Recommendations for the implementation of self-management strategies in IA

NRAS’ National Patient Champion Ailsa Bosworth is the joint convenor (with Elena Nikiphorou, King’s) and a senior author of the paper entitled ‘2021 EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis’ published in the Annuls of Rheumatic Disease last week. These important recommendations come at a crucial time when rheumatology teams are reviewing how they deliver patient-centred care going forward as we come out of the pandemic, and will be presented at EULAR 2021 in June in a session on ‘Mastering Self-management: State of art in a New Era.’…

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Guest blog: Supporting people living with long term pain

What does the recent NICE guidance mean for pain clinics in this country?

Personal view from Alf Collins, Clinical Director for Personalised Care, NHS England and NHS Improvement

The recently published NICE guidance re: chronic pain management 1 has enjoyed a mixed reception. The purpose of the guidance is to improve the lives of people living with long term pain by improving the quality of pain management services across the NHS but many commentators, patient groups and national professional bodies have not been slow to criticise it, citing that implementation could lead to significant patient harm.…

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Upcoming NASS self-management sessions

The next NASS Facebook Live sessions:

  • Thursday 23 February 2023, 18.00: High-Intensity Interval Training session with Josh Poole, Senior Physiotherapist; and
  • Wednesday, 1 March, 13.00: Talking to friends and family about your axial SpA with Zoë Clark, NASS Senior Self-management Programme Officer.

To watch live, visit the NASS Facebook page at the time of the live session. (If you can’t see the video, refresh your page.)

The NASS Facebook Live sessions have been running for about three years now, helping people to manage their axial SpA (AS) in unprecedented times and beyond.…

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Exercise and self-management resources

With everyone now spending a lot more time at home, it could have a significantly negative impact on people’s physical activity levels. For people with musculoskeletal conditions, there are things that can be done to protect health and manage illness, to maintain good physical and mental health.

Provided people are well enough and following the latest government guidelines, exercise matters during this period and it’s more important than ever right now. It can help manage stress and anxiety too. Here are some specific resources, tailored for musculoskeletal health.…

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Pain and physical activity: complex issues need collaborative solutions

CEO update by Sue Brown

One of the things I love about my job is the variety of things I get involved in. The wide scope of what is covered by musculoskeletal health and the variety of ARMA members, partners and stakeholders means no two days are ever the same.  August has been a month to prepare for the exciting variety of activity we have planned including our annual lecture, a roundtable on pain, an event on physical activity and more webinars.…

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Universal Personalised Care – a summary

Since the NHS Long Term Plan (LTP) was published on 7 January 2019, the Universal Personalised Care: Implementing the Comprehensive Model has been published.

The document defines personalised care: people have choice and control over the way their care is planned and delivered based on ‘what matters’ to them and their individual strengths, needs and preferences.

There are six components to the model:

  1. Shared decision making
  2. Personalised care and support planning
  3. Enabling choice, including legal rights to choice
  4. Social prescribing and community-based support
  5. Supported self-management
  6. Personal health budgets and integrated personal budgets.


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New publication: ARMA policy position paper on supported self-management

ARMA policy teams and CEOs collaborated to agree a Policy Position Paper on Supported Self-Management for People with Arthritis and Musculoskeletal Conditions. The Policy Position Paper sets out recommendations for change.

The evidence identifies the importance of patients as partners in their own care. While people with musculoskeletal conditions can play a pivotal role in their condition, most are simply unaware of the difference they can make. That’s why the Alliance believes people should be supported to take a proactive role in their health, to live well, feeling confident and in control of their condition with supported self-management.…

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Living with persistent pain in Wales – consultation open

The Welsh Government has published its draft ‘Living with persistent pain in Wales guidance’ for consultation and is seeking views on the draft guidance which will replace the Service Development and Commissioning Directive for Chronic Non-Malignant Pain 2008.

The consultation is on the proposed direction of the draft guidance, which includes: living with pain, supported self-management and health service provision.

More information on the consultation, together with the draft guidance, can be downloaded from the gov.wales website.

The consultation ends 14 September 2018.…

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Patient survey on MSK self-management apps

EULAR has funded a project aimed at understanding the development, evaluation and implementation of mobile phone applications for self-management in patients with rheumatic diseases.

Following a systematic literature teview, the project task force is now at a stage where it would like to gain insights into the patient’s views, perceptions and current use of health apps for self-management.

EULAR therefore kindly asks you to fill in the following survey:
surveymonkey.com/mHealthAppsSurvey
It takes 5 to 10 minutes to complete.