and past President UEMS (European professional organisation for rheumatology).  He has been appointed Honorary Professor of Rheumatology to University of Exeter Medical School and Plymouth University Peninsula Schools of Medicine and Dentistry, and was visiting Professor in Musculoskeletal Science, Faculty of Medicine, Lund University, Sweden, 2008–2014.

About the American College of Rheumatology

The American College of Rheumatology is an international medical society representing over 9,400 rheumatologists and rheumatology health professionals with a mission to empower rheumatology professionals to excel in their specialty. In doing so, the ACR offers education, research, advocacy and practice management support to help its members continue their innovative work and provide quality patient care. Rheumatologists are experts in the diagnosis, management and treatment of more than 100 different types of arthritis and rheumatic diseases. For more information, visit www.rheumatology.org.