Person-centred-coordinated-care-ARMA-Jacquie_White

“What matters most”:
Person-centred co-ordinated care for LTCs

ARMA’s AGM 2015, 9th July.

Our Guest Speaker, Jacquie White, Deputy Director for Long-Term Conditions, shared NHS England’s vision for person-centred, coordinated care in partnership with ARMA.

Download Jacquie White’s slide presentation and audio
from the lecture.

Musculoskeletal and Arthritis News

BJD moving forward …

The Bone & Joint Decade is moving forward by renaming itself The Global Alliance for Musculoskeletal Health. This better represents what it is - organisations coming together in countries around the world to make musculoskeletal health a priority. It continues to be led by an International Coordinating Council with networks of organisations working together at a national level around the world. ARMA is the National Alliance for the UK and acts as an exemplar of what is needed in each country. National Alliances such as ARMA are the formal voting members of the Global Alliance but regional and international organisations ...

Guest Blog - Is absence of evidence, evidence of its absence?

By Roderic MacDonaldMusculoskeletal Physician to the North West London NHS Community Health Trust,Past President of BIMM. Having reached the tail-end of my career with my practice pruned down to dealing primarily with spinal pain, I could be in a quiet backwater thinking about retirement… but then things keep coming up that disturb my peace. One such disturbance was when I attended the recent ARMA AGM, representing the British Institute of Musculoskeletal Medicine [BIMM]. Fortunately, I could contribute this blog to respond to several points arising during this gathering of people from all viewpoints of the alliance’s family. The importance of evidence is ...

New Lupus Awareness Month Poster

Lupus Awareness Month takes places in October each year in the UK. This new poster was recently posted to all members of LUPUS UK alongside their summer magazine so that they can display it within their local community and raise more awareness. The poster shows a woman holding a mask with her own smiling face on it, supported by the caption, “Nobody takes you seriously when you look well”. This is a direct quote taken from a lupus patient, highlighting the difficulties of living with a condition that often presents with no or few visible symptoms – an invisible illness. The ...

Portsmouth Hospitals Light Music Event, Sept 2015

The Department of Rheumatology, Portsmouth Hospitals Charity, invites you to an afternoon of light music and cream tea at the Pyramids Centre on the Clarence Esplanade. Sunday 27th September 2015 With music from the Portsmouth Philharmonia Orchestra. An event in aid of the Department of Rheumatology Charitable Funds, Osteoporosis & Bone Health. Please see the full size poster for ticket details and contacts.

NRAS CEO voted one of top ‘Patient Leaders’ by HSJ

Health Service Journal (HSJ) have announced their top 50 Patient Leaders, recognising the users who are shaping healthcare and we are delighted and proud to announce that our CEO, Ailsa Bosworth is amongst them! Ailsa said, "I’m thrilled to have been included in this group of inspirational people and would like to congratulate all of them. I’m particularly pleased if it brings greater recognition and awareness to RA, rheumatology and of course raising awareness of NRAS and our work”. Find out more on the NRAS website here.

Dream Team takes on the Great North Run

Please take the time to support the ‘Dream Team’ taking part in this year’s Great North Run in September and raising funds for NRAS. Chris Deighton, David Scott, Catherine Swales, along with Donna and Dean Swinden will be pushing Ailsa Bosworth, CEO of NRAS, around the course in her wheelchair! You can donate by visiting their Justgiving page.Thank you. Do you know someone with a passion for digital? We are looking for passion for digital media to join a small and dynamic team and make a real impact to our vital work. We are at an exciting point in the ...

Lara to take up international role for EDS

I am writing to share the exciting news that at the last EDS UK trustee meeting earlier in July Lara advised us that she had accepted the offer of a Chief Executive position at a new umbrella organisation called EDS International. She will start this position in August, and therefore leaves EDS UK as chief operations officer at the end of July. What is EDS International? EDS International is a new umbrella organisation that will focus on strengthening the communities in each country and bringing them together as a powerful voice for change. Lara will be working to ensure that consistent reliable ...

