myositis-SGThe Myositis Support Group changed its charity name to Myositis UK at its AGM in July and was approved by the Charities Commission. The name change is to reflect the charity’s broader activities (including funding research) and national standing, although it remains a small charity because the inflammatory myopathies dermatomyositis, polymyositis, juvenile dermatomyositis and inclusion body myositis conditions are rare.

The charity celebrated its 25th year as a registered charity with a Gala Dinner for members and doctors. It was felt that now would be a good time to modernise the charity name to Myositis UK which would also make available the term “support group” to be taken as a title by future regional member groups within the charity.

 

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