PSALV distributed its latest newsletter to members, clinicians throughout Scotland, MSPs and various other interested individuals and groups involved with skin and joint issues.

 

Europso Event, November 2013

PSALV attended an event organised by the Federation of European Psoriasis Associations (EUROPSO) at the European Parliament in Brussels, November 2013.

The event in the Parliament gathered representatives of patients’ associations, healthcare professionals, industry and policy-makers to discuss ways of tackling the burden of chronic diseases in Europe, with a special focus on psoriasis and psoriatic arthritis. A video was shown from Neil Betteridge, Vice President, EULAR, addressing the issues of those with psoriatic arthritis and the World Health Organisation’s resolution on psoriasis and psoriatic arthritis of May 2013.

 

Patient Charity Submission

PSALV submitted a Patient Charity Submission to Scottish Medicines’ Consortium (SMC) re Stelara (Ustekinumab) for the treatment of Psoriatic Arthritis, January 2014.

 

PSALV receives diploma from the International Federation of Psoriasis Associations

PSALV is delighted to report that we have received a diploma as a member of IFPA, the International Federation of Psoriasis Associations in recognition of our participation in IFPA’s international film project ‘Under the Spotlight’. PSALV’s Director Janice Johnson was featured talking about her experience of psoriasis and psoriatic arthritis – you can watch the film at underthespotlight.com

 

SIGN guideline on the Management of Chronic Pain

SIGN Guideline 136, “Management of Chronic Pain”, is now available to view online. This Guideline provides recommendations and treatment pathways based on current evidence for best practice in the assessment and management of adults with chronic non-malignant pain in nonspecialist settings, including self management, pharmacological,psychological, physical, complementary and dietary therapies.

You can view the guideline and the accompanying patient pathway on www.sign.ac.uk/‎

 

Experience of UK benefits policies?

Then a Glasgow Uni researcher wants to talk to you. If you are disabled, or have additional support needs, and are in receipt of certain benefits, Kainde Manji, Doctoral Researcher at Glasgow University would like to talk to you about your experience of claiming, and how UK government benefits policies affect you.

The purpose of this study is to find out about the experiences of people in Scotland who have individual support needs, and the way that these policies are affecting them. To take part please email mk.manji@research.gla.ac.uk

 

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