MPS-picThis campaign comes from the Society for Mucopolysaccharide Diseases, a voluntary support group and advocacy charity which represents children and adults in the UK suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases. Mucopolysaccharidosis is an enzyme disorder which affects a child’s ability to build bone, cartilage, tendons, corneas, skin and connective tissue.

The MPS Society is encouraging people to sign a petition to government about funding for rare conditions.

The campaign aims to reinstate the Highly Specialised Services and ultra orphan drug appraisal process for children and adults with ultra-rare diseases that NHS England dismantled on 1 April 2013.

Read more about the drug appraisal and funding process from the MPS website, or sign the petition now.

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