We’re delighted to inform you that the Scleroderma Society is now accredited by the Information Standard. The Information Standard is a certification programme for organisations producing evidence-based health and care information for the public.
To achieve the accreditation the Society underwent a rigorous assessment to check that the information produced is clear, accurate, balanced, evidence-based and up-to-date. When you see the Information Standard quality mark on any of our materials you can be assured that the information is trustworthy, reliable and creditable.
In April-May the Society responded to 3 consultations – NHSE policy on commissioning Bosentan, NHSE investigating specialised services, Norther Ireland review of the Individual Funding Process. Read our responses here.
World Scleroderma Day 2015
On the 29th June the Scleroderma Society will be joining organisations across the globe to celebrate World Scleroderma Day 2015. We would be delighted to receive your support during this campaign and hope you can share our 25 second videos on your social media. See World Scleroderma Day activities for World Scleroderma Day 2015.