Early bird booking for BSR Autumn Conference

BSR Autumn Conference 2015 – early bird booking closes 09 August. Taking place 15-16 October at the ICC Birmingham, Autumn Conference focusses on interactive cases submitted by delegates with sessions led by world experts. This international summit brings together consultants and next generation rheumatologists to share and exchange best practice through high-level discussion groups, lively debates and expert panel sessions. Find out more and book your discounted place at www.autumn-conf.org.uk.

Information and Communication Officer

Join the Scleroderma Society in a central role as their Information and Communication Officer. You will ensure that all communication material is accurate, accessible, impartial, balanced, based on evidence and well-written. You will monitor the Charity's impact online, report on key trends and develop new initiatives and campaigns to increase traffic. You will play a vital role in developing excellent communication material for the Scleroderma Society. See more details on the charity job website.

Parliamentary debate on fibromyalgia

Report from debate in Parliament on fibromyalgia, by Fibromyalgia Action UK Alok Sharma MP (Reading West) introduced a Westminster Hall debate on fibromyalgia on 1st July 2015, initiated through contact with the Reading fibromyalgia support group. The debate was attended by only 7 MPs and a junior minister from the Department for Business, Innovation and Skills George Freeman MP. We are pleased that there were representatives MPs from all four UK’s countries: England, Scotland, Wales and Northern Ireland. There were only 4 members of the public attending, including two representatives from Fibromyalgia Action UK. However we know from social media activity that ...

BAcC Accreditation and Conference Call

British Acupuncture Council at Professional Standards Authority Accredited Registers event – 1st July 2015 This event brought Accredited Registers, such as the British Acupuncture Council, together with representatives from the Royal College of General Practitioners, Hospices, National Voices, the Association of Directors of Adults Social Services, NHS employers, commissioners, amongst others. Speakers confirmed the benefit of assurance provided by the accreditation scheme. Read more from the Professional Standards website. Conference Call Join us at the forthcoming British Conference of Acupuncture and Oriental Medicine from 25 – 27 September at the Orchard Hotel, Nottingham. There is availability if you’d like to attend as ...

Latest dates in the BIMM diary

The British Instutute of Musculoskeletal Medicine's latest details on coming courses and events in 2015.Dates include the BIMM/SOMM Winter Symposium, a Chronic Pain Management module, and a Flouroscopic Injection course. The current BIMM Diary is available here to open and download in PDF form, or alternatively check ARMA's Events Calendar.

National Voices’ Wellbeing Our Way programme is one year old!

“Excellent opportunity to meet and work with lots of wonderful people – and to be reminded of other people’s experiences/lives/views.” Wellbeing Our Way is about enabling people to manage their health in ways which matter to them. We work through community and voluntary organisations. It is supported by The Health Foundation, an independent charity working to improve the quality of healthcare in the UK. It’s been an exciting first year for Wellbeing Our Way - the POW WOW series has been a popular and engaging way of sharing good practice; the emerging communities of practice are bringing together small groups of organisations ...

Premiere of Sonata for Cello - film about fibromyalgia

Fibromyalgia Action UK Chair Pam Stewart and Executive Officer Ella Vine have recently watched the premiere of "Sonata pera Violoncel" ("Sonata for Cello"), a breathtaking film about living with fibromyalgia. It is a fictional story of a world-renowned cellist, who in her midlife developed fibromyalgia. The condition made it impossible for her to continue to play; it was a story of a daily struggle between the physical and emotional pain of not being able to do what she wants to do and a strong will to continue to play regardless of the pain. Playing the cello is for the cellist everything; ...

Vacancy: Head of Operations, National Voices

Head of Operations, National Voices Full time, permanent, 35 hours a week, central London £45,000 to £50,000, subject to skills and experience. National Voices is the leading coalition of health and care charities in England, influencing policy and practice. We champion a strong patient and citizen voice in health, and the vital role of the voluntary sector. We are seeking a Head of Operations.  Serving 160 member organisations, we have a wide portfolio of membership, policy, advisory and project work. We enjoy a growing reputation among decision makers in government, the NHS and the wider health and social care worlds. With a team of ...

