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EULAR

On behalf of Nele Caeyers, Chair of the EULAR Standing Committee of People with Arthritis/Rheumatism in Europe (PARE); Dieter Wiek, EULAR Vice President, representing PARE; and Polina Pchelnikova, Working Group leader of the Edgar Stene Prize; the EULAR secretariat is delighted to announce the call for entries for the Edgar Stene Prize Competition 2019.

People with rheumatic and musculoskeletal disorders are invited to write about their personal experiences submitting essays on the topic of:

“My ideal employer – Work without barriers for people with RMDs”

Please find more information in the attached documents [both PDFs]:

Please take a careful look at the deadlines and entry rules mentioned in the respective documents. The deadline for UK entries is Tuesday 11 December 2018, entries should be sent to projects@arma.uk.net by that date.

As with previous years, the national winning essays will be accepted in their native language and the EULAR Secretariat will take care of translating them into English.

EULAR looks forward again to receiving many inspiring and encouraging essays from all over Europe!

The EULAR PARE Editorial Board need your input regarding their publications, in order to assess their impact and value. They are looking for one person per organisation to give feedback on their e-Breakthrough newsletter and the hard copy, Breakthrough.

It would help them if you could fill out a short online survey by 30 July at the latest.

EULAR sends thanks in advance for your kind support!

EMEUNET (the Emerging Eular NETwork) and the EULAR School of Rheumatology have launched an online educational initiative called Twitter Journal Club, facilitated by experienced rheumatologists. The aim is to allow Twitter users to participate in a discussion with colleagues around the world about recent key papers in rheumatology.

Each month details of the article selected for the Journal Club as well as the EMEUNET paper of the month will be available for download on our the EMEUNET websiteYou can also have a look at the previous Journal Club sessions.

Survey: Social Media for health-related purposes

You are invited to participate in a research study titled “Understanding how people with rheumatic and musculoskeletal diseases (RMDs) use social media for health-related purposes.”  This study is being undertaken by a team of international researchers and patient research partners.

Social media has been gaining increasing momentum in recent years and is used by different groups to stay up to date or exchange information. Social media tools are easily accessible and independent of geographical location. Therefore, social media also provides people with chronic conditions, such as rheumatic and musculoskeletal diseases (RMDs), with new opportunities to identify information about their condition(s) and treatment(s), as well as the ability to connect with other patients, carers, patient organisations and healthcare professionals. However, despite the premise of social media for people with RMDs, it is less clear how and why people with RMDs use social media in relation to their health and wellbeing.

You can read the project summary here [in PDF] and take part in the survey via this link.

 

In May 2018, The European League Against Rheumatism published a set of recommendations designed to help health professionals implement approaches to pain management in inflammatory arthritis and osteoarthritis patients. The aim is to reduce pain and the burden on the individual and society.

Pain is the predominant symptom for people with inflammatory arthritis (IA) and osteoarthritis (OA), mandating the development of new, evidence-based EULAR Recommendations for the health professional’s approach to pain management in inflammatory arthritis and osteoarthritis.

The target users of these recommendations are health professionals in the field of rheumatology, including rheumatologists. Prompt and knowledgeable pain management support can reduce pain, increase functioning and well-being, and reduce individual and societal costs. Practitioners in all healthcare settings should therefore have the knowledge and skills required to help people with IA and OA to better manage their pain; rheumatology health professionals are ideally placed to provide comprehensive, evidence-based, and patient-centred care.

Click on the image to see it full size,
or click here to download this flow chart as PDF.

Pain management typically includes education. Based on the needs of the patient, education is complemented by physical activity and exercise; aids and assistive devices; psychological and social interventions; sleep hygiene education; weight management; pharmacological and joint-specific treatment options; and interdisciplinary pain management. Underpinned by available systematic reviews and meta-analyses, these recommendations enable health professionals to provide knowledgeable pain management support for people with IA and OA. 

A multidisciplinary task force including patient representatives conducted a systematic literature review to evaluate evidence regarding effects on pain of multiple treatment modalities. The task force, which included eighteen members from twelve countries, consisted of patient representatives, nurses, physiotherapists, psychologists, rheumatologists, a general practitioner, an occupational therapist, a clinical epidemiologist, and a research fellow. 

From 2,914 studies initially identified, 186 met inclusion criteria. Based on the reviewed studies and expert opinion, the task force emphasised the importance for the health professional to adopt a patient-centred framework within a biopsychosocial perspective, to have sufficient knowledge of IA and OA pathogenesis, and to be able to differentiate localised and generalised pain. The assessment of patient needs, preferences and priorities; pain characteristics; previous and ongoing pain treatments; inflammation and joint damage; and psychological and other pain-related factors were deemed important. 

EULAR has funded a project aimed at understanding the development, evaluation and implementation of mobile phone applications for self-management in patients with rheumatic diseases.

Following a systematic literature teview, the project task force is now at a stage where it would like to gain insights into the patient’s views, perceptions and current use of health apps for self-management.

EULAR therefore kindly asks you to fill in the following survey:
surveymonkey.com/mHealthAppsSurvey
It takes 5 to 10 minutes to complete.

ASone wins European Award

NASS is delighted to announce our ASone website is the inaugural winner of the EULAR Young PARE Youth Award.

In summer 2017 NASS launched ASone, a platform aimed at young people with AS. It’s a community where young people can share their thoughts, feelings and experiences. ASone covers a range of issues including studying, relationships, managing AS and exercising.

Read more about ASone from the NASS website.

 

Axial Spondyloarthritis Seminar

NASS welcomed 40 osteopaths and chiropractors to our inaugural Axial Spondyloarthritis Seminar on 21 February.

Hosted by the Norfolk and Norwich University Hospital, the programme included talks from Dr Karl Gaffney (Consultant Rheumatologist), Mandy Rush and Andrea Lucchetti (Chiropractors), Zoe Clark (Osteopath) and Sally Dickinson from NASS.

All of the talks were met with enthusiasm and Dr Gaffney led a lively discussion around the most recent developments in AS and the issues that the groups of healthcare professionals face in referring people with suspected AS to a rheumatologist.

Read more about the event here.

ultrasound diagram

The European League Against Rheumatism, EULAR, has published a set of recommendations, which look at the use of imaging modalities in primary large vessel vasculitis, including giant cell arteritis and Takayasu arteritis.

The recommendations are intended to advise physicians on the use of imaging modalities (including ultrasound, magnetic resonance imaging, MRI, computed tomography, CT, and positron emission tomography, PET) when making a clinical diagnosis of large vessel vasculitis (LVV), and when to apply imaging for monitoring of disease activity and damage.

See the press release, Recommendations for the use of imaging in large vessel vasculitis in clinical practise [pdf] for detail and explanation. Accompanying the text is a diagram [credit to Christian Dejaco] showing example utrasound images of patients with large vessel vasculitis. Click here to see it in full size.

The EULAR organisation is particularly delighted that Hans Bijlsma, EULAR President, has kindly agreed to share his knowledge and insights on some hot topics for our next webinar:

“News on biologics/biosimilars, JAK-inhibitors and Glucocorticoids
as well as insights into the latest EULAR Guidelines and their development”

The webinar is scheduled for Thursday, 14 December, 14.00 – 15.30 CET.

It will be hosted via WEBEX and you will have to register in advance with Birte Glüsing (birte.gluesing@eular.org) at the EULAR Secretariat to receive the details for joining us.

If you would like to participate, please let me know as soon as possible, but by 12th December at the latest