Adopting a collaborative approach to orphan rheumatic and musculoskeletal diseasesOn the 26th November 2015, the British Society for Rheumatology (BSR) will host a workshop entitled Rheumatology and Rare Conditions – adopting a collaborative approach to orphan rheumatic and musculoskeletal diseases. The aim of the event is to raise the profile of rare rheumatic and musculoskeletal diseases (RMDs) in national policy frameworks, highlight the challenges facing patients and services and facilitate greater collaboration across the sector.The workshop will bring together representatives from rare condition charities, local specialised rheumatology leads, and key policy makers in national specialised commissioning, to discuss the emerging ...
Hot of the press is the latest NRAS Annual Review, reporting back on our achievements and activities in 2014 to help people like you. We are proud to say that in 2014 we reached 982,236 people, launched 9 new NRAS Groups, answered 1,958 helpline calls and sent out 37,628 NRAS publications.Find out more by downloading your copy here now. Rheum2Talk comes to ManchesterThe publication of the NRAS’ booklet on patients’ emotions , relationships and sexuality, followed by the 2014 pilot workshop for nurses, physiotherapists, OTs and other allied health professionals have both been a great success.NRAS is now delighted to announce ...
With just over 2 weeks to go before the run the team needs your support. This year will be particularly difficult for Ailsa as the last 8 months has been the most challenging period she has had to face in many years; her pain levels have been incredibly high and inflammation to her eyes has been constant.The good news is that in the last few weeks Ailsa’s disease has greatly improved and she will definitely be part of the ‘Dream Team’ on the 13th September. Please take the time to visit their Justgiving page at https://www.justgiving.com/GNRDreamteam and make a donation, ...
NRAS are really pleased to announce that this September we are launching a new group covering the Greater Glasgow and Clyde area for people living with rheumatoid and inflammatory arthritis!The event is taking place in The Renfield Centre at St. Stephens Church, 260 Bath Street, Glasgow, G2 4HZ on Wednesday 16th September from 6:30-8:00pm.This meeting is a joint venture by NRAS and GG&C Health Board. It is open to anyone living with RA or inflammatory arthritis, and their family and carers. It is a free event so everyone is welcome to attend and you do not need to be ...
· Work policy and musculoskeletal conditions: Our policy symposium, on 16 June, brought together people with musculoskeletal conditions, policy leads, members of the academic community and employers to discuss current initiatives and identify opportunities which can support people with musculoskeletal conditions to remain, or return to work. We are producing a report of this event. We have learned that the Department of Health and the Department for Work and Pensions have set up a work and health joint unit. We have been invited to take part in a roundtable with leads from this unit, together with Mind, in August. We ...
The British Instutute of Musculoskeletal Medicine’s diary of coming courses and events in 2015.Details of the BIMM/SOMM Winter Symposium, a Chronic Pain Management module, and a Flouroscopic Injection course.The current BIMM Diary is available here to open and download in PDF form, or alternatively check ARMA’s Events Calendar.
Wellbeing Our Way is about enabling people to manage their health in ways which matter to them. We work through community and voluntary organisations. The programme is supported by The Health Foundation, an independent charity working to improve the quality of healthcare in the UK.Wellbeing Our Way’s communities of practice bring together small, diverse groups of voluntary and community organisations. We aim to make real headway in developing some of the ‘more than medicine’ approaches we know can enable people to manage their health needs and live well.The first three communities of practice are now underway and are focusing on: ...
An awareness event is being held in the Scottish Parliament on 4th November 2015 for psoriatic arthritis and psoriasis.
5.45pm until 8, the Robert Burns Room, Holyrood.
Professor IAIN MCINNES – the leading authority on RA and PsA, Glasgow University, and The Institute of Inflammation and Infection, Glasgow. The Minister for Health Improvement Scotland will also speak. Some patients will attend.
If you`d like to attend, please contact Lorna Saunders at Pagoda Agency, asap.
PsA affects around 38,000 in Scotland alone and can disable as much as RA.
Early diagnosis and correct treatments are essential.
Around one in three people with even mild ...
EULAR PARE are asking people to take action for WAD and share virtual High 5s on social media, using the hashtag #WADHigh5.
Post WAD High-5 photos on Twitter, Instagram and Facebook to show support for people with RMDs, their carers, family and friends and healthcare professionals, and also raise awareness of RMDs among the general public.
The Thunderclap campaign is being launched at the beginning of September with the goal of mass-sharing a message about WAD on social media across hundreds of social media profiles on 12th October. For more information on all the activities being planned for WAD please download ...
NASS will be travelling the length and breadth of the UK this autumn to raise awareness and understanding of ankylosing spondylitis (AS). Our two largest events are in Scotland and Northern Ireland.
In Scotland we will be heading to the Scottish Parliament to ask Members to pledge their support for those with AS at a reception on 1 September 2015. The event will be hosted by Margaret McCulloch MSP, Convenor of the Cross-Party Group for Musculoskeletal Conditions. In the afternoon leading up to our event at Holyrood, there will be a Patient Conference, offering expert information to people with AS.