Consultation on biologic DMARDS in the treatment of Rheumatoid Arthritis

NICE released the Appraisal Consultation Document (ACD) on biologic DMARDS used in the treatment of Rheumatoid Arthritis (RA) on 19th June. The main recommendation of the ACD supports the current position that the drugs remain available only to those most severely affected. Although this is welcomed a joint statement by NRAS, BSR and Arthritis Care highlights the missed opportunity to improve patient care and extend the use of such drugs for people with moderate disease.

Guest Blog: Empowering our members to take action through self-management

by Shantel Irwin, CEO Arthritis Action Corks were flying on June 18th 2015 for me and my team at Arthritis Action as we officially launched with our new name, new look and new direction. The last 12 months have been transformational for our charity. After more than a year of research, review, redesign and reform, Arthritis Action finally relaunched at The King’s Fund to an audience of more than 100 members and guests from across the musculoskeletal health sector. We were delighted to welcome so many friends and colleagues at our event, which gave us the chance to outline our rationale for change, ...

Arthritis Research UK MSK-HQ Conference

Arthritis Research UK hosted the ‘MSK-HQ Conference’ in London on 28 May 2015. The event was in two parts - in the morning, Arthritis Research UK hosted the second meeting of the National Musculoskeletal Health Data Group. This group, chaired by Dr Benjamin Ellis, our senior clinical policy advisor, meets every six months to discuss the community’s projects aiming to improve the extent and quality musculoskeletal data nationally, regionally, and locally. David Lawrence from PHAST, a public health consultancy, updated the group on the progress they have made in developing a set of nationally recognised indicators which the ...

New Chief Medical Advisor to NRAS

Professor Peter Taylor appointed as new Chief Medical Advisor to NRAS Prof. Peter Taylor MA, PhD, FRCP, FRCPE Norman Collisson Professor of Musculoskeletal Sciences, Kennedy Institute of Rheumatology, is to take over from Prof. David G.I. Scott, who stands down after 8 years of loyal service to NRAS, as Chief Medical Advisor. Prof. David G.I. Scott has supported the charity brilliantly in so many ways over the years and will continue to support NRAS as medical patron. Find out more from the NRAS news page. RA Awareness Week 2015 Following last week's RA Awareness Week we just wanted to get in touch and thank everyone ...

NICE publication of Osteoarthritis quality standards

NICE published the NICE quality standard for Osteoarthritis on the 11th June 2015. This quality standard covers the assessment and management of OA in adults (18 and over). It does not cover replacement of hip, knee or shoulder joints as these will be covered in a future NICE guideline and quality standard.

Richmond Group policy project

Arthritis Research UK has entered into a new policy project with a key group of long term conditions charities known as the Richmond Group of Charities. This group (which includes Macmillan Cancer Support, Age UK, British Heart Foundation and Stroke Association) has been working in partnership for a number of years on issues such as prevention, coordinated care and ensuring that patients are engaged in decisions about their care. Arthritis Research UK is keen to ensure that the needs of people living with arthritis are included in their thinking and are delighted to be working on a new policy ...

An Introduction to Musculoskeletal Service Redesign in Ealing

Dr Ian Bernstein and Stephanie Griffiths answer questions on the nationally acclaimed musculoskeletal service in Ealing and how it was implemented. The redesign started about 20 years ago, when all musculoskeletal services were provided in secondary care. There was no GP access to physiotherapy; patients would be referred to a consultant and could be waiting for up to a year before seeing a physiotherapist. In the 1990s, under GP fundholding, a small number of GP practices in Ealing bought physiotherapy services. Following the demise of fundholding, a community musculoskeletal service was set up using the same pot of money, but it ...

Arthritis Research UK Parliamentary Reception

Arthritis Research UK held their first parliamentary reception of the new Parliament on 10th June 2015. Over 60 MPs showed their support for people living with arthritis by agreeing to be Arthritis Champions. This is the most MPs we have ever had at one of our parliamentary events. MPs from across the UK and from all major parties came along to pledge their support to prevent and cure arthritis, and transform the services available to people with musculoskeletal conditions. The reception was hosted by Huw Irranca-Davies, MP for Ogmore in South Wales, who became our first Arthritis Champion back in October. ...

