Upcoming webinar: Paediatric rheumatology: lived experience and psychological needs
Friday 27 March 12.30 – 1.30
Around 12,000 children and young people in the UK have a musculoskeletal condition. Supporting them to live the lives they want is an important part of treating their conditions. This webinar will discuss these issues using the example of Juvenile Dermatomyositis (JDM), a rare condition affecting just 3 in a million children in the UK.
Polly Livermore is a rheumatology nurse who has studied the psychological needs of children with JDM. The findings of her study will be widely applicable to children with other musculoskeletal conditions and many other rare chronic conditions in childhood.
Polly will discuss her findings with Clinical Scientist Dr Claire Deakin and a parent, Mrs Carolyn Farrugia.
The webinar will cover:
- Paediatric Rheumatology with introduction to Juvenile Dermatomyositis (JDM)
- The UK wide registry which collects data on these children and young people
- What we know about the lived experience and psychosocial needs of children with Juvenile Dermatomyositis and what support they feel they need.
- Current psychology service provision around the UK
- Discuss ideas for future work
Who should attend:
Rheumatologists, nurses, psychologists, allied health professionals, social workers, GPs and any other healthcare professionals working with children and young people with musculoskeletal conditions, voluntary organisations and school teachers.
Presenters:
Polly Livermore, NIHR Clinical Nursing Doctoral Research Fellow, GOSH BRC Clinical Academic Lead at Great Ormond Street Children’s Hospital, NHS Foundation Trust
Dr Claire Deakin, Senior Scientist, University College London Hospital
Lyn Farrugia, parent