This month LUPUS UK has published its new leaflet for patients, ‘Lupus and Depression’.
Depression is a common manifestation in people with lupus, so the purpose of this leaflet is to provide information and also signpost available support services.
The new leaflet is available free of charge by contacting LUPUS UK National Office. Alternatively it can be viewed and downloaded from the Living with Lupus section of our website.
LUPUS UK Re-brand – Coming Soon
On Monday 12th October 2015, LUPUS UK will be revealing their new re-brand. This overhaul of the current appearance of the charity will incorporate all of our existing ...
First awarded in 1975, the Edgar Stene Prize was created by EULAR in honour of Edgar W Stene. The founder and Secretary-General of the Norwegian Rheumatism Association, Edgar Stene also lived with Ankylosing Spondylitis.
The competition for the Edgar Stene Prize 2016 is currently open for entries on the topic of:
“Living with a rheumatic or musculoskeletal disease (RMD):
How I take action to enjoy life to the full”
The competition invites people to share their personal experiences and their individual coping strategies to ‘live life to the full’ despite being affected by a rheumatic or musculoskeletal disease.
What are your top tips on ...
The second week in September is Fibromyalgia Awareness Week, which is an ideal time to make FM more visible. At the time of writing the new logo has not been decided but will be available shortly on our website www.fmauk.org. Our suggestion for the awareness this month is to use the logo (or at least the colours) on a cake or cakes. These can then be used in an enjoyable way to spread the word about FM.
You do not need to bake and decorate the cakes yourself, but I am sure some of you can come ...
A recent article in the Guardian highlighted the mechanism of Acupuncture: a study found that a form of therapy that uses electric current blunted activity in rats’ hormonal pathway linked to stress, chronic pain and mood. For other recent press coverage, take a look at the BAcC news page.
New Patrons of the British Acupuncture Council
The BAcC Governing Board are pleased to announce two new Patrons of the Governing Board – Lord Baldwin, who was instrumental in establishing the British Acupuncture Accreditation Board and Lord Charles Cecil, who was previously on the BAcC Governing Board.
National Clinical Advisor for Integrated Personal Commissioning / Person Centred Care- an NHS England role
As a National Clinical Advisor, the post holder will work with the Integrated Personal Commissioning team and other key teams, leading on clinical engagement and support to the Integrated Personal Commissioning (IPC) sites. As part of the Directorate of Commissioning Strategy, the IPC delivery team has a key role in supporting the delivery of person-centred care across the NHS as outlined within the Five Year Forward View. The role will also have wider input and provide expert advice on policy development in the person centred care ...
The Bone & Joint Decade is moving forward by renaming itself The Global Alliance for Musculoskeletal Health. This better represents what it is - organisations coming together in countries around the world to make musculoskeletal health a priority. It continues to be led by an International Coordinating Council with networks of organisations working together at a national level around the world. ARMA is the National Alliance for the UK and acts as an exemplar of what is needed in each country.
National Alliances such as ARMA are the formal voting members of the Global Alliance but regional and international organisations ...
By Roderic MacDonaldMusculoskeletal Physician to the North West London NHS Community Health Trust,Past President of BIMM.
Having reached the tail-end of my career with my practice pruned down to dealing primarily with spinal pain, I could be in a quiet backwater thinking about retirement… but then things keep coming up that disturb my peace. One such disturbance was when I attended the recent ARMA AGM, representing the British Institute of Musculoskeletal Medicine [BIMM]. Fortunately, I could contribute this blog to respond to several points arising during this gathering of people from all viewpoints of the alliance’s family.
The importance of evidence is ...
Lupus Awareness Month takes places in October each year in the UK. This new poster was recently posted to all members of LUPUS UK alongside their summer magazine so that they can display it within their local community and raise more awareness.
The poster shows a woman holding a mask with her own smiling face on it, supported by the caption, “Nobody takes you seriously when you look well”. This is a direct quote taken from a lupus patient, highlighting the difficulties of living with a condition that often presents with no or few visible symptoms – an invisible illness.
The Department of Rheumatology, Portsmouth Hospitals Charity, invites you to an afternoon of light music and cream tea at the Pyramids Centre on the Clarence Esplanade.
Sunday 27th September 2015
With music from the Portsmouth Philharmonia Orchestra.
An event in aid of the Department of Rheumatology Charitable Funds, Osteoporosis & Bone Health.
Please see the full size poster for ticket details and contacts.
Health Service Journal (HSJ) have announced their top 50 Patient Leaders, recognising the users who are shaping healthcare and we are delighted and proud to announce that our CEO, Ailsa Bosworth is amongst them!
Ailsa said, "I’m thrilled to have been included in this group of inspirational people and would like to congratulate all of them. I’m particularly pleased if it brings greater recognition and awareness to RA, rheumatology and of course raising awareness of NRAS and our work”.
Find out more on the NRAS website here.
Please take the time to support the ‘Dream Team’ taking part in this year’s Great North Run in September and raising funds for NRAS. Chris Deighton, David Scott, Catherine Swales, along with Donna and Dean Swinden will be pushing Ailsa Bosworth, CEO of NRAS, around the course in her wheelchair! You can donate by visiting their Justgiving page.Thank you.