Educationalist Board Vacancies & PSA Consultation

PSA education and training standards consultation - The Professional Standards Authority (PSA) commissioned a review of education and training Standard 9 of the Standards for Accredited Registers. The PSA agreed that education and training standards should be made explicit to the public and is proposing a change of wording to make this requirement clear and to amend the assessment process. The BAcC believes this does not go far enough, and that it should explicitly state that the standards should meet international benchmarks, for example at the degree level recommended for acupuncture by the World Health Organisation (WHO). See the PSA ...

PCR Annual Conference 2015

The annual PCR Conference in York features a highly respected hands-on, friendly educational conference for GPSIs in MSK and Rheumatology where you can learn from, build contacts and mix with your peers. This year's theme is "Lifestyle Changes + Impact on MSK & Rheumatology Outcomes". Thursday, 19th of November 2015 (noon start) until Saturday, 21st of November 2015 (1pm finish) Download the conference programme and application form (PDF document), or read more details from the PCR Society events page.

Guest Blog: From desk to home caring – backs are a problem!

by Stuart Blackman, CEO of BackCare I am really enjoying working with BackCare as the new Chief Executive. We are at the cusp of a new phase of development of the charity. BackCare is the UK’s national back pain charity, founded 1968 – our mission is to turn the tide on back pain, the world’s leading cause of human disability. We do this through research, education and outreach initiatives. Our new website is now the primary platform through which we can reach out to our key stakeholders: patients, clinicians, researchers, educators and our corporate supporters. We have used this time to re-envision ...

Parliamentary Reception & MSK Symposium

Parliamentary reception: Arthritis Research UK is holding a reception in Parliament on 10 June 2015 (13:00-15:00, Dining Room A). It would be great to have as many people from the musculoskeletal sector there as possible, and you are all welcome to attend. Please contact Michael at m.watson@arthritisresearchuk.org if you are able to make it. Working with musculoskeletal conditions: We are holding a symposium ‘Working with musculoskeletal conditions’ on 16 June 2015. It will bring together people with musculoskeletal conditions, policy leads, members of the academic community and employers to discuss current initiatives and identify opportunities for action. For further information contact ...

'Vanguard' project now open to entire acute sector

NHS England has expanded the scope of its ‘vanguard’ project to trial new care models, to encompass the viability of the entire acute sector. New vanguard stream could apply to any acute trust - not just smaller hospitals Project aims to develop nationally replicable hospital chain models Timescale to select new vanguard cohort is extended Chief executive Simon Stevens launched the fourth and final part of the vanguard yesterday in a speech at the King’s Fund. The central authority – working alongside five other national arm’s length bodies – has invited expressions of interest ...

Stevens launches hospital chains 'vanguard' - NHS England

NHS England will ‘test new ways’ of sustaining smaller hospitals, including ‘chains’ running acute services, in its latest vanguard programme launched today by Simon Stevens. The NHS England chief executive said Monitor, the NHS Trust Development Authority and NHS England would be taking forward the work on hospital chains produced by Sir David Dalton last year. This will include looking at: how trusts can create buddying arrangements across medical specialties rather than whole organisations; how hospitals can share back office functions; and the increased use of satellite sites. He cited the eye clinic at Dartford and Gravesham Trust run by ...

Fibromyalgia Association UK and FibroAction to Merge

The trustees of FibroAction and FMA UK are proud to announce the merger of the two organisations into a new entity, Fibromyalgia Action UK, as of 1st July this year. It will combine both charities’ expertise, experience and resources to better serve people affected by fibromyalgia. Both charities have the same mission and aims; both provide similar services benefiting the same group of people nationally, and working as one organisation will enhance this work. The merger will take place on the 1st of July 2015 and the new organisation will be called Fibromyalgia Action UK (FMA UK). The name ...


ARMA is the umbrella body providing a collective voice for the arthritis and musculoskeletal community in the UK.

Together, ARMA and its member organisations work to improve quality of life for all those living with musculoskeletal (MSK) disorders in the UK.

We aim to foster co-operation between charities and professional organisations, working to enhance understanding and mutual support between individuals and organisational bodies.