NRAS-Logo-may2014RA Awareness Week 2014

Thank you to all who took part in our Invisible Disease campaign for this year’s Rheumatoid Arthritis Awareness Week, in which we asked our supporters to make RA visible! We had a great response to our social media activity and calls to action to get the word out about RA in the local community. Our first walking event, The RAmble also saw 100 people come together in Spetchley Park, Worcester to raise awareness and funds for people living with rheumatoid arthritis. It’s not too late to get involved, find out more at www.nras.org.uk/RAweek

 

Launch of new report, Invisible Disease: Rheumatoid Arthritis and Chronic Fatigue

To coincide with this year’s RA Awareness Week, NRAS in collaboration with 2020health, a leading health social enterprise think tank, announced last week the results from Invisible Disease: RA and Chronic Fatigue 2014, a survey of 1,954 people with Rheumatoid Arthritis (RA), to assess the impact of chronic fatigue on their capability for work, emotional and mental health as well as the overall experience of chronic fatigue caused by their RA.

Of concern are the survey’s findings, which show that there is a significant lack of awareness of fatigue as a serious symptom of RA amongst the public.

Chronic fatigue also has a significant impact on capability for work, the survey finds. 50% of respondents of working age said that they were unemployed. 71% of working age unemployed respondents said fatigue had contributed to their inability to work.

Read more on Fatigue here.

NRAS-MSP NANETTE MILNE Group

Site visit with member of the Health and Sport Committee, Nanette Milne MSP

To mark national RA Awareness Week in Scotland, NRAS organised a site visit to Aberdeen rheumatology service with Nanette Milne MSP, a member of the Health and Sport Committee, to discuss challenges concerning Scottish RA services and the findings of the new chronic fatigue report. Nanette was met by members of the NRAS government affairs team, Chair of NRAS Scottish Campaigns Network, Sheila MacLeod and top clinicians from NHS Grampian. Following the event, Nanette pledged to undertake a range of follow-up activity.

 

Constituent drop-in session with Assembly Members

To coincide with the launch of national RA Awareness Week in Wales, NRAS held a constituents’ drop-in session in the National Assembly for Wales to talk about the quality of local RA services and the need to review the Welsh MSK Directives. The event was sponsored by Chair of the Health and Social Care Committee, David Rees AM. Around 20 AMs attended the event from all sides of the political spectrum and following the event several attendees pledged to table questions about RA services in Wales.

 

JIA-NRAS-SquareJIA-at-NRAS

JIA-at-NRAS is part of the National Rheumatoid Arthritis Society. This year we are launching our new service to raise awareness of Juvenile Idiopathic Arthritis (JIA) and to work closely with health professionals and other charities to ensure we are all striving towards the same goal: ‘ a better life for young people living with JIA’. We shall be campaigning at government every in each of the four nations in the UK to ensure that the needs of families, children and young people affected by JIA are understood and prioritised. We are launching this new service on 19th July 2014 at The Heart of England Conference Centre in Fillongley, Coventry. This is a great opportunity for families to meet us and have a fun afternoon, relax, network and talk to the health professionals coming along. For full details of the event contact maria@nras.org.uk

 

Run for NRAS

At last the weather has improved, the evenings are longer, it’s sunny, an ideal time to go out for a run. Why not set yourself a goal and run for NRAS in this year’s Great North Run on the 7th September. We have a few remaining places to fill in the world’s greatest half marathon. With a fantastic atmosphere and crowds cheering you throughout, this is the run to take on!

NRAS will support you every step of the way with:

  • a training programme
  • a fundraising pack full of useful information on raising sponsorship
  • an NRAS running vest
  • regular contact from our events team
  • a huge pat on the back from our events team at the end of the race!

However we can help we will to make sure you have a great day and one you will remember for a very long time.

If running isn’t your forte do you have a friend who might like to join ‘Team NRAS’ and help us to raise much needed funds? Have you already gained a place in the race and if so would you consider joining our team and running for us? To find out more information or to sign up, contact val@nras.org.uk or call 01628 501547.

 

It’s Tea Party Time!

The Wimbledon Tennis Championships have finally arrived which makes it an ideal time to invite friends to an NRAS Tea Party. Our tea party leaflet is full of great ideas and has a couple of delicious recipes for you to try – making now the ideal time to sign up! You might like to theme your day to include the tennis, strawberries and cream, a glass of Pimms (or two) – what could be better! Whatever your theme there is always time for tea and cake! For more information on our tea parties please contact Fundraising@nras.org.uk or visit our website at www.nras.org.uk/teaparty to download a tea party pack.

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