Do you know someone with a passion for digital?
We are looking for passion for digital media to join a small and dynamic team and make a real impact to our vital work. We are at an exciting point in the ...
I am writing to share the exciting news that at the last EDS UK trustee meeting earlier in July Lara advised us that she had accepted the offer of a Chief Executive position at a new umbrella organisation called EDS International. She will start this position in August, and therefore leaves EDS UK as chief operations officer at the end of July.
What is EDS International?
EDS International is a new umbrella organisation that will focus on strengthening the communities in each country and bringing them together as a powerful voice for change. Lara will be working to ensure that consistent reliable ...
BSR Autumn Conference 2015 – early bird booking closes 09 August.
Taking place 15-16 October at the ICC Birmingham, Autumn Conference focusses on interactive cases submitted by delegates with sessions led by world experts.
This international summit brings together consultants and next generation rheumatologists to share and exchange best practice through high-level discussion groups, lively debates and expert panel sessions. Find out more and book your discounted place at www.autumn-conf.org.uk.
Join the Scleroderma Society in a central role as their Information and Communication Officer.
You will ensure that all communication material is accurate, accessible, impartial, balanced, based on evidence and well-written. You will monitor the Charity's impact online, report on key trends and develop new initiatives and campaigns to increase traffic.
You will play a vital role in developing excellent communication material for the Scleroderma Society.
See more details on the charity job website.
Report from debate in Parliament on fibromyalgia, by Fibromyalgia Action UK
Alok Sharma MP (Reading West) introduced a Westminster Hall debate on fibromyalgia on 1st July 2015, initiated through contact with the Reading fibromyalgia support group.
The debate was attended by only 7 MPs and a junior minister from the Department for Business, Innovation and Skills George Freeman MP. We are pleased that there were representatives MPs from all four UK’s countries: England, Scotland, Wales and Northern Ireland. There were only 4 members of the public attending, including two representatives from Fibromyalgia Action UK. However we know from social media activity that ...
British Acupuncture Council at Professional Standards Authority Accredited Registers event – 1st July 2015
This event brought Accredited Registers, such as the British Acupuncture Council, together with representatives from the Royal College of General Practitioners, Hospices, National Voices, the Association of Directors of Adults Social Services, NHS employers, commissioners, amongst others. Speakers confirmed the benefit of assurance provided by the accreditation scheme.
Read more from the Professional Standards website.
Join us at the forthcoming British Conference of Acupuncture and Oriental Medicine from 25 – 27 September at the Orchard Hotel, Nottingham. There is availability if you’d like to attend as ...
The British Instutute of Musculoskeletal Medicine's latest details on coming courses and events in 2015.Dates include the BIMM/SOMM Winter Symposium, a Chronic Pain Management module, and a Flouroscopic Injection course.
The current BIMM Diary is available here to open and download in PDF form, or alternatively check ARMA's Events Calendar.
“Excellent opportunity to meet and work with lots of wonderful people – and to be reminded of other people’s experiences/lives/views.”
Wellbeing Our Way is about enabling people to manage their health in ways which matter to them. We work through community and voluntary organisations. It is supported by The Health Foundation, an independent charity working to improve the quality of healthcare in the UK.
It’s been an exciting first year for Wellbeing Our Way - the POW WOW series has been a popular and engaging way of sharing good practice; the emerging communities of practice are bringing together small groups of organisations ...
Fibromyalgia Action UK Chair Pam Stewart and Executive Officer Ella Vine have recently watched the premiere of "Sonata pera Violoncel" ("Sonata for Cello"), a breathtaking film about living with fibromyalgia.
It is a fictional story of a world-renowned cellist, who in her midlife developed fibromyalgia. The condition made it impossible for her to continue to play; it was a story of a daily struggle between the physical and emotional pain of not being able to do what she wants to do and a strong will to continue to play regardless of the pain. Playing the cello is for the cellist everything; ...
Head of Operations, National Voices
Full time, permanent, 35 hours a week, central London
£45,000 to £50,000, subject to skills and experience.
National Voices is the leading coalition of health and care charities in England, influencing policy and practice. We champion a strong patient and citizen voice in health, and the vital role of the voluntary sector. We are seeking a Head of Operations.
Serving 160 member organisations, we have a wide portfolio of membership, policy, advisory and project work. We enjoy a growing reputation among decision makers in government, the NHS and the wider health and social care worlds. With a team of ...
ARMA is the umbrella body providing a collective voice for the arthritis and musculoskeletal community in the UK.
Together, ARMA and its member organisations work to improve quality of life for all those living with musculoskeletal (MSK) disorders in the UK.
We aim to foster co-operation between charities and professional organisations, working to enhance understanding and mutual support between individuals and organisational bodies.
ARMA's vision is of an effective, unified musculoskeletal community working together to improve the lives of people with musculoskeletal disorders (MSDs).
Read about our values and our strategy.
ARMA strives to transform the quality of life of people with musculoskeletal disorders. This is achieved by shaping policy and best practive in partnership with its member organisations. Read about our members.