nras-awarenessRA Awareness Week 2014

We were blown away by the support we received in raising the profile of RA during this year’s awareness week which took place on 16th – 22nd June. Thank you so much to our supporters for their efforts to make RA better understood by the general public, we can’t make a difference without you! We received 78 pieces of media coverage and our poster was published in the Metro on the first day of the week. We had celebrity support from Claire King, Jenny Agutter, Jo Whiley, Craig Revel Horwood, Hazel O’Connor and political support from David Cameron, Nick Clegg and Ed Milliband.

The response to our social media activity was immense and this helped us reach out to thousands of people online. We had a successful group launch in Gloucester and a great turn out for The RAmble, our first walking event, in Worcester. Many of our supporters held information stands and raised awareness in their local area as well as fundraising through tea parties, rambles and even wing walking! We’ll be showcasing all the amazing things they did during the week in our next magazine.

In collaboration with 2020health, a leading health social enterprise think tank, we published ‘Invisible Disease: RA and Chronic Fatigue 2014’, a survey of 1,954 people with Rheumatoid Arthritis (RA), to assess the impact of chronic fatigue on their capability for work, emotional and mental health as well as the overall experience of chronic fatigue caused by their RA. Thank you to those who took part in the research. You can read the report and find out more about the RA Awareness Week 2014 at www.nras.org.uk/RAweek.

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JIA Service Launch

Last Saturday, 19th July, NRAS officially launched its new Juvenile Idiopathic Arthritis (JIA) service with ‘Tea on the Beach’ at the Heart of England Conference Centre in Warwickshire.

The day was an opportunity for children, teenagers and family members to attend a free event where they took part in all sorts of exciting activities and parents also had the opportunity to ‘Ask the Professionals’.

There were sessions with health care professionals throughout the afternoon, including a talk by Clarissa Pilkington, the lead Paediatric Rheumatology Consultant at Great Ormond Street Hospital.nras-jia2

The children enjoyed games of football, cricket and rounders, whilst also being driven around the site on quad pods. Afternoon tea was served and families had the opportunity to meet other families and talk about life with JIA.

We will soon be launching a separate website specifically for JIA but in the meantime you can find out more at www.nras.org.uk/jia or contact jia@nras.org.uk.

 

NRAS Tandem Skydive back by popular demand!

Jumpers took to the skies in May to raise funds for NRAS, now by popular demand we have organised another jump which will take place on the 4th October at Hinton Airfield in Northampton. Our very own Mark, who works in Fundraising, is going to take part – would you like to join him?

We ask that you pledge to raise a minimum of £350 (this includes your jump fees of £220). We have a great fundraising pack full of ideas on how to raise sponsorship and we will of course be there on the day to make sure you reach the ground safely! We will even throw in an NRAS t-shirt for you to wear on the day.

If you would like to join us on the 4th or would like more information please email val@nras.org.uk or call Val on 01628 501547.

 

Tea Party fun for Summer

nras teapotWith the school holidays upon us and 6 weeks to keep the children entertained – what about organising a tea party for the children? Get them involved with making decorations, like bunting or paper chains. Have a day baking up some tasty treats and then have your play date, turning it into a Tea Party for all to enjoy, ( Mums included!!)

Have a good old fashioned Tea party, or for the younger ones get them to bring along their favourite Teddy for a Teddy Bears style picnic. For older children maybe some games or dress up as Pirates and Princess’s!! Let you imagination take over and get the children involved with the organising and fundraising. There are lots of ways to make it a successful fundraiser and if you would like to find out more and get an NRAS Tea party fundraising pack please contact us by email Bronwen@nras.org.uk or visit our website to download a pack www.nras.org.uk.

 

nras-summer-clear-outHave a summer clear out and help raise money for NRAS!

You can order our freepost envelopes to recycle mobile phones, printer cartridges, jewellery, earrings, chains, and watches etc by emailing keren@nras.org.uk. It’s a great chance to get rid of all those odd earrings and broken chains!

To donate any unwanted clothes simply register with Charity Eco System and then wait for a delivery of a bag within a few days. Fill the bag with any clothes you would like to donate, and they will collect it on any weekday you choose.

See how simple it is to raise money, help people with RA, conserve resources, save energy and protect the environment all in one go, and don’t forget the spread the word!

For more information please email fundraising@nras.org.uk or call Keren on 01628 823524